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Physical Therapy, I'm SO EXCITED!

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  • Physical Therapy, I'm SO EXCITED!

    I had another physical therapy session again for pelvic floor dysfunction and Psoas muscle spasm on my left side. WELL.......... she did internal massage today and trigger point mapping. Turns out my left side from 7 o'clock until 11 o'clock is COMPLETELY in spasm. The muscles are swollen with fluid in fact. The pain that radiates from this is very near my bladder wall and where I identify all the source of my pain!

    Why I am SO EXCITED you ask? Well, for the first time since this all started in November I feel like there *could* be an end to all of this. I don't have bladder symptoms such as frequency/urgency or urethra troubles. I have pelvic pain. I do not deny that my bladder is inflammed from all these muscle spasms.....but the PT will settle down and relax my spasms which should result in less pain and less irritation which is settling into my bladder.

    The pain of Physical Therapy is SO worth it if I will be well again.

    I could shout it from the roof top....."MY VAGINA IS IN A BIG MUSCLE SPASM AND I'M GOING TO BE OKAY!!!!!!!!!!" Hahahahaha....I won't do that of course :woohoo:

  • #2
    I hope that this is your answer.

    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

    Where I can be found most days.

    Link to the ICN Patient Handbook:

    Link to the IC Diet:

    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      PT didn't work for me, in fact it made me worse, I really, really, really hope it works for you!


      • #4
        Yay, soccermom!!!
        I remember having that exact feeling back when I had my first consultation with my PT 2 months ago. It's like a big wave of hope after (for me) half a year of being resigned to pain and no sex for the rest of your life.
        Some encouragement for you- PT has been working for me. I think it will take a while and I will always have to keep those muscles in check (I seem to carry tension there) BUT it's going really well. I haven't had urethra pains for a month or more, my bladder pressure is nearly non-existant, and I had ENJOYABLE sex the other night!!! :woohoo: No pain at all!! I couldn't have imagined that a month earlier.

        Good luck and keep updating. I'm very interested in the PT progress of others.
        Diagnosed with IC: October 2006

        Related diagnoses: PFD, chronic back pain, vulvodynia, IBS, anxiety.

        Lots of water
        Fiber, when I can remember...
        Elmiron (I'm down to 200mg per day)
        Kegels (10 sets of 10 second holds per day)
        Yoga and Pilates, each weekly
        Exercise 3x weekly

        Have tried:
        PT for PFD and chronic back pain (VERY helpful)
        IC diet (I'm not diet-sensitive while on Elmiron)


        • #5
          I can hear you from hear!!! That is great news soccermom, I hope PT is the answer to all your pain and you start to see some improvement

          Lyme disease diagnosed 11/05
          vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
          IC diagnosed with hydro/cysto- may 17, 2006

          Over growth of lactobicilli found 8/07 treating with doxy.

          Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

          8/22/07- was able to get my first speculum exam, with pap

          Strep D found in bladder with United medical labs May 2006
          2 strains of strep in stool culture 9/06
          high Strep ASO titre found 10/06

          NEW MED

          Capsasin cream-once a day for 20min,
          BUt wont lie it does burn

          About to start valium supositories for PFD

          Trigger point injections- oct 07

          Current meds:
          Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
          Zanaflex 2mg
          IC and low oxalate diet, no sugar diet
          Xanax for appointments to help relax me since they cause so much pain

          Started PT 3/07, PT has really helped me in ways I never knew that it would

          Meds ive tried
          Soma- can barely tolerate half a pill
          Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
          Estradiol cream
          Urelle- caused worse bladder spasm and retention

          Various antibiotics for lyme which caused yeast and made the IC and VV worse

          waiting for the next chronic illness to pop up

          "Did you know?
          Every 15 seconds,
          a person is
          diagnosed with
          interstitial cystitis."
          Source: J. Dimitrakov, MD


          • #6
            I had PT, but it really didn't help me, hope it helps you. Good luck.


            • #7
              Why didn't it help you? Did you do all the exercises and internal massage etc...or where you just too sore all the time to be able to do it? That's a shame it didn't work.