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  • #1

    Leaking when coughing, sneezing

    Hi,
    I just learned I have IC on Thursday though I've had pain and problems for years. I'm also a mom of 3 so I am not sure the "leaking problem" I have is from IC or well the fact that I have 3 children. lol

    For a few years when I cough or sneeze I will well leak a little bit. You know some pee will come out. I know most women deal with that. But is it worse when you have IC?

    I'm sick with the flu now and coughing tons. I wear pads because well I've had a lot more accidents than usual. I'm only 31 and this is pretty well embrassing you know.

    So my main question is this normal just because I've had 3 children or does having IC make you more likely to leak when do cough, sneeze or laugh. I was in Kmart a few days ago and I have to say when I walked past the bladder control section where they have all the pads or adult diapers as some call them that they looked nice if you know what I mean.
    Ashley - wife of Michael for about 15yrs, mom of 3, stay at home mom and homeschooling mom

    Learned I had IC through a potassium sensitivity test on - 3/1/07

    My meds -

    Elmiron 2 times a day
    Marshmallow Root pills once a day
    Prosed
    Zyrtec - once a day
    Tags: None
  • #2
    My incontinence got worse after I had the hydro procedure. It just made it terrible. I've had problems ever since I had a hysterectomy three years ago, but this is the worst it's ever been. It's far beyond leaking now.

    I became totally incontinent for awhile after the instillation yesterday. I was just sitting in my car and without any prior warning (no pain or anything) my bladder let loose with the flood gates. Thank God I was wearing protection! :woohoo:
    http://www.TheCraftyEwe.etsy.com

    Comment

    • #3
      I believe this is a different problem. You can have what you call a band aid surgery. It is a surgery that will fix the problem. I would talk to your doctor about this situation. They may have a different name for it now. Also you might want to ask if other IC'er had this done on them, and if it cause your bladder to get worse with IC because of it.

      Hugs, Trishann

      Comment

      • #4
        HI I had the bladder sling surgery......to lift up the bladder to help with incontinence......but it didn't help that much and afterwards I had major bladder spams. The surgeon said that when ever a bladder has to be physically moved.....for whatever surgery.....it can cause spasms.....so surgeries that are suppose to fix the bladder issue can actually make it worse. My IC got much worse after that. Roxie

        Double Spinal Cord Stimulator surgery 8/09
        Unsuccessful MiniArc sling surgery 12/07
        Dx'd Hypothyroid
        Dx'd Chronic Axonal Neuropathy & Myopathy
        June 2007
        Dx'd IC May 2006 (after suffering for 25+ yrs!)
        First Cysto 1979
        First Hydro 1981 (Many treatments since then!)
        Collagin"Durasphere" injections for urethra
        Gall bladder surgery Aug. 2004
        Gastric Bypass Dec. 2004
        Dx'd: Barrett's Esphogus July 2004
        Dx'd: Vaginal Atrophy 2005
        Bladder surgery 2000
        Dx'd: IBS 2000
        Hysterectomy (fibroids) 1999
        Laminectomy 1989
        Dx'd: Degerative Disk Disorder 1989

        For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
        I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

        Comment

        • #5
          Sounds like stress urinary incontinence. This is generally treated by placing a sling under the urethra to help keep it closed when under stress (coughing, sneezing, lifting, etc).
          I had the Monarc Hammock done 3 years ago due to mild SUI, and underwent a round of PT to help strengthen the pelvic floor, which in turn helped me a bit in the IC dept.

          Regardless of what you think might be causing the leakage, you should bring this issue to your DR's attention for an accurate diagnosis and treatment plan.

          take care, dear
          D
          (\__/)
          (o.O )
          (> < ) This is Bunny. He's on his way to world domination.

          Comment

          • #6
            I had my stress incontinence problem corrected with a fairly simple procedure.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.             [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment

            • #7
              Originally posted by Roxie2007
              HI I had the bladder sling surgery......to lift up the bladder to help with incontinence......but it didn't help that much and afterwards I had major bladder spams. The surgeon said that when ever a bladder has to be physically moved.....for whatever surgery.....it can cause spasms.....so surgeries that are suppose to fix the bladder issue can actually make it worse. My IC got much worse after that. Roxie
              Thank you so much for sharing that! I was going to get the surgery and now I may reconsider. It's good to have another perspective.
              http://www.TheCraftyEwe.etsy.com

              Comment

              • #8
                I have had two bladder surgeries in addition to my hydrodistentions. One was a Raz procedure for stress incontinence, the other a sling. Both were accomplished successfully with no negative results.

                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

                Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                 [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment

                • #9
                  Donna,

                  May I ask you a personally question. Did you have a shrunk and stiff bladder at the time you had these surgery for leaking while coughing, sneezing.
                  I just wonder because I hesitate having it done because of my condition of the bladder. I did not know there would be a possibility to get this under condition with a damage bladder. My sister-in-law had this surgery done too, and she is doing great but she don't have IC.

                  Thank you, Donna

                  Comment

                  • #10
                    I've had IC for over thirty years so both surgeries were done with an IC bladder.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                     [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment

                    • #11
                      I think it just depends on the severity of your condition. Not to diminish anyone's suffering for sure. I know I've had IC probably since my teens or early 20's without it being diagnosed, so it is significantly worse than it needs to be most likely. It scares me to death to have anything done that could worsen it. I've already had two procedures that normally help IC patients, and they backfired on me. So I am wary understandably.
                      http://www.TheCraftyEwe.etsy.com

                      Comment

                      • #12
                        Moonheart, that is also what I am wonder about, if it depends on the severity of your condition. I'm just like you, the things that normally help IC patient literally it was torture for me.

                        Yes when it comes to having anything done to my bladder, panic immediately sets in. When they did a cysto on me in the office, I literally could not talk trying to hold back the tears. Thank God my husband was there to listen to what the doctor said. I went to the nearest bathroom and didin't think I was going to make it out of there.

                        Fear is so great in me of not knowing how this is all going to play out and I keep picking myself back up. I try to be brave and strong but there are days I'm so overwhelm with it all.

                        Well, I didn't mean to say all of this but I guess sometimes I need to get it out so hopefully I can get back up again.

                        Thanks Moonheart for being honest and kind,
                        Hugs, Trishann

                        Comment

                        • #13
                          Caution

                          I have known two women who had sling procedures and the other one had the Burch procedure and both were not successful to stop the leaking. One of the ladies had both of them about five years apart.
                          If it were me I would try to get an evaluation on just what is causing the leaking because if it is an unstable urethra some of the procedures will not work for that, if it is a simple cystocele then a sling may help if you arent allergic to the material they use?
                          This aint simple ladies and I would advise getting an evaluation from one of the best urosurgeons I could find and not just a general uro. The stats I have seen on the long term success of these procedures have not been impressive. If you dont expect a cure, but would be OK with a drip and not a flood you probably would be happier with the outcomes. Ask the Doc about results 5 and 10 years down the road, not just right after the surgery?
                          Sammmi

                          Sammi

                          Meds: Melatonin 3mg @ bedtime if needed. Estrogen 1.5 mg troche and 0.1 mg Estrace cream.
                          Diagnosis: IC, PFD (both in remission)

                          Comment

                          • #14
                            Originally posted by Trishann
                            Moonheart, that is also what I am wonder about, if it depends on the severity of your condition. I'm just like you, the things that normally help IC patient literally it was torture for me.

                            Yes when it comes to having anything done to my bladder, panic immediately sets in. When they did a cysto on me in the office, I literally could not talk trying to hold back the tears. Thank God my husband was there to listen to what the doctor said. I went to the nearest bathroom and didin't think I was going to make it out of there.

                            Fear is so great in me of not knowing how this is all going to play out and I keep picking myself back up. I try to be brave and strong but there are days I'm so overwhelm with it all.

                            Well, I didn't mean to say all of this but I guess sometimes I need to get it out so hopefully I can get back up again.

                            Thanks Moonheart for being honest and kind,
                            Hugs, Trishann

                            Oh you are so welcome! I am happy to be here to listen anytime okay? Everyone has been so wonderful and helpful to me, I hope I can give even a fraction back.
                            Hugs!
                            Moonheart
                            http://www.TheCraftyEwe.etsy.com

                            Comment

                            • #15
                              Originally posted by sami4
                              I have known two women who had sling procedures and the other one had the Burch procedure and both were not successful to stop the leaking. One of the ladies had both of them about five years apart.
                              If it were me I would try to get an evaluation on just what is causing the leaking because if it is an unstable urethra some of the procedures will not work for that, if it is a simple cystocele then a sling may help if you arent allergic to the material they use?
                              This aint simple ladies and I would advise getting an evaluation from one of the best urosurgeons I could find and not just a general uro. The stats I have seen on the long term success of these procedures have not been impressive. If you dont expect a cure, but would be OK with a drip and not a flood you probably would be happier with the outcomes. Ask the Doc about results 5 and 10 years down the road, not just right after the surgery?
                              Sammmi
                              Sammi I agree 100%. My mom had the procedure a few years ago and it didn't help her at all and now she's having even more problems.

                              I have cystocele as well as everything else but I am going to be totally cautious since I am dealing with allergies and all.
                              http://www.TheCraftyEwe.etsy.com

                              Comment

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