Cysta Q?

[Angeles]

Does any of you on Cysta Q has Vulvodynia or vulvar vestibulitis and thinks Cyst Q helps?
I have both IC and later I developed VV , I'm on Cysta Q. I read in their web page that it may help with VV . God I hope it does. It sure does with IC.

[ABliske]

i TOOK the free sample bottle and really liked it. I felt better from taking it I think. I am on a lot of other meds so it's hard to be sure it was that helping me, but I think it was. I need to get more. I tried the Cysto-portek and it hasn't helped me as much.

[Kathleen Philli]

Hard to tell what is helping.

I think most of us are on multiple meds so that it is often difficult to know which one has made the difference when we do feel better. The other thing is that healing a damaged bladder is a very long process. Most medications that actually help heal the bladder take a minimum of 3-4 months to work. During that course in time, it is actually possible that the bladder was going to heal itself anyway. I am trying cysto-protek. It doesn't bother me so I will do the suggested 4 month course and report back. So far so good.

[bunnykinb]

I received my 1 bottle today. I have had a sample bottle before but only took it one month. This time, I am going to use it for the 3 months specified. I had called Farr Labs the manufacturer. The cranberry powder used is acid free. I have never heard of that before. I am in desperate need of relief since I have tried many things already without relief.

[ABliske]

I took the bottle of Cysta Q. Slowly, over time, of course. It seemed to help some. Then, I bought the Cystoprotek to compare and I don't think it's doing a lot for me. I will try to take it more regularly, but I like the Cysta Q better.
It's so hard to tell though if that was what helped me or not. I still have pain every day, but am not quite as miserable as I was before. My urethra feels much better than before, but I have tons of bladder pain.

[bunnykinb]

Since none of the uros I have gone to, nor primary care doctors or gyno know what Cysta Q is. Does anyone know if Cysta Q can be taken while on nortriptyline, DMSO instills, Urelle as needed and Vicadin as needed? I should get my period tomorrow. I am in so much pain right now with burning. It is 1am and I am still up.

[Berkshire Road]

My doctor says okay with nortryptiline and vicodin, but I don't take the other meds you mentioned so I don't know about those.

[bunnykinb]

Although my uro hasn't heard of Cysta-Q, he said none of its ingredients would interfere with nortriptyline, Vesicare, Vicadin, or Ibuprofen. Today will be the first day to start this.

[bearburrow]

What are the main ingredients in Cysta Q and Cystoprotek? I live in the UK and have never heard of these two supplements in any of our health shops.

Thanks,

BBx

[Berkshire Road]

I think the main common ingredient is quercetin.

[Angeles]

That's correct. Quercitin is the main ingredient. You can google and go teh their website and find out more about eh ingrediets. Both cost about the same and have almost the same outcome for what I can see. I liked that Cystoproteck also contained gucosamin and condritin (sp) and Cysta q doesn't. I take Cysta Q now , b/c like I mentioned before, Cystoprotek is a little rough in the stomach.

[bunnykinb]

How is Cysta-Q doing for anyone? I started it July 11 and only had about 10 days of no pain, but I have urethral burning again.

[amanda8]

let me know how it goes i just got my free trial in the mail, but also scared to take it, i have had the worst luck with treatment/meds

[bunnykinb]

I started Cysta-Q on 7-11. So far, no improvement. I am having some more horrible burning. I haven't been successful with treatments or medications either. I read on the website that if there isn't any improvement by the 3rd month, then it won't work. I am really hoping for it to work because I am beginning to feel I am on my last leg.

[Angeles]

Bunny,
Don't giwe up. How is DMSO working for you? Does it help?
Remmber there are other treatments for IC: Botox, Cytotec, spirulina, Aloe Vera, so if you haven't tried those yet, you still have some things to try without throwing the towel ( I don't think we should throw the towell anyways) try, try, and try. We are here for you if you need support. It'll get better. Are you doing something to take care of the emotional part? This illness can wear you down and you need to do all you can to keep your mind in tune since it is very connected to the immune system and to the ability to help the body heal.
Best wishes.
SMR