Thank you for visiting the ICN Support Forum. We are so happy that you found us! The ICN Support Forum is home to 50,000 patients who have participated in our 24/7 support system. However, to protect the privacy of our members, members of the public can not read posts unless you have registered first.
It's easy to register! Just click the "sign up" button in the upper right corner of the page. Make sure you use a correct email address because we'll send you an email to confirm that you are a real person!! We also screen all new applicants to verify that they aren't bots or spammers! If you have any problems, please feel free to send a quick email to: [email protected]!
I went to a naturopath on Thursday and she suggested I start taking kava pills to help with my symptoms. I've only been taking them for two days but I think it's helping a little.
Hi: I've had IC for 10 years and thank God for Elmiron & Amitryptiline. They have kept my bladder under control. However, I am now dealing with severe IBS, GERD & Acid Reflux but any medication or antacids that I take cause my IC to flare. I went to my Urologist today and she suggested that I go on Probiotics to get my intestinal problems under control. I have tried some in the past and they triggered my IC.
She also suggested that I try taking my Elmiron outside of the capsule in a small glass of water. She said that might be easier on my esophogus and intestine. She also suggested that I get on the IC website and see if anyone can help me. Can anyone with IC recommend a probiotic that doesn't cause IC problems? Also, has anyone tried Elmiron outside of the capsule? I would really appreciate any feedback that you can offer.
Is Kava like a natural kind of muscle relaxant? Because I think I tried it for my migraines but didn't have any luck. I haven't tried it for IC but if you think it's helping then that's great!!
OK...yes I've tried Elmiron outside the capsule and had no change. But it works for some.
Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
Lexapro-20 mg
Aciphex
Ambien-as needed
Percocet-7.5 up to 3 per day as needed
Valium-10 mg x2 per day
Phenergan-1 at night
Prelief w/everything
Now recovering from acute pancreatitis
Currents treatments that help somewhat:
Heating pad
Hot baths
Ice
Being VERY still while lying down with legs elevated
Glad you are having SOME success with your symptoms. Ummm....Kava, you may want to do a little research on that. Google it, whatever. Kava is sometimes not real safe with certain meds and conditions. Please always research herbals before using. They can do more harm than good. Don't always listen to the folks at the health food store, they prob never heard of IC and are not pharnacists. Please be careful. Jill, wife of Bob
Linda
Hi, I have been taking primadophilus reuteri for a few years now, it has rhamnosus, acidophilis, and reuteri which is supposed to be especially good for women as it has been shown to migrate to the vagina and populate the good flora. It has to be refrigerated.
I don't know anything about Kava but I agree to research it thoroughly first.
Cindi
Gelnique for frequency/urgency - works great
Macrobid after sex
Prilosec, continuous birth control pills
synthroid .088mg, mucinex-d, restasis
Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil
Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.
I take Kava Kava capsules on occasion for anxiety and I have read online others take it as more of a muscle relaxer. It does not have the effect of a prescription anxiety medication but I was trying to stay off of those anyway. I would suggest it if you're feeling bad and just trying to relax.
Comment