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  • Which probiotics?

    Which probiotics do you use? Brand? Amount?
    The ICA magazine has an article speaking highly of probiotics for IC patients, but didn't name any brands.

    I'm constantly getting sick - colds, flus, bronchitis, sinus infections. The doctor today recommended a ton of foods I can't eat to try to build my immunity, which was frustrating. She did mention probiotics, so I thought I'd ask you here what you all are using that is ok & doesn't cause flare.

    Thanks,
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest
    "


    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!

  • #2
    I use Natures Way Primadophilus Reuteri. It is a 5 billion count per capsule and has in it:

    Lactobacillus acidophilus, rhamnosus and reuteri (RC-14)
    Also has bfidobacterium

    The reuteri part has been shown in many studies to improve womens pelvic health by keeping the bad bacteria at bay.

    Another one, femdophilus has the same RC-14 in it too and should be another good one.

    I swear by the Natures Way brand, have not tried the femdophilus brand but have heard good things about it. After I started taking it, a few years ago, I haven't even had a cold! Which for me is so unusual as I used to get at least 3 a year. I can't for sure say thats why I haven't had one but its the only thing I consistently take.

    If I ever feel iffy in my girl parts I just take 2 a day instead of one and it goes right away.
    Cindi


    Gelnique for frequency/urgency - works great
    Macrobid after sex
    Prilosec, continuous birth control pills
    synthroid .088mg, mucinex-d, restasis

    Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

    Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

    IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
    AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
    AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
    Great treatment flowchart on page 19 of the pdf

    Comment


    • #3
      Fem-Flora

      I used to swear by Femdophilus. But it was so pricey i was overjoyed to hear about Fem-Flora. It is formulated for women's bladder and vaginal issues.

      IT is a fraction of the price of femdophilus and has the exact same formula. You have to buy it directly from Swanson but it's cheap and i usually buy other supplements at the same time.

      Good Luck
      Nyeema
      Last edited by ICNDonna; 03-21-2011, 02:17 AM.

      Comment


      • #4
        I've been taking Fem-dophilus (Jarrow) for a month now and no yeast infection or problems "down there" so I think it works. Other probiotic that I was happy with in the past was by Now Foods, forget what it's called but it has to be refrigerated and has 25 billion good bacteria.

        Another high quality brand is Nature's Way. I suggest you order it from iHerb or buy at a local health foods store where they keep them refrigerated.
        Dg. with IC 2/15/10

        Other conditions: depression, ADHD, lactose intolerance, celiac disease, chronic fatigue syndrome, IBS-C.

        Medications I'm on: Vyvanse 70mg, Xanax 1 mg as needed, Wellbutrin XL 150 mg, Vicodin 5/500 as needed for pain, Microgestin 1/20 continuously.

        Supplements I'm taking: Chondroitin Sulfate, N-acetyl-glucosamine, MSM 3gr/day, Pancreatin, B-5, Ester-C, and marshmallow root tea

        Comment


        • #5
          Femdophilus - You can get it on Amazon.
          Your Friend,
          Michelle

          Diagnosed: 10/16/09

          Elmiron, 100mg 2x per day
          Imipramine, 10 mg per day
          Diazepam 10 mg for sleep
          Zyrtec
          Zovia, birth control (ongoing-no periods)
          Probiotics
          Hydrocodone, 2 pills a day (at any time of day)

          Comment


          • #6
            Fem-Flora much Cheaper

            FYI Fem-Flora from Swanson is EXACT same probiotic formula as femdophulis at a quarter of the price.

            Comment


            • #7
              Do probiotics help with IC symptoms?

              Comment


              • #8
                The ICA magazine this month features probiotics mainly as a way to manage IBS, chronic fatigue & UTIs which many of us also have. For some IC patients, their bladders get better when they manage the constipation & diarrhea from the IBS and the irritation from bladder infections. There's no research currently showing probiotics reduce IC symptoms, but there is speculation that it may help with the concurrent conditions or over time with the IC itself. But it looks like it's all speculation now.

                I'm trying them both because the antibiotic I'm taking is notorious for causing yeast infection, but also because my urgent care doctor mentioned probiotics as a way to improve immunity in general - I'm now teaching at an elementary school and am surrounded by germs!! (Cute children too! But also many many germs.)

