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  • Pelvic Floor Problems?? Could someone help me out with this?

    I don't know much about this at all. It's kind of a "new set of symptoms" for me.

    It started a few months ago when I noticed I was doing alot of "pushing" to urinate - and when I mentioned it here, everybody said that's a big "no no!" so I tried to watch it.

    Well, my pain management dr put me on two new meds a few weeks ago and I ended up with horrible retention on them. I almost went into the emergency room because I was having such a hard time urinating - but I held out (with the flu going around I didn't want to go in and be around more germs than my 5 kids bring in) but I had to strain alot for several days.

    Well, that ended up in extremely sore pelvic muscles and suddenly nothing quite wants to work right down there. I read through one of the books on IC that suggested bending forward and resting your stomach against your thighs when you urinate and that seems to help hopefully get me using the right muscles and not straining but my pelvic muscles are still really really sore - sometimes sharp pains. I think it's all from that retention but I'm scared. Can anyone give me any advice? It's scary when you "can't pee". Those things are supposed to work naturally. I know I've always had to go to the bathroom about 8 times as much as everyone else but "not being able to go" and the muscles working wrong really scares me.

    The urologist called in a muscle relaxer that I"m taking at night and that seems to be helping a little but can anyone else clue me in on some suggestions or what to do next with this to at least get it back to normal? Is this pelvic floor disfunction?

    Thanks so much. I really appreciate any help anyone can give.

    Kellie

  • #2
    Sounds like it could be PFD to me. Never ever strain. I take valium 2mg three times a day and that helps. I also have my husband massage my pelvic area when it acts up. When I used to go to the PT she showed my husband how to do it. Lye down with a pillow under your head and sorda spread your legs out like a frog and start at your hip bone and just massage diagonally downward on both sides. It also helps to sleep with a pillow between your legs, this keeps your pelvic area open, at least that's what I've been told. If you still retain you could always self cath, it's not good for all that urine to stay in your bladder it could cause a nasty UTI. Hope some of this has helped.

    Success

    Comment


    • #3
      If you haven't learned to cath yourself, I suggest you ask your uro about learning this skill --- it can be a life saver if you ever again come up with a retention problem.

      Another thing you can do to help get your bladder empty is to clasp your hands together and place them just above your pubic bone and push gently --- then lean over, still pushing gently. I was taught this after I had surgery and it worked very well.

      You may be just sore from all the straining. You might give it a few days to see if it calms down, but please --- don't ever strain.

      Warm healing thoughts,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Thank you both so much. I've even printed your responses so I can try them both. I've never had this problem and it's kind of scary - worrying about if you're even going to be ABLE to pee - and I'm just floored at how bad my pelvic muscles hurt. They're so sore.

        I've never learned to self-cath, though I've heard many people on here talk about it. I'm going to make an appointment today and make sure this is in my next appointment. Doesn't it hurt to do it? It's always hurt when the nurses have done it when I've given birth. It really sounds kind of hard too. Please tell me it's not!

        Comment


        • #5
          The first time you cath yourself it might hurt a little. But it's far easier for me if I do it myself than it is for somebody else to do it.

          Sending an encouraging hug,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Same for me. I use small catheters (size 10 french) Squat down over a mirror, use some lubrication on the tip and slowly insert the catheter. It really only has to go a couple inches, once you see urine you don't have to go any farther. It's not painful at all just a little funny feeling for me but it's better than having all that retention. Good Luck!

            Success

            Comment


            • #7
              Anything that will relax your muscles should help you somewhat. Try warm baths (2X daily) if possible and i also use heating pads. Heating pads are my magic elixer!!! The muscle relaxants should help you too. I use 2.5mg of klonopin and it seems to help me when my urine stream seems slow and my bladder achy! I NEVER strain....hurts more!!! Good luck. I hope you start feeling better.
              And surely I am with you always, to the very end of the age. Matthew 28:20

              Peace, Donna

              Comment


              • #8
                Oh and i forgot....constipation makes it worse!! Whatever you do...make sure you have regular bowel movements. Take sennokot if necessary or make sure your diet includes something to help you go daily. I use flaxseed (2tbs) in my cereal every morning. It helps a great deal. My doc said something about the bowels pressing on the bladder when they are impacted and that makes matters worse.
                And surely I am with you always, to the very end of the age. Matthew 28:20

                Peace, Donna

                Comment


                • #9
                  Thank you so much everyone. I've written down the names of some meds you mentioned to ask about and I'm trying the heating pads and the baths and putting my hands on my pelvic bones when I go to try to use the muscles right.

                  The constipation is a BIGGIE. Boy, you're not kidding. It happened the other day and there was just no way I could go if I had to push. My pelvic muscles hurt terribly and I'm getting sharp pains every now and then.

                  When you strain them, how long does it take for them to "get back to normal"? I think part of the problem is that I WAS pushing for quite awhile without realizing I was or paying attention to it. Just anything to get it out.

                  I am going to learn to self cath. Just don't want to have to go to the emergency room for something like that. ~sigh~

                  Comment


                  • #10
                    Constipation can be a real problem, especially when we have to take medications to relax the muscles. I take Colace stool softener, make sure I get plenty of fiber in my diet, and drink at least 6 - 8 cups of water a day. If you are having a continuing constipation problem, I do think you should discuss it with your doctor. I keep Fleets enemas on hand just in case, but don't need them often.

                    grouphug
                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      Donna,

                      I can't tell you how many times you've helped me, calmed me down, made me feel like I'm not alone. You are a true angel on this board. Should you ever feel like you're not appreciated, please know you couldn't be more so.

