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When you have an IC flair does the PFD pain radiate up your abdomen?

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  • When you have an IC flair does the PFD pain radiate up your abdomen?

    Hi all!
    I am in a flair because 1. I am under a lot of stress and 2. i was feeling really good and decided to have a small glass of wine . Anyway, I am in so much pain! The pain starts over the bladdera areas and raidiates into my lower back and up my stomach muscles in the front. It makes it hard to stand straight...has anyone else felt this?

    Thanks
    Jo
    :woohoo: Yogajo

  • #2
    ((((((((((((((jo)))))))))))) I think the pain raidiates every where. sorry you are feeling bad.. I don't think my flair will ever end... grab your heating pad, pain pills, and laydown if you can... a hot bath might help..
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment


    • #3
      Jo,
      Hope that your flare is getting better. I know what you mean about the radiating pain. Before I was diagnosed with IC, I often felt like I had severe menstrual cramps...which I knew was impossible since I had a hysterectomy 9 years ago!!

      Rest up, drink plenty of fluids and hope you feel better soon.

      Claudia

      ~Claudia

      "A heart is not judged by how much you love; but by how much you are loved by others."
      ~ The Wizard of Oz

      "If I ever go looking for my heart's desire again, I won't look any further than my own
      back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


      Comment


      • #4
        I can feel my PFD pain in my lower back, butt cheeks and thighs, so I'm sure you could feel it in your abdomen as well.
        Diagnosed with IC: October 2006

        Related diagnoses: PFD, chronic back pain, vulvodynia, IBS, anxiety.

        Treatment:
        Lots of water
        Fiber, when I can remember...
        Elmiron (I'm down to 200mg per day)
        Kegels (10 sets of 10 second holds per day)
        Yoga and Pilates, each weekly
        Exercise 3x weekly

        Have tried:
        PT for PFD and chronic back pain (VERY helpful)
        IC diet (I'm not diet-sensitive while on Elmiron)

        Comment


        • #5
          yes, but only once in a while.
          I get a stabbing pain going straight up (or just off to the left side). If I touch it and press down (ouch!) while this is going on I can physically feel a tight line of hard muscle. Curling up in a ball helps, and lying lying or standing straight is the worst. It only lasts a minute or two for me. Happens about 2 or 3 times a month for me it seems.

          I also get the stabbing pains in my groin, and vagina (ouch, ouch), not to mention lower back pain, leg pain, and vaginal pain (like whacked with a baseball bat, and that one is pretty much constant )

          Yea I've got it all.

          ~*miz_sunshine87*~
          19 y/o student, salesperson, fashionista, future high school teacher. <3 to sing and travel. Dream job= cruise ship entertainer
          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          My IC story- diagnosed at age 15 (Feb 2004), after approx. 6 mos of symptoms. Went into near complete remission following hydrodistention and introduction of meds. Feeling so good that I started skipping meds (bad idea). 1 week flare (May 2006). New flare November 2006-present.
          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          My triggers- I'm not sure about food triggers, just started IC diet but so far doesn't seem to be doing much. Stress is a big trigger for me though. Both flares this year came during stressful times. I think that stress reduction will help me immensely (last flare went AWAY during vacation in Mexico when I was drinking margaritas like they were water;P).
          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          Start of IC symptoms- Summer 2003 (after a UTI)
          Dx- February 2004, after hydrodistension (ouch!)

          Current treatments- Amytriptyline (25mg), Hydroxizine (25mg), MSM w/Glucosamine (1000mg,3x/day), quercetin (500mg, 2x/day), trying to stick to IC diet, prelief as needed.

          Previous treatments- Amytriptyline (10mg), Hydroxizine (10mg), Alesse (HBC)

          Comment


          • #6
            Dear Jo, Sorry about your pain, I to know what its like to have pain radiating around your abdamon. I get it on the right side from my vagina up towards my ovarie area. Sometimes my inner thigh hurts then a little in my foot. Whenever I go to the gyno when he does a pelvic exam it hurts. I know my diet has a lot to do with it. It just seems like everything I want to eat I cant eat. (I do anyway Sometimes). Takinf Elmiron for about four months Elavil, cymbalta, etc. etc. They peeing constitanly during a flare is horrible! My Dr. says it could take up to a year for the Elmiron to really start to work well since only 3% of the medicine enters your bladder each time you take it. Feel better and you are NOT alone!!! Going to the book store today with my 4 year old and I pray I could sit down for a awhile with no pain and hopefully I wont have to use the bathroom every second! Take care Marysxx

            Comment


            • #7
              Yes, that is exactly how mine is. Abdominal, crampy like I'm getting my period only worse. What I wonder though, is it IC pain OR PFD pain since I have no frequency/urgency????

