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  • PT excercises hurting already

    I havent even started PT and the excercises she gave me are hurting my groin and bladder.

    Im just afraid PT is going to make everything worse.

    She found my right side of the pelvis is out of alignment and my muscles are all tight, which some of them have been as long as I can remember.

    She said it may not cure all of my pain.

    I just dont want to backslide and cannot afford to right now.

    She was also talking about internal massage and my NP said that wouldnt happen until a lot further down the road :-(


    Lyme disease diagnosed 11/05
    vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
    IC diagnosed with hydro/cysto- may 17, 2006

    Over growth of lactobicilli found 8/07 treating with doxy.

    Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

    8/22/07- was able to get my first speculum exam, with pap

    Strep D found in bladder with United medical labs May 2006
    2 strains of strep in stool culture 9/06
    high Strep ASO titre found 10/06

    NEW MED

    Capsasin cream-once a day for 20min,
    BUt wont lie it does burn

    About to start valium supositories for PFD

    Trigger point injections- oct 07

    Current meds:
    Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
    Zanaflex 2mg
    IC and low oxalate diet, no sugar diet
    Xanax for appointments to help relax me since they cause so much pain

    Started PT 3/07, PT has really helped me in ways I never knew that it would

    Meds ive tried
    Lyrica
    Klonopin
    Singulair
    Claritin
    Pyridium
    Soma- can barely tolerate half a pill
    Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
    Estradiol cream
    Urelle- caused worse bladder spasm and retention

    Various antibiotics for lyme which caused yeast and made the IC and VV worse

    waiting for the next chronic illness to pop up


    "Did you know?
    Every 15 seconds,
    a person is
    diagnosed with
    interstitial cystitis."
    Source: J. Dimitrakov, MD

  • #2
    What kind of exercises did your PT give you? I am a PT and because your muscles are tight the exercises might here because you are stretching tight muscles or using muscles that aren't being used to moving in that direction. Just like someone who exercises for the first time they get sore. If you have any other questions feel free to ask
    Nancy

    Comment


    • #3
      A great source of information on physical therapy, PFD, exercises, trigger and tender points, etc. is www.roadtoslainte.blogspot.com.

      The blogspot is written by a fabulous physical therapist; she has had great success in alleviating pain after physical therapy.

      I suggest that you consult with your healthcare provider if you believe that the information above may be helpful; your healthcare provider will determine the appropriate treatment regimen for you.

      Only your healthcare provider can determine if the above suggestions are appropriate treatment options for you; these are just some suggestions that you can discuss with him/her.

      The contents in this post are provided for informational purposes only. The contents are not intended in any way to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your medical condition.

      Best wishes, ICB

      Comment


      • #4
        thanks for the info , i will take a look at it,

        I had my first session yesterday and im in so much pain in my lower right back, my urine stream is barely a trickle. I doubt i will do much but lay in bed all day. I dont see how this is making me better, i almost took a percocet and i rarely have to take them.

        my zanaflex did nothing, it feels like all my muscles are tight and i cant pee, just like it was when i first got this.

        Im so upset and scared this made me worse and im going to be like this forever.


        Lyme disease diagnosed 11/05
        vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
        IC diagnosed with hydro/cysto- may 17, 2006

        Over growth of lactobicilli found 8/07 treating with doxy.

        Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

        8/22/07- was able to get my first speculum exam, with pap

        Strep D found in bladder with United medical labs May 2006
        2 strains of strep in stool culture 9/06
        high Strep ASO titre found 10/06

        NEW MED

        Capsasin cream-once a day for 20min,
        BUt wont lie it does burn

        About to start valium supositories for PFD

        Trigger point injections- oct 07

        Current meds:
        Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
        Zanaflex 2mg
        IC and low oxalate diet, no sugar diet
        Xanax for appointments to help relax me since they cause so much pain

        Started PT 3/07, PT has really helped me in ways I never knew that it would

        Meds ive tried
        Lyrica
        Klonopin
        Singulair
        Claritin
        Pyridium
        Soma- can barely tolerate half a pill
        Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
        Estradiol cream
        Urelle- caused worse bladder spasm and retention

        Various antibiotics for lyme which caused yeast and made the IC and VV worse

        waiting for the next chronic illness to pop up


        "Did you know?
        Every 15 seconds,
        a person is
        diagnosed with
        interstitial cystitis."
        Source: J. Dimitrakov, MD

        Comment


        • #5
          I hope your feeling better. I have my first actual PT appt. Fri. We did evaluation last week. Hopefully it won't go to bad. I have a big event that I need to be at at church that night. On top of all of this I have been sick with what started out as head cold to a full blown cold with the asthma and all. I also Im in a IC flare who knows what from. Get some rest and hope your feeling better.
          Interstitial Cystitis Stomach problems
          diastolic dysfunction
          vascular insufficency of left leg
          pelvid floor disorder
          hypothroidisim
          asthma
          bread cancer - 5yrsl. remission
          swollowing difficulty
          fatigue
          lots of doctors
          lots of med.














