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Elmiron side effects!

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  • Elmiron side effects!

    Those of you who have tried Elmiron and had Gastro side effects, what kind of side effects where they?

  • #2
    I had some cramping and diarrhea when I took it on an empty stomach. Emptying it out of the capsule did not make a difference so I started taking with a small snack and that stopped the cramping and it still appears to work for me. I also had some very mild dizziness that lasted a few days but it was not that severe. I love Elmiron!
    The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC
    First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007; IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation
    Treatments for my IC/PFD: Elmiron 400 mg per day; walking, Zyrtec, Claritin, Singulair, Neurontin 100 mg per day; Ice packs and laying down; About to try Cytotec
    Tried and Failed: Heat (always makes me worse!), Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches (just plain don't work), Cystoprotek (only tried a couple months but didn't seem to do much), Aloe Vera caps, pelvic floor therapy, trigger point work flared me worse, Lyrica (bad stomach pain)
    Other Diagnoses: PFD 2009; Fibromyalgia 2006, Osteopenia 2012, GERD 2006, Gastroparesis (delayed gastric emptying) Anxiety: Other medications: Ambien, Dexilant, Ibuprofren, Necon 1/35, Voltaren gel for tailbone
    BABY GIRL 10/28/08 *** BABY BOY 7/8/11

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    • #3
      When I first started Elmiron I had horrible stomach cramps (so bad I would double over) and would end up in the bathroom with diarrhea . So I cut back to one a day and would open the capsule and put it in water. It took a few weeks but I gradually worked up to 3 a day and now take 4 per my uros. instructions - 2 in the am, 2 in the pm. I no longer have any problems with it and don't need to open up the capsules. I am very sensitive to meds. so I now go slowly with everything.

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