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  • hair loss?

    Hi all, I just started Elmiron a few days ago, but when people saw hairloss, how much hairloss? Also, is this permanent or will it grow back when you go off of the med? I hate the idea of lossing my hair.
    Last edited by Pammylynn8; 08-04-2011, 04:06 PM.
    -Pammylynn Rose
    Wishing everyone a pain free bladder day!


    Painful symptoms start in May 2011
    Diagnosed with IC in Aug 2011

    MEDICATIONS
    Elmiron
    Axert (only for rare migraines)
    Strict IC diet
    Gluten/dairy/egg free diet



  • #2
    Only a tiny percentage of people taking elmiron experience hair loss --- and I have read that when the medication is stopped, the loss also stops and the hair grows back in.

    I always suggest to anyone who is concerned about this do what I call a hairbrush test before starting elmiron --- you could still do this. You take a hair free hairbrush and brush your hair thoroughly --- then comb the hair from the brush and store it in a clear sandwich bag. That way if you feel you might be losing hair, you can repeat the brush test and compare the amount of hair to what is stored in the sandwich bag.

    Sending warm healing thoughts,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      thank you Donna, that is very helpful
      -Pammylynn Rose
      Wishing everyone a pain free bladder day!


      Painful symptoms start in May 2011
      Diagnosed with IC in Aug 2011

      MEDICATIONS
      Elmiron
      Axert (only for rare migraines)
      Strict IC diet
      Gluten/dairy/egg free diet


      Comment


      • #4
        I did lose hair. It was all over at about month 3. It stopped after 2 months and now my hair is as thick as ever.

        Suzanne

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        • #5
          I am experiencing hair loss.

          I just started taking Elmiron, 200 mg 2x a day. I have been feeling better and am on the strict IC diet. I have just started cutting back on Elmiron because of the hair loss, even my eye lashes! and just went to 100 mg 2x a day so I am testing to see if i still feel better. (Not 100% yet but I was just diagnosed with this)

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          • #6
            thanks for the info.. I went down to twice a day too b/c my heart was pounding when I took it three times a day.
            -Pammylynn Rose
            Wishing everyone a pain free bladder day!


            Painful symptoms start in May 2011
            Diagnosed with IC in Aug 2011

            MEDICATIONS
            Elmiron
            Axert (only for rare migraines)
            Strict IC diet
            Gluten/dairy/egg free diet


            Comment

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