                      One last question about the pelvic floor disfunction and muscles........I'm getting ready to see a new gynocologist (because I felt my old one just wasn't answering my questions or might not have known enough about it). Is it the gynocologist who would do the exam to check for it and see how the muscles are doing or is it the urologist? I'm confused on who handles that part. Also......if there's a chance my bladder has dropped (after 5 kids, re: the leaking), would that be the gynocologist or the urologist?

                      And then, a huge hug for you.....and for everyone else who gave me some helpful tips and reassurance. I"ve never been so scared to death, with this first episode of retention. You give me the strength to handle it. And I appreciate that so much.

                      Kellie

                      Comment


                      • #12
                        Either your gyn or uro can evaluate your pelvic floor, and either can repair a bladder that has "fallen." I had surgery in November to put my pelvic organs back where they belong --- I chose to have my urologist do my surgery. I made the choice based on the fact that he has cared for me for all of my 29 years with IC, compared to a very few gyn visits. My old gyn retired two years ago and I had to choose a new one.

                        And I thank you for your post. It gave me a warm feeling that will last all day.

                        Gentle hugs,
                        Donna
                        Stay safe


                        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                        Have you checked the ICN Shop?
                        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                        Patient Help: http://www.ic-network.com/patientlinks.html

                        Sub-types https://www.ic-network.com/five-pote...markably-well/

                        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                        [3MG]

                        Anyone who says something is foolproof hasn't met a determined fool

                        Comment


                        • #13
                          I developed a similar type of problem with slowness in urinating which developed over the past 6 months. I met with my urologist last week and told I thought I had PFD. She agreed and prescribed physical therapy for me and referred me to a terrific physical therapist who is skilled in treating IC patients with PFD. I've had one session and already feel better. She gave me a number of exercises to do daily and they will help me over time. You may want to see your urologist to explore the possibility that you have PFD. It develops with chronic pain which I had this past year. It is diminishing with my DMSO treatments.
                          Good luck!
                          Arizonian

                          Comment


                          • #14
                            Kelley,
                            I have just gone through the same thing with the straining. About three months ago I was straining every time I went to the restroom. I just couldnt get any urine to come out, just dribbles. I would be up at night, almost asleep on the commode in terrible pain and straining to go to the bathroom. I would go back to bed and right back up again, doing the same thing. I went to my urologist, did the routine "pee in the cup" and had an ultrasound done which showed that I still had 700 cc's of residual (urine left in the bladder)urine. He had me go back and do another urine, emphasizing "not to strain" and I had 500 cc's of residual. He discontinued my Ditropan for now and had me watch a film on self catherization and then had the nurse show me how. We started out on the commode and ended up on the exam table with a mirror. He told me to do the self catherization every four hours for three months and keep records of my output and on my own I have kept records of my residual from time to time. I started out on the bathroom floor with an emesisis (sp?)basin (to record the cc's), a warm soapy wash cloth, catheter, KY Jelly and a mirror. It takes practice, at first it took me forever, now I have moved up to doing it on the commode (which is much better after you learn where all of the "parts" are). I have started using baby wipes instead of the wash cloth which is much more convenient for me, you can use it to wipe the area. I am using Xylocaine Gel (you have to get an RX for this from your urologist and I recommend it highly) to put on the end of the catheter and when I insert it I push it in the urethra slightly and let the gel do its job and then insert it further until I get the stream going. The most pain I get is when the stream stops, you will get a little tugging feeling and then when you take it out it hurts some. With the Xylocaine it helps this alot. I was having terrible, terrible lower back pain. This was from the bladder being so full that it was lying on my spine and this has improved a great deal. I also dont have the distended abdomen because I was retaining so much urine before. I was still having some problems at night and had to get up one night to go to the bathroom and got back into the straining thing and finally did a catheter and got 800 cc's of residual so I called my doctor and we cut my Imipramine doseage back and that hasnt happened anymore. It is more of an inconvenience for me than anything else but is well worth the comfort that I get from it. I have a follow up on the 12th with my urologist and will see at that time if I have to continue. Even if he says that I dont, I am definately going to keep catheters, etc. around to do a self catherization if I need to because it does give you relief if you are retaining that much urine and it sounds like you are in the same boat I am in. The one thing is that I have had increased bladder spasms after removing the catheter. Everybody is different so who knows. My residual urine outputs have come down so I am hoping that this is all medicine related and not damage to the bladder which is suspected by my urologist. Although the residuals are down, I still have alot of high outputs most of the time. If you have any questions just give me a yell and feel free to email me. It is scary at first and a little difficult to do the self catherization but you will get the hang of it quickly and will be a pro at it and in my case it was well worth it to get rid of the back pain. My best to you. Susan PS. I am sorry for the long post, I have a tendency to get a little "wordy."

                            Comment


                            • #15
                              Thanks, you have all helped me by reading your posts. I am having a real tough time at the moment not being able to empty my bladder. The last two night I have been up every 20 minutes or so to try an relieve the pain by peeing. I think I will give my dr a call.

                              Thankyou
                              Peta

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