PFD and urethra burning, could it be helping

[mich2604 ICN Member Find all posts View Profile Close mich2604]

For the last three days I havent had urethra burning, or burning with urination, i feel normal. It feels so good to pee without the pain. I just wish i knew why i was feeling good.

I noticed that it feels like it did before i got the IC and PFD, feels like im peeing more smoothly if that makes any sense.

Ive been doing my stretches, but i guess this also could be hormonal, since i have the montly egg white dischrge i get before my period.

Oh and i could walk today without burning or any vulvar and urethra rubbing pain

I sooo wish this good feeling could last.

[soccermom32 ICN Member Find all posts View Profile Close soccermom32]

OMG I love days like that when I am pain free w/ no pain meds!!!!!!!!

ENJOY IT!!!!!!!!!!! I hope it lasts forever for you.......think remission!!

Have a great day

[Big Red ICN Member Find all posts View Profile Close Big Red]

I hope that this is a good sign and you will just continue to feel better and better.

[froelica IC Friend Find all posts View Profile Close froelica]

Yay, mich!

I think we both started PT around the same time, and I am seeing improvement too

My muscle tone started out at 6.4,
then next week was 4.4,
then 3.7,
then my PT cancelled one week and I felt HORRIBLE,
then 2.4
then 3.0,
and now 2.8.

Now if I could only get it down into the "normal" range (0-2)

I'm so glad that this works for some of us!
Best wishes

[Big Red ICN Member Find all posts View Profile Close Big Red]

When did you two start PT. Im wondering when I might feel better.

[mich2604 ICN Member Find all posts View Profile Close mich2604]

I started in the beginning of March. I had PT today and i told her about the urethra not burning and asked if it was coincidence, and she said it was most likely coincidence........BUT then she felt one of my muscles in my right leg and she said it was very loose, so that is loosing up......and i asked could that be tied into the urethra and she said it could.

My back is still very tight.......i tried the bike today but the way i was sitting it was hitting my pelvis and hurt. but i was able to do an excerice using the ball...my groin felt ver relaxed after. It would be nice if the burning stayed away.

we will be trying internal in a week........i told her that my NP has a tough time with this and she said its probably due to the stirrups)all along i thought it was my position that affected her ability to exam me. we shall see.

froelica- how do they measure your muscle tone?

[froelica IC Friend Find all posts View Profile Close froelica]

Mich- They measure my resting muscle tone with a sensor. It's placed in the vagina and it reads muscle tone, with outside sensors on my tummy, so if you clench your muscles, it goes up close to 10. If you relax your muscles it goes down. With this inside, I do kegels and relax, which slowly helps bring down my resting tone. One time I was at about a 5 or 6 when we started, then came down to about a 2 by the end of the 15 min. session.
I've never done "internal work". I'm not sure what that entails. All I do is the kegels with the sensors and then the same object that senses muscle tension makes my PF muscles contract and relax without me doing anything.

Big Red- I started in early February. I was seeing some major relief by the third week, but my PT was surprised by my progress, so I'd assume it usually takes a bit longer. Maybe 1 to 1 1/2 months? Also, when I had to miss a week my symptoms came FLOODING back. I'm so mad about that. Never again, I'm making sure!!!

[Big Red ICN Member Find all posts View Profile Close Big Red]

Was my PT does interal manipulation of the muscles we don't use stirups. Both knees are bent and spred apart with one on a pillow resting against the wall and one resting on her which is held by her free hand. I hope this isn't to graphic but I also hope it helps.
Sounds like you PT has you doing alot of exercise also. I try to do 45min. of pool arobics (PT didn't order this), She has given in the past week 5 more exercise to do. Some stretching some strengthining. Some are 1-2 x a day and some our 4 x a day. I am giving it my bes shot. I have been doing this only two weeks. Yesterday in our conversation I got the impression that I will be doing this with her for a good period of time.

[rosesitty IC Friend Find all posts View Profile Close rosesitty]

Glad PT is working for some of you. I have had WORSE symptoms since starting PT. I stopped PT over two months ago and still can't get things to settle down. Like everything else it - things work for some and not for others. I'd just like no hip, pelvic and back pain.

[froelica IC Friend Find all posts View Profile Close froelica]

I'm sorry to hear that rosesitty.
It's so true that each person responds to different treatments in different ways. For me, PT relief came after half a year of trying literally EVERYTHING recommended for IC. Absolutely nothing helped and I was beginning to think nothing ever would. I think there is at least one good treatment for each of us, we just have to figure out what it is!

[Big Red ICN Member Find all posts View Profile Close Big Red]

The only thing that I am tired of is all the abdomenal exercies that I have from the PT to do. I feel with my water aerobics every moorning and the PT exercises thats all I do. I guess if I all comes to good thats wonderful. I just get so tired.

[tigger_gal ICN Member Find all posts View Profile Close tigger_gal]

as crazy as this sounds, have you tried changing you toilet paper?
My mom and my aunt also have IC, they went to the Casino, and now bot are burning and have pain. The TP there is like wiping with sandpaper, that is the only thing they can come up with for the reason.