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Marshmallow Root Tea for flares or general IC supplement

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  • Marshmallow Root Tea for flares or general IC supplement

    Was wondering for those that have had success with drinking marshmallow root tea if you used it for only when flaring or on a daily basis for warding off IC symptoms. I read about it and it is supposed to have Gag layer benefits. I am thinking about adding this to my regime since I won't be doing instills until my UTI situation goes away. Thank you!
    Diagnosed with IC sept. 2008, treatment then was hydrodistension, heparin instills for about 4 months and IC diet; symptoms lasted until sept 2009. Then only a couple of relapses overworking, stress etc. Then completely in remission until Jan. 2016 now pretty much symptom free as of mid august 2016.

    Symptoms: overall body aches, dryness feeling at vaginal opening, sitting makes it worse, standing makes it worse, stress makes it worse, no frequency or urgency, worse symptom is at night with panging of uretha/bladder.

    - went on diet, started Cysto Renew 3/31/16 and yoga at least twice a week.
    - tried uribel but really not for my symptoms since it seems it is for frequency and painful urination which I don't have
    - Ativan when needed to relax.
    - Elmiron only took for a couple of days; didn't like it
    - took atarax 1/2 10mg atarax pill at night really helped but gave me nightmares
    - tramadol worked great for back aches
    - generic claritin D worked best for me for calming bladder down and my panging
    - still taking cysto renew 4x a day and believe this and diet helped the most.
    - took dosage of cysto renew down to 2x a day and still ok

  • #2
    Some do feel relief from Marshmallow Root Tea --- it didn't help me, but we can be different so I think it's worth a try. You could also have a look at the products available in the ICN Shop to see if there's something there that might help.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      thanks! I am on bladder rest now hasn't been a month yet and have read it can take up to 3 months for any results to feel better. I did take cystorenew but out of stock it worked best, My bladder has taken a beating with all these UTIs. trying to get back on track but afraid to start my instills again has been since end of Feb without instills, don't know if that has been the cause of UTIs or not could be vaginal atrophy where my urolgyno said that causes your tissues down there to become thin so therefore more prone to UTIs. Still trialing without instills to see if UTIs stop. I've had one since stopped, so don't know.
      Diagnosed with IC sept. 2008, treatment then was hydrodistension, heparin instills for about 4 months and IC diet; symptoms lasted until sept 2009. Then only a couple of relapses overworking, stress etc. Then completely in remission until Jan. 2016 now pretty much symptom free as of mid august 2016.

      Symptoms: overall body aches, dryness feeling at vaginal opening, sitting makes it worse, standing makes it worse, stress makes it worse, no frequency or urgency, worse symptom is at night with panging of uretha/bladder.

      - went on diet, started Cysto Renew 3/31/16 and yoga at least twice a week.
      - tried uribel but really not for my symptoms since it seems it is for frequency and painful urination which I don't have
      - Ativan when needed to relax.
      - Elmiron only took for a couple of days; didn't like it
      - took atarax 1/2 10mg atarax pill at night really helped but gave me nightmares
      - tramadol worked great for back aches
      - generic claritin D worked best for me for calming bladder down and my panging
      - still taking cysto renew 4x a day and believe this and diet helped the most.
      - took dosage of cysto renew down to 2x a day and still ok

      Comment


      • #4
        You might also look at other causes for infections. Are you taking tub baths? Years ago I switched from the bath tub to a shower and haven't had an infection since I did that. If you are touching the urethra with toilet tissue, that can also be a factor --- it's best to blot, rather than wipe, after urinating --- and be super careful when wiping after a bowel movement. You're probably being careful, but I mention it because for some it might be an issue.

        If vaginal atrophy is an issue for you, you might want to talk to your doctor about possibly treating it.

        Sending healing thoughts,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          no tubs whatsoever never have, shower person, no hot tubs either. will try blotting also during the toilet paper pandemic had to use other have switched back to regular brand, will try blotting, thanks!
          Diagnosed with IC sept. 2008, treatment then was hydrodistension, heparin instills for about 4 months and IC diet; symptoms lasted until sept 2009. Then only a couple of relapses overworking, stress etc. Then completely in remission until Jan. 2016 now pretty much symptom free as of mid august 2016.

          Symptoms: overall body aches, dryness feeling at vaginal opening, sitting makes it worse, standing makes it worse, stress makes it worse, no frequency or urgency, worse symptom is at night with panging of uretha/bladder.

          - went on diet, started Cysto Renew 3/31/16 and yoga at least twice a week.
          - tried uribel but really not for my symptoms since it seems it is for frequency and painful urination which I don't have
          - Ativan when needed to relax.
          - Elmiron only took for a couple of days; didn't like it
          - took atarax 1/2 10mg atarax pill at night really helped but gave me nightmares
          - tramadol worked great for back aches
          - generic claritin D worked best for me for calming bladder down and my panging
          - still taking cysto renew 4x a day and believe this and diet helped the most.
          - took dosage of cysto renew down to 2x a day and still ok

          Comment


          • #6
            You're welcome --- hope it helps.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment

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