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  • #1

    Ten months

    Just thought I'd share with everyone... ten months was the magical time period for me for being on Elmiron. Before a couple of weeks ago, I would tell anyone who asked that I stayed on it only because it was so cheap for me- I really couldn't tell if it was doing anything or not, and it certainly wasn't hurting.

    Nothing else has changed, so I know it's the Elmiron. I haven't felt my bladder in about three weeks. I had a LEEP, and a biopsy and colposcopy, and didn't feel my bladder. I don't flare a lot, but I usually can "feel" my bladder. I know you guys know what I mean.

    So... don't give up if you reach that 6 month mark everyone talks about and feel the Elmiron isn't working!
    Symtoms started July 2010.
    Severe pelvic floor pain only.

    2 time PT graduate!
    In medical remission since August 2011; able to eat and drink anything I want currently.

    IC meds:
    200 mg Elmiron in the morning
    100 mg Elmiron @ night
    Macrobid after intercourse

    03/11 07/11 01/12
    If at first you don't succeed: 07/26/2013!
    Tags: None
  • #2
    That's GREAT! Thank you for sharing your success.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Yes, that is great! What is a LEEP? I stayed on Elmiron for almost a year (back in 2006) and it didn't work for me so I gave up. My Dr. has mentioned me going back on it a couple times. I have to pay full price for name brand drugs now though. I wonder if a generic is going to come out.

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      • #4
        A LEEP is unrelated to IC. It is to remove precancerous cells on the cervix. My doctor warned me that it would probably send me into a big flare though.

        Yikes, if I paid full price for Elmiron, there is no way I would have stayed on it. I pay $15 a month!
        Symtoms started July 2010.
        Severe pelvic floor pain only.

        2 time PT graduate!
        In medical remission since August 2011; able to eat and drink anything I want currently.

        IC meds:
        200 mg Elmiron in the morning
        100 mg Elmiron @ night
        Macrobid after intercourse

        03/11 07/11 01/12
        If at first you don't succeed: 07/26/2013!

        Comment

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