OK, I have been almost a month without my Elmiron - pain is back! Has anyone been able to get theirs refilled or has anyone heard when the shortage will end?
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If you can afford to pay for it, I believe you can still order out of Canada.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool
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I was picking up a new prescription of Euribel yesterday (to supplement the Elmiron in case I have to cut back.) I asked about Elmiron, since my mail order pharmacy is out and doesn't know when they'll have it in. Pharmacy tech said they've had it all along. Contacted my doctor's office and they called in a prescription. It was CVS in Langhorne, PA.
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My CVS has been in stock as well.Your Friend,
Michelle
Diagnosed: 10/16/09
Elmiron, 100mg 2x per day
Imipramine, 10 mg per day
Diazepam 10 mg for sleep
Zyrtec
Zovia, birth control (ongoing-no periods)
Probiotics
Hydrocodone, 2 pills a day (at any time of day)
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I had to check a few pharmacies today to find it, and finally found it at a CVS. I was starting to get a bit worried....Diagnosed with: IC, PFD, endometriosis, uterine fibroids, adenomyosis, pelvic congestion syndrome
Surgeries: pelvic laparoscopy (1999) to remove adhesions, supracervical hysterectomy (2009)
Medications: Elmiron, Atarax, Enablex
Physical therapy: Since 6/11
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Elmiron @ CVS?
Sounds like many members have had good luck with CVS! I am going to call a few tomorrow.
Thank you for this information.Diagnosed in June 2008. Symptoms began in 1998.
Also diagnosed with Sjogrens, APLS, IBS, & GERD.
Medications:
Elmiron 400 mg, Protonix 40 mg, Tramadol 25 mg, Plaquenil 200mg, iron, Vitamin D 100 IC , Calcium 2 tablets, Fish Oil 2 tablets, Claritin, Biotin, Pro-biotic, & restastis eye drops.
It took a year for the Elmiron to work, but it has really made my life with IC bearable.
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