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I have never heard of Aveeno and oatmeal? soaked in that area....strange...it's the oatmeal we eat right? I think I have a bad mental picture of it, if it's the same thing lol
Oh I read the thread, I get it....I guess most of us, would do anything to get rid of the burning.
My burning comes and off, I don't know...it's weird.....Usually, it's because I have an infection or new infection.
Bunnies are adorable!!! My male rabbit (not spayed) used to bite everyone but me. But, he did spray pee and bite all wires and papers, which was gross and annoying. Now my male cat, bites papers lol and my female cats too lol, it's like I don't know like some hobby lol looks like they were sitting on it so they have to bite it. My male cat does it because of frustration lol, that he can't bite anyone else, though his spayed, he still bites lol.
The Cysta Q website states to try the product at least 90 days to know if it will help. Anyone who takes this product, did you feel 100% better while on it, or did the product just lessen the pain etc?
bunnykinb
6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.
tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning
Bunnykinb - Are you taking the product? Though, it's free trial for one month, is that right? I don't feel like trying it so far but they're pretty generous compared to Desert Aloe Vera, they only provide 6 capules lol SIX CAPSULES?? my god lol that is way tooooo little
Yes, I have been taking Cysta Q since 7/11/07. After a horrible horrible horrible flare on 7/4/07, I decided to go ahead and try the free month. I then have purchased 2 more months. I am still having some burning though during my period.
bunnykinb
6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.
tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning
I think the free tryal in either case, is so that you can see if you don't have a "bad" reaction to the supplement and have to return a whole bottle or waste your $. Normally with supplements (as with some rx) it takes a while to see imporvements. 3 months is a good time to allow yourself to see some improvement already. I wouldn't wait longer.
I take some Cysta Q b/c I couldn't tolerate Elmiron and Cystoprotek. Elmiron helped me more.
Cysta Q helps but I still have "my IC days" and sometimes aggravated by food or something else. To get rid of a flare, works are pain meds until the flares goes away.
Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
UTIs since mid 2004
Recurrent yeast infections since mid 2005
IC dx 3/2006
V V dx 12/2006
Other conditions: IBS, allergies, dry eyes.
Current IC medications:
Elavil (since 12/06) 10 mg;
Cysta Q (since 5/07)
Rephresh acid jel every 3 days
D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
Probiotics Femdophilus or other brands
Gy-Na-Tren for yeast infections (started using it as needed since 2010)
Other Rx:Omeprazole 20mg; benadryl as needed, Restasis
Past Meds and why I stopped them:
Elmiron: March to September 2006: headaches Lyrica:2 weeks in 2006: headaches
Cystoprotek: from Jan to April 2007: nausea Femcon Fe (2/07 to 10/07):caused spotting/bleeding
BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.
"Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"
Some drugs, such as Elmiron take longer to work, and I read either on this thread or Cystoprotek, that someone was still on it, after three months. I think maybe some of us bladders either take time to feel some result, due to the damage, but something else should be taken to feel some relief, while waiting for something to kick in.
Elmiron takes nine months to work doesn't it?.....slowww
Have you tried Aloe Vera? It seems to work like Elmiron, it's stated.
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