          Keep your eyes on the Lord and he will direct your paths.

          Comment


          • #6
            I hope you feel better soon. I went to my therapy for IC/PFD for 6 months. It really helped me to understand how pelvic muscles affecting my IC symptoms. My PT was really knowledeable/understanding about IC. I know right now you are very skeptical about how therapy will help you, right?? I was like you. During my therapy session, I felt like my symptoms were getting worse. However, after going through that, I felt much better. Sure some days are better, and other days...not so much. You have to go through some pain before it gets better. Be patient with therapy. You cannot see the results instantly, but you'll see it gradually.
            Aya

            IC Diagnosed in September, 2005

            My conditions are : IC, PFD, Allergies, and Constipation

            "It's not easy being grateful all the time. But it's when you feel least thankful that you are most in need of what gratitude can give you."


            — Oprah Winfrey

            Comment


            • #7
              I had physical therapy for the first time last friday for my pelvic floor dysfuntion and psoas muscle spasm. My IC was pretty bad all week and I was in pain. I did my stretches though and my 5 quick kegels everytime before I pee'd. I have to go tomorrow and quite frankly dread it. I know she knows what she is doing though so I have to trust in the long run I will be better for going through it. Hang it there! You have to stick to plan in order for everything to work.

              Comment


              • #8
                Aterwards we will have to get together and compare notes or maybe just groin together. Hope you PT goes well for you tomorrow.
                Interstitial Cystitis Stomach problems
                diastolic dysfunction
                vascular insufficency of left leg
                pelvid floor disorder
                hypothroidisim
                asthma
                bread cancer - 5yrsl. remission
                swollowing difficulty
                fatigue
                lots of doctors
                lots of med.














                Keep your eyes on the Lord and he will direct your paths.

                Comment


                • #9
                  I went yesterday, and she said because of my Lyme disease she isnt sure how my body is going to react. I asked her if my back problem was normal and she said NO mine is very tight....and like she said she cant tell how my body will react.

                  I couldnt even do 3 steps on the treadmill walking backwards, hurt my lower right back muscle too much :-( I did my excercises afterwards and they hurt too. I took a xanax and was able to sleep better then after the first PT.

                  its the fact it affects my urination that concerns me :-(

                  Today, more urination probelms and tightness in my lower back. Its frustrating because i wasnt in pain prior to starting PT, and things were calming down....now its all flared up.

                  Plus i have my uro appt next wed and if im too sore for internal exam she will yell at me again :-(

                  Big Red- hope your PT went ok for you today.


                  Lyme disease diagnosed 11/05
                  vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
                  IC diagnosed with hydro/cysto- may 17, 2006

                  Over growth of lactobicilli found 8/07 treating with doxy.

                  Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

                  8/22/07- was able to get my first speculum exam, with pap

                  Strep D found in bladder with United medical labs May 2006
                  2 strains of strep in stool culture 9/06
                  high Strep ASO titre found 10/06

                  NEW MED

                  Capsasin cream-once a day for 20min,
                  BUt wont lie it does burn

                  About to start valium supositories for PFD

                  Trigger point injections- oct 07

                  Current meds:
                  Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
                  Zanaflex 2mg
                  IC and low oxalate diet, no sugar diet
                  Xanax for appointments to help relax me since they cause so much pain

                  Started PT 3/07, PT has really helped me in ways I never knew that it would

                  Meds ive tried
                  Lyrica
                  Klonopin
                  Singulair
                  Claritin
                  Pyridium
                  Soma- can barely tolerate half a pill
                  Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
                  Estradiol cream
                  Urelle- caused worse bladder spasm and retention

                  Various antibiotics for lyme which caused yeast and made the IC and VV worse

                  waiting for the next chronic illness to pop up


                  "Did you know?
                  Every 15 seconds,
                  a person is
                  diagnosed with
                  interstitial cystitis."
                  Source: J. Dimitrakov, MD

                  Comment


                  • #10
                    mich2604.

                    I just got home from my PT appointment. I am sore but I think I will make it O.K. My PT is very careful about not pushing me to far because she doesn't want my IC to flare up more than it is. She did Diathermy which I thought with the Inter-stim implant I was not suppose to have so I am going to reserch that further. Got sent home with exercised to do every day and some more than once a day along with the pool aerobics. Will see how this all goes together. She also did Vaginal message I think that hurt worse than anything. Will I am going to relax this afternoon as I have a church function to be at and work at tonight at 5:00 until about 9:00. I can't take Valum becase I have to drive to the church. I can't take Motrin because of the dilation surgery just incase he gets an earlier opening. So I guess I will try a couple extra strength Tylenol.

