Announcement

Collapse
No announcement yet.

Cysta Q?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • #46
    I found the post with the urethral burning tips. It is the last post on the first page by Star Mejia. Here is the link:

    http://www.ic-network.com/forum/show...ghlight=Aveeno

    Comment


    • #47
      I have never heard of Aveeno and oatmeal? soaked in that area....strange...it's the oatmeal we eat right? I think I have a bad mental picture of it, if it's the same thing lol
      Oh I read the thread, I get it....I guess most of us, would do anything to get rid of the burning.

      My burning comes and off, I don't know...it's weird.....Usually, it's because I have an infection or new infection.

      Bunnies are adorable!!! My male rabbit (not spayed) used to bite everyone but me. But, he did spray pee and bite all wires and papers, which was gross and annoying. Now my male cat, bites papers lol and my female cats too lol, it's like I don't know like some hobby lol looks like they were sitting on it so they have to bite it. My male cat does it because of frustration lol, that he can't bite anyone else, though his spayed, he still bites lol.

      What program did your son use?

      Comment


      • #48
        I got my first bottle of Cysta-Q and am scared it is going to upset my stomach...anyone finding this to be the case?
        -Jenny

        Symptoms: Urgency, frequency, urethra stinging/burning, pressure, bladder pain.
        Current Medications: Prelief, Pyridium, Loestrin FE 120, Probiotics.
        Unsuccessful Medications: Elmiron, Atarax, Paxil (off since July 07 after 12 years), Oxytrol Patch

        Diagnosed with IC in 2004, also have IBS and Endometriosis.

        Comment


        • #49
          NOt me! Good luck.

          Comment


          • #50
            Originally posted by ABliske View Post
            NOt me! Good luck.
            How many are you taking?
            -Jenny

            Symptoms: Urgency, frequency, urethra stinging/burning, pressure, bladder pain.
            Current Medications: Prelief, Pyridium, Loestrin FE 120, Probiotics.
            Unsuccessful Medications: Elmiron, Atarax, Paxil (off since July 07 after 12 years), Oxytrol Patch

            Diagnosed with IC in 2004, also have IBS and Endometriosis.

            Comment


            • #51
              I see Cystoprotek bother the stomach more than Cysta Q.

              But, whatever the dosage, you got to start out slow, like even 1/2 a capsule and slowly increase.

              You won't know if you react if you don't try.

              Comment


              • #52
                The Cysta Q website states to try the product at least 90 days to know if it will help. Anyone who takes this product, did you feel 100% better while on it, or did the product just lessen the pain etc?
                bunnykinb

                6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

                tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning

                Comment


                • #53
                  Bunnykinb - Are you taking the product? Though, it's free trial for one month, is that right? I don't feel like trying it so far but they're pretty generous compared to Desert Aloe Vera, they only provide 6 capules lol SIX CAPSULES?? my god lol that is way tooooo little

                  Vampireness

                  Comment


                  • #54
                    Yes, I have been taking Cysta Q since 7/11/07. After a horrible horrible horrible flare on 7/4/07, I decided to go ahead and try the free month. I then have purchased 2 more months. I am still having some burning though during my period.
                    bunnykinb

                    6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

                    tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning

                    Comment


                    • #55
                      Has it helped so far?

                      Vampireness

                      Comment


                      • #56
                        I think the free tryal in either case, is so that you can see if you don't have a "bad" reaction to the supplement and have to return a whole bottle or waste your $. Normally with supplements (as with some rx) it takes a while to see imporvements. 3 months is a good time to allow yourself to see some improvement already. I wouldn't wait longer.
                        I take some Cysta Q b/c I couldn't tolerate Elmiron and Cystoprotek. Elmiron helped me more.
                        Cysta Q helps but I still have "my IC days" and sometimes aggravated by food or something else. To get rid of a flare, works are pain meds until the flares goes away.
                        Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
                        UTIs since mid 2004
                        Recurrent yeast infections since mid 2005
                        IC dx 3/2006
                        V V dx 12/2006
                        Other conditions: IBS, allergies, dry eyes.


                        Current IC medications:
                        Elavil (since 12/06) 10 mg;
                        Cysta Q (since 5/07)
                        Rephresh acid jel every 3 days
                        D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
                        Probiotics Femdophilus or other brands
                        Gy-Na-Tren for yeast infections (started using it as needed since 2010)
                        Other Rx:Omeprazole 20mg; benadryl as needed, Restasis


                        Past Meds and why I stopped them:
                        Elmiron: March to September 2006: headaches
                        Lyrica:2 weeks in 2006: headaches
                        Cystoprotek: from Jan to April 2007: nausea

                        Femcon Fe (2/07 to 10/07):caused spotting/bleeding
                        BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.


                        "Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"

                        Comment


                        • #57
                          Glad it's of some help to you.

                          Some drugs, such as Elmiron take longer to work, and I read either on this thread or Cystoprotek, that someone was still on it, after three months. I think maybe some of us bladders either take time to feel some result, due to the damage, but something else should be taken to feel some relief, while waiting for something to kick in.

                          Elmiron takes nine months to work doesn't it?.....slowww
                          Have you tried Aloe Vera? It seems to work like Elmiron, it's stated.

                          Vampireness

                          Comment


                          • #58
                            Does Cysta Q relieve all your IC symptoms or does it just lessen them?
                            bunnykinb

                            6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

                            tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning

                            Comment

                            Working...
                            X