              Does anyone know? I have PFD but never knew it was something that could create pain, I thought it was lack of muscle tone in that area. Can someone clarify this for me?

              Comment


              • #8
                hi there check out this pfd site http://www.ptosi.com/newsite/pelvic_floor_disorders.htm
                'The will of God will never take you where the Grace of God will not protect you.'

                Comment


                • #9
                  Originally posted by soccermom32 View Post
                  Yes, that is exactly how mine is. Abdominal, crampy like I'm getting my period only worse. What I wonder though, is it IC pain OR PFD pain since I have no frequency/urgency????

                  Does anyone know? I have PFD but never knew it was something that could create pain, I thought it was lack of muscle tone in that area. Can someone clarify this for me?
                  Hi what is pfd? I too feel like I have period cramps sometimes. But I think it is my bladder. God I hope its nothing else. My bladder area always hurts. Marysxx

                  Comment


                  • #10
                    Mary.. This is PFD

                    What is PFD

                    --------------------------------------------------------------------------------

                    What is pelvic floor dysfunction (PFD)? This is non-neurogenic, uncoordinated behavior of the pelvic floor musculature. This is not like Parkinson’s or multiple sclerosis. This is a person who has no obvious neurological disease and the muscle function is uncoordinated. normally the bladder sits in a funnel of muscle. When one voids, the muscle of the bladder contracts, thereby forcing out urine. At the same time, the muscles of the pelvic floor, the levator muscles, and the muscles of the GU diaphragm have to relax. That is the normal process of voiding; it is a complex neurological mechanism. When this happens, there is a good stream of urine. In a patient with PFD, the bladder contracts and the muscles open up, but they are in spasm. They are not working properly. They open and urine does come out, but this can lead to disruptive symptoms.

                    The symptoms of PFD are similar to IC. A patient with IC typically has pelvic pain, the pain often worsens with bladder filling. They usually have day and nighttime urination, and their symptoms are affected by foods, in many instances. The patients who have PFD have similar complaints with a subtle difference (keep in mind that PFD can coexist with IC): IC should not normally result in a poor urinary flow rate. One exception is that if you are urinating tiny volumes each time, you will never be able to generate a good force of the urine stream. If you still have a poor urinary flow rate, that is suggestive of something else going on. In a male, you have to consider the presence of the prostate gland, which can also be causing problems. The first focus of attention in a male is typically on the prostate as a cause of blockage.

                    Constipation can also exist in a patient with PFD. Constipation occurs for the same reasons a patient will have problems with urination; the patient tries to push out the bowel movement, but the muscles around the anus and the pelvic floor muscles are contracting at the same time. The stool sits in the rectal vault.

                    There are two different types of complaints regarding intercourse: either there is terrible pain during intercourse because the penis is coming directly into the rigid muscles, or there is discomfort the day later. This is commonly seen in both IC and PFD patients.

                    Many patients have the sense of incomplete bladder emptying. They feel like they have to void again as soon as they are finished. Some patients cannot empty their bladder. Usually patients who have just PFD and no significant IC do not have nighttime frequency. They just have frequency during the day. There is also a typical history of straining with urination. It is interesting to see the number of patients who say they don’t strain, yet during testing that is performed, they are straining quite a bit.
                    __________________
                    Hugs
                    Ronda

                    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                    Link to Patient Handbook:
                    http://www.ic-network.com/handbook/

                    Diet Reference Sheet:
                    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                    Meds I have Tried:
                    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                    Lexapro< Bad reaction to this med!
                    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                    Dx With IC in Nov 2006 with Hydro/Cysto
                    Hydro/Cysto Caused Bladder to Rupture.

                    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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