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  • Bleeding?

    I have been on elmiron for about 3.2 months ish now I would say..... I have been noticing gradual improvement for sure, (some more days than others) but I am concerned that it wont get any better than this. I have read countless stories too say to wait, just be patient! .... GAH that is so hard! But I will wait for sure!!!!!

    The other thing I have noticed is that I bleed alot more now when I have my period. Almost alarming amounts..... It just seems to "run" out of me now where it never did before... Im afraid it is too much sometimes? I have been off the pill and I think this is related to the heavier flow, but can elmiron do this since it is a blood thinner? Should I be worried??


    28 yrs old,

    I have little to no problems now with my bladder, unless I am very stressed out, I forget to take Elmiron for a few days, or I eat or drink something that I know is a trigger...(i.e) like eating a tomato or drinking tea.... Took a long time to get here, but it IS possible to feel good again I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC.

    What Works: Tylenol 3's, Pyridium, Elmiron (Going on 4 years now!) HOT showers!!!

    Medications/ Vitamins: Elmiron-100mg 4x's daily Tylenol 3's/Advil (flaring) Vitamin D, WILD salmon oil 4x gels in the morning, Women's ONE a DAY multivitamin (the gummy kind doesn't make me flare) and PROBIOTICS!

    Me in my graduation gown!

  • #2
    I don't think you need to worry, but you might want to mention it at your next gyn appointment.

    Stay safe

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool