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How to find good PFD therapist?

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  • How to find good PFD therapist?

    Hi everyone. I had posted on this board back when I was first daignosed with IC asking about pelvic floor therapy specifically. I didn't end up going b/c of many circumstances. Since then I have switched Doctor's (twice actually!) and my new Doc, who has been great so far and is an IC specialist does think that I have PFD (something other doctors brought up but seemed to know little about) He wants me to avoid traditional Pelvic floor therapies that would involve kegals and feedback b/c my complaint are terrible pain, not much incontinence, and he believes, like many of you had told me that the kegals will make my pain much worse. The problem is that the therapist the recomended to me is almost 2 hours away and right now I cannot drive that far, too much pain and frequency. I would like to try someone closer but do not know where to start. I looked online through the American physical therapist's association. I coudl only find 2 therapists near me that dealt in women's health issues, one didn't seem to know much about PFD, the other is not taking new patients. So I really don't know what to do next. Would it be appropriate to start calling offices and ask about what treatments they provide or would I have to conslut with another doctor? I do have a prescription for up to 12 visist and my insurance company will cover these.
    Thanks for the help!
    Rachel
    DX's:
    IC; PFD; possible Fibromyalgia; IBS;

    Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

    I've Tried:
    three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
    Currently using:
    Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
    Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
    I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!


  • #2
    You might check with the ICA. They keep a database of Physical Therapists experienced in working with PFD. They can send you the list of PTs in your area.
    Annie

    IC
    Ulcerative Colitis and IBS
    Pelvic Floor Dysfunction

    _________________________________________________________
    Retirement is great! Work is highly overrated!!!
    ---My dear hubby

    ________________________________________________________
    Never go to a doctor whose office plants are dead.
    ---Unknown

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    • #3
      Thanks Annie! I sent the request today, Hopefully I will hear back soon.
      Rachel
      DX's:
      IC; PFD; possible Fibromyalgia; IBS;

      Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

      I've Tried:
      three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
      Currently using:
      Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
      Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
      I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

      Comment

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