                I just tried Culturelle tonight (couldn't find the other brands & as I've got 10 days of antibiotics to take, I figured desperate times call for desperate measures.)
                So far, no flare from the Culturelle, but I sure wish I'd taken it when I started the antibiotics, because I feel like I sat on a red anthill.

                We'll see over the next few days if the Culturelle is ok for me, as sometimes things I can take once, may cause flares if I take them days in a row. Crossing fingers!
                Kadi

                -------------------------------------------------------------
                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                ------------------------------------------------------


                New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
                Source - Pinterest
                "


                Current treatments:
                -IC diet
                -Elavil 50mg at night
                -Continuous use birth control pills (4-5 periods/year)
                -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
                -Pyridium if needed,
                -Pain medicine at bedtime daily, as needed during the day several times per week
                -Antibiotic when doing an instillation to prevent UTI
                -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
                -Dye Free Benadryl 50 mg at bedtime
                -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
                -Managing stress= VERY important!
                -Fur therapy: Hugging the cat!

                Comment


                • #9
                  Quick Relief from Yeast

                  In addition to taking the probiotic orally you should also insert a few tablets vaginally especially at night. but if you're having uncomfortable symptoms right now just insert 2 or 3 and you will start to feel better quickly.

                  it would also be good to stop eating sugars (including carbs) it will help.

                  Comment


                  • #10
                    Probiotics and IC Symptoms

                    I do think probiotics help with IC symptoms. I have urethritis w/my IC and i have noticed that it causes a 'warmer' vaginal environment. This imbalance affects the natural flora and i start to feel the 'itch' if i am off the probiotic for 3-4 days. i am down to just 1 per day but in a flare i will take 2 in the morning and 2 at night.

                    Comment


                    • #11
                      Hi Kadi,
                      Just wondering how you ever did with the Culturelle? My child's doctor recommended a probiotic, but I'm scared of which one to try. I was looking at this probiotic in the store today and was a bit nervous to buy it. My daughter is very sensitive like you so everything you've mentioned as being okay for you has also been okay for her. Any feedback would be greatly appreciated.:-)

                      Thanks,
                      Jill
                      Last edited by jvr; 04-27-2011, 08:30 AM.
                      "Where there is hope there can be faith. Where there is faith, miracles can occur."

                      Comment


                      • #12
                        Hi Jill,
                        I don't know how I did with the Culturelle, honestly. I flared, but I was very sick, very stressed, and was taking a very powerful antibiotic. So, who knows what flared me?
                        I'm going to try it again this summer, when I have time off.
                        Kadi

                        -------------------------------------------------------------
                        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                        ------------------------------------------------------


                        New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
                        Source - Pinterest
                        "


                        Current treatments:
                        -IC diet
                        -Elavil 50mg at night
                        -Continuous use birth control pills (4-5 periods/year)
                        -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
                        -Pyridium if needed,
                        -Pain medicine at bedtime daily, as needed during the day several times per week
                        -Antibiotic when doing an instillation to prevent UTI
                        -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
                        -Dye Free Benadryl 50 mg at bedtime
                        -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
                        -Managing stress= VERY important!
                        -Fur therapy: Hugging the cat!

                        Comment


                        • #13
                          Thanks Kadi :-)

                          Jill
                          "Where there is hope there can be faith. Where there is faith, miracles can occur."

                          Comment


                          • #14
                            I just started using Custom Probiotics. So far I think they are working really well. I have IBS too and they are improving my symptoms. I use the Adult CP-1 formula. Check it out!
                            Last edited by ICNDonna; 05-27-2011, 01:43 AM. Reason: Removed sales site.
                            Symptoms began at age 19.
                            Diagnosed at age 27.

                            My symptoms include pressure, frequency, painful urgency, burning, and low back pain.

                            I also have IBS, Candida, and Adrenal Fatigue.

                            I am very diet sensitive. I've known about my IC for over two years now and I'm still trying to figure out what I can and cannot eat.

                            Having IC can be devastating. It has given me depression, hopelessness, and anxiety that can make every day tasks daunting. My supportive husband, prayer, and my faith in God keep me going each day

                            Comment

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