                    Hope you have a good day. My next appoint is Thurs of next week. When is yours.

                    Hope you feel better.
                    Interstitial Cystitis Stomach problems
                    diastolic dysfunction
                    vascular insufficency of left leg
                    pelvid floor disorder
                    hypothroidisim
                    asthma
                    bread cancer - 5yrsl. remission
                    swollowing difficulty
                    fatigue
                    lots of doctors
                    lots of med.














                    Keep your eyes on the Lord and he will direct your paths.

                    Comment


                    • #11
                      Hi Big Red! Yes, take some Tylenol, that will probably help you. Did you know Ibuprofen is acidic and bad for your bladder? That's what my urogyn told me.

                      I had PT this morning. We did tons of core exercises and PF exercises. My laundry list of things to do at home are getting more and more extensive. I have stretching to do twice a day and now strengthing once a day. I still have to do 5 "quick flick kegals" everytime before I pee.

                      I feel GREAT today. I don't know why. Its 2:30 and I haven't taken a single pain reliever which is like a miracle. I even had strawberry jam twice and steak with Worchestire Sauce on it last night. (Didn't know the cook had put Worc. on it b/c I was told by another source there was nothing on it...when I found out I nearly had a heartattack b/c I've been SO careful!)

                      Anyway, I'm enjoying my pain free day cause I don't know what later or tomorrow brings!!!

                      My next appt. for PT is next Thursday the 22nd. Oh, we are doing any internal work until my external is stronger she said. Can't wait for the inside stuff YUK.

                      Comment


                      • #12
                        I just learned from medtronics that we should not have done the Diathermy. I found it on there web site so now I have proof. Med-tronics said that if I had anything that seemed abnormal to give them a call. We could fry my inside from it or at least the leads. Hope we didn't do any harm.
                        Interstitial Cystitis Stomach problems
                        diastolic dysfunction
                        vascular insufficency of left leg
                        pelvid floor disorder
                        hypothroidisim
                        asthma
                        bread cancer - 5yrsl. remission
                        swollowing difficulty
                        fatigue
                        lots of doctors
                        lots of med.














                        Keep your eyes on the Lord and he will direct your paths.

                        Comment


                        • #13
                          I had to quit PT because it was making all of my IC worse. The only thing that did help was the laying down for 1/2 listening to the tape and relaxing the muscles. Was supposed to do that 2 times a day but I don't have time to be laying down for 1/2 hour twice a day.

                          Comment


                          • #14
                            WOw bigred i hope you dint injure anything either. Make sure you mention this to your PT next week. I will be sending healing thoughts your way that nothing happens.

                            Im getting tighter as the day goes on. I know there should be some pain, but again its tough because I wasnt in pain before PT in these areas.

                            My next appt is next Friday (only going once next week due to other dr appts) I hope that you are able to make it to your church function.

                            Soccermom-glad to hear that you are feeling good after PT. Im glad that it seems to have helped you.

                            My PT said we are holding off on the internal too, but yesterday she wanted to do internal since my external is not tolerating PT all that well. I said i didnt want the internal, just getting an exam at my uro kills me!!! Im already in enough pain.


                            Its snowing here today, and im sure thats why im getting stiff, i feel like the tinman

                            Hang in there everyone


                            Lyme disease diagnosed 11/05
                            vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
                            IC diagnosed with hydro/cysto- may 17, 2006

                            Over growth of lactobicilli found 8/07 treating with doxy.

                            Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

                            8/22/07- was able to get my first speculum exam, with pap

                            Strep D found in bladder with United medical labs May 2006
                            2 strains of strep in stool culture 9/06
                            high Strep ASO titre found 10/06

                            NEW MED

                            Capsasin cream-once a day for 20min,
                            BUt wont lie it does burn

                            About to start valium supositories for PFD

                            Trigger point injections- oct 07

                            Current meds:
                            Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
                            Zanaflex 2mg
                            IC and low oxalate diet, no sugar diet
                            Xanax for appointments to help relax me since they cause so much pain

                            Started PT 3/07, PT has really helped me in ways I never knew that it would

                            Meds ive tried
                            Lyrica
                            Klonopin
                            Singulair
                            Claritin
                            Pyridium
                            Soma- can barely tolerate half a pill
                            Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
                            Estradiol cream
                            Urelle- caused worse bladder spasm and retention

                            Various antibiotics for lyme which caused yeast and made the IC and VV worse

                            waiting for the next chronic illness to pop up


                            "Did you know?
                            Every 15 seconds,
                            a person is
                            diagnosed with
                            interstitial cystitis."
                            Source: J. Dimitrakov, MD

                            Comment

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