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  • Cystoprotek

    I just wanted to let you ladies know..that I am having MUCH LUCK W/ CYSTOPROTEK..after just 2 days.

    Wow. I cannot believe it.

    Quickly my Story.
    I quit Elmiron 55 days ago..due to hair loss.
    I began Aloe Vera in its place..and Elavil at nite.
    At day 41..of being off Elmiron..my hair was stilling falling out..I cried horribly...about my hair..quit the Elavil...and Immediately began to Flare.
    My doctor called in some Atarax..last sunday ! (best uro in the world)

    I am began taking Atarx 50mg 1Xday
    Elavil 25mg 1xday

    Still trying to get that flare under control.
    2 Weeks into the Flare...and after being awake for 4 days straight..I ordered the Cystoprotek. It just arrived yesterday. It says to take 2 pills...Twice Day. I took the 4 pills..as directed yesterday. It is about $40 for a one month supply.

    Anyway, and I slept until 9am this morning! I feel great.

    By the way...by day 55 of being off Elmiron..the Hair loss has pracitcally stopped. Still comming out a little..but its way way less
    Quit ELMIRON due to hair loss
    Cystoprotek ROCKS!

    find me on FACEBOOK -
    search my email [email protected]

    Current Meds:
    AM Cystoprotek & ATARAX 50mg
    Dinner CYSTOPROTEK
    PM Elavil 25mg


  • #2
    Do you still feel good today? Nice to hear that something worked for you so you can get some relief...and some SLEEP!

    Comment


    • #3
      cant even tell

      i cant even tell i have IC
      Quit ELMIRON due to hair loss
      Cystoprotek ROCKS!

      find me on FACEBOOK -
      search my email [email protected]

      Current Meds:
      AM Cystoprotek & ATARAX 50mg
      Dinner CYSTOPROTEK
      PM Elavil 25mg

      Comment


      • #4
        wow thats great news.. did it help with the urgency?
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment


        • #5
          yes

          frequency & urgeny were my biggest complaints
          with burning running a close second

          yes..its all gone right now
          cross my fingers

          i have never had much pain
          so i cant say how it would help w/ that
          Quit ELMIRON due to hair loss
          Cystoprotek ROCKS!

          find me on FACEBOOK -
          search my email [email protected]

          Current Meds:
          AM Cystoprotek & ATARAX 50mg
          Dinner CYSTOPROTEK
          PM Elavil 25mg

          Comment


          • #6
            Does this help with vaginal problems also? Can sometimes vaginal symptoms be related to IC?
            Diagnosed with IC - March 2007
            Diagnosed with vulvodynia - June 2007
            -Lots of prayer
            -Taking Elmiron and Hydroxzine (stoppped because of pregnancy)
            -Taking Prelief as needed (stopped because of pregnancy)
            -IC diet

            Comment


            • #7
              Just want to THANK YOU for this thread. You got me on CystoProtek and it's GREAT! A vast improvement in my frequency. Luckily, I've not had much pain. So I can't tell it if would help with that.

              Hugs,
              Darlene

              Comment


              • #8
                I have a bottle of this stuff here at home. I just have not tried it yet. I am worried it will upset my stomach and I already have bad tummy issues. Is it known to upset the stomach? I have more of a pain issue with my IC. Does it help at all with the pain?
                Jen

                Comment


                • #9
                  I usually take mine with food, but some folks have had stomach issues. Maybe take it at the end of a meal.

                  Can someone else answer the question about CystoProtek reducing pain?

                  Darlene

                  Comment


                  • #10
                    If you look at the studies of cystoprotek on their website, their study showed a significant reduction in all symptoms including frequency and pain. I am hoping that I will have a positive experience with it. At the very least, it may be good for the joints.

                    Comment


                    • #11
                      Hey, Kathleen,

                      I'm now using only CystroProtek and MSM ....and having great results.

                      Good luck!

                      Darlene

                      Comment


                      • #12
                        cystoprotek

                        I purchased the cystoprotek but havent used it yet because it says it contains soy. I am very paranoid but isnt soy a no no to an IC bladder. Can anyone help.

                        Comment


                        • #13
                          Soy lecithin is usually okay. I have trouble with soy, myself, so I think you are wise to be cautious. Soy lecithin "should" be okay. Cystoprotek has been a tremendous help to me. Well worth taking the risk, IMHO (in my humble opinion).

                          Darlene

                          Comment


                          • #14
                            Try it and hope for the best

                            It's funny how many of these supplements contain ingredients that we have been told shold be avoided, for instance cysta-Q has cranberry powder, and an enzyme, yet many people have been helped by it. I think the best thing to do is start slowly with a small dosage, and if things go ok then gradually step it up. I have been taking cystoprotek for a few weeks now with no difficulty. It does not even bother my stomach. I'm not sure how long it takes to start to improve your IC, but I am hoping it will be sooner rather than later. In my many years of dealing with this disease, I have learned that although things can deteriorate rather suddenly, the journey back is always a slow process which is often marked with quite a few setbacks. It is difficult to to keep a positive attitude during such trying times, but patience often pays off. Do not abandon any possible treatment until you have given it a full trial.

                            Comment

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