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Last edited by jemstar; 01-10-2023, 10:50 AM.Diagnosed with IC on 05/16/2011
Current treatments:
IC Diet
Elmiron - 100mg, 3 times daily
Spring Valley Aloe Vera capsules - 25mg, once daily
Avoiding stress
Heating pad as needed -
This product is available in the ICN Shop and lots of us use it.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
Do you think one can take both at the same time? Desertharvest plus Elmiron? ZiggyComment
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Many people do, but it's important that you check with your doctor before adding any new remedy/medication.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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Doe anyone know if you can order this online and have it shipped to Canada... I know that ou can get cytoprotek as long as you order through algonot, but if you try and order off the website it says US sales only... Id really like to try the aloe!
Jenn28 yrs old,
I have little to no problems now with my bladder, unless I am very stressed out, I forget to take Elmiron for a few days, or I eat or drink something that I know is a trigger...(i.e) like eating a tomato or drinking tea.... Took a long time to get here, but it IS possible to feel good again
I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC. 
What Works: Tylenol 3's, Pyridium, Elmiron (Going on 4 years now!) HOT showers!!!
Medications/ Vitamins: Elmiron-100mg 4x's daily Tylenol 3's/Advil (flaring) Vitamin D, WILD salmon oil 4x gels in the morning, Women's ONE a DAY multivitamin (the gummy kind doesn't make me flare) and PROBIOTICS!
Me in my graduation gown!
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I did aloe vera for about 6 weeks and did not get improvement. They say it can take anywhere between 1 week and 3 months...but both my uro and DOM (doctor of oriental med) said to go off of it if i haven't seen improvement yet.
I am doing cystoprotek and gelnique right now...in addition to acupuncture. Acupuncture had definitely diminished my pain but not frequency.
Just eliminated dairy too.
Tried elmiron...but got diarrhea and didn't stick with it since we don't know when it will be on the market again.
Try the aloe. My uro said he has seen success with it in many of his patients.
GinaTried but failed:
aloe vera (6 weeks)
cysto/hydro
cystoprotek
elmiron (quit because of diarrhea) after one week
restarted gradually and fine now since July 1/2011
gelnique: made me feel like a zombie
On now:
elmiron: 200 mg twice a day
levsin: every 4 hours
ativan: bedtime only
PT for pfd. Amazing for my muscles.Comment
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If you go to the Desert Harvest website they will ship you a free sample and information on the product. I'm going to try the sample first before I decide to order it or not.Comment
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