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  • painful PT

    After doing PT this morning the pain shot up to 10. She didn't even have me do much of anything really so how the pain got that bad I haven't a clue. Had to get a few groceries afterwards and I almost started crying in the store. One because of the pain and two how can that little bit that was done cause so much pain? Had to take a vicodin, turn up the tens and sit for 2 hours before the pain went down to 8. She gave me a list of exercises (more like stretches really) and to walk 10 minutes twice a day on the treadmill. I'm tired out already and very weak and achy. She said I didn't have much strength in my legs either. She also said give it one month and see how it goes. She will also look into getting a home e-stim thing for pain. Not sure if insurance will pay for it but if not then that is out. Boy, I don't know if I am up to doing this.

  • #2
    (((((((((((((hugs))))))))))))))) I am so sorry you are in so much pain. I hope it all goes away soon. Dose the heating pad help you? maybe a bath?
    feel better soon.
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment


    • #3
      Thanks Tiger Gal, I've been sitting mostly. Taking the vicodin. My eurethra is killing me. Don't think the kegals will be something I can do. Really hurts inside to just try and do one and then I have an awful time trying to relax those muscles again. Hopefully I can sleep all the extra pain away over night. Heating pad makes the pain worse for some reason. Imagine if I got in the tub of really hot water that would help but I don't feel good enough to get back out once I got in.

      Comment


      • #4
        PT did the same thing for me. I am going back tomorrow so that I can hopefully get a tens unit. After each PT session, they would hook me up with warm heating pads for about 20 mins. and it would bring my level down to around 4. I am so upset, I called my dr. today to get a refill for my pain meds in case pt sends me into total pain, and no one ever called me back. She use to have the best nurse and she would call me back within 30 min. of a call and now the new nurse just ignores me. I am calling first thing in the a.m. because my pt appt is at 9:00. good luck

        Comment


        • #5
          Geesh, I am so sorry to hear that you feel rotten after something that's supposed to help Hopefully she's right, and it will just take some time to build up some strength, and it won't wear you out too badly anymore!!!

          Feel better soon!!!
          Hugs,
          Tracey
          How do you eat an elephant? One bite at a time...

          Harry arrived 2/23/09!



          *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          IC Diet Cheat Sheet:
          http://www.ic-network.com/diet/2009icdietlist.pdf



          Dx's:
          IC dx'd Nov 2004
          Lymphocytic Colitis dx'd July 2005
          Possible IBS
          Current IC Meds
          Vistaril 25mg in the evening
          Previous IC Meds taken:
          Cystoprotek - 2 caps 2x's a day
          Elmiron, 100mg 3x's a day
          Ditropan, 5 mg 3x's a day
          Others:
          Wellbutrin 150mg 2x's a day for Anxiety/IBS
          Pepcid 40mg a day for GERD
          Zytrec for Nasal Allergies
          Align Probiotic daily for IBS

          Comment


          • #6
            Figured tomorrow is another day to try. I sure do feel like giving up (already even ) but I am not going to. She said it has been 9 years so it can't be fixed overnight which I know just I feel so tired and achy and in pain big time. Decided to keep a diary too of how the day goes along with the exercises and relaxing things she wants me to do. Think I will hold off on the kegals until I see her on Friday. She did say there are other things she wants me to do but will hold off until later on. Gee, I really am out of shape and didn't relize how much! I will let Mr. Sandman take my troubles away and hopefully by morning things will be back to normal.

            Comment


            • #7
              I too felt worse after PT before feeling better. It wasnt until my third week before the soreness started to subside enough for me to notice the benefits.
              Try to stick it out as its probably going to offer you rewards in the end.

              Feel better soon, dear!
              Diana
              (\__/)
              (o.O )
              (> < ) This is Bunny. He's on his way to world domination.

              Comment


              • #8
                OK I AM RIGHT THERE WITH YOU! I had my 2nd pt today. When she is doing the massage at the moment it feels all right but it is later when it gets bad! She has me doing only 2 exercises and 1 breathing exercise. I see her once a week. As i was reading your post you reminded me to relax! good luck!
                mom to 3 wonderful kids


                IC symptoms 7/03,
                hysterectomy 11/04,
                prolapse cervix 7/07
                diagnosed: IC 2007
                IBS 2008

                Comment


                • #9
                  You poor thing!

                  I'm a beginner at this and so all I know about pelvic floor and physical therapy for it is from this article someone posted on this board (thank you thank you for doing so!)

                  http://www.bio-medical.com/news_display.cfm?newsid=47

                  this is from Dr. Moldwin who seems to be an expert on the subject. He is against kegels w/ high tone, spasming pelvic floors.

                  Just thought I'd pass that on. I am positive I have this problem and so am really looking into it research wise.

                  I really hope this or something else works out for you!

                  Holly

                  Comment


                  • #10
                    You know, I just remembered, even with my PT for my back last year, the first week or so was KILLER! I was walking with a limp after the first day, one of my co-workers asked me just what the heck happened, they thought it was supposed to make me better! ha ha ha

                    But it did get better, and at the end of my 12 weeks (I think it was 12, maybe less...) I had NO pain, and could bend all sorts of ways she asked me to! YAY!!

                    You'll get better too!
                    Hugs,
                    Tracey
                    How do you eat an elephant? One bite at a time...

                    Harry arrived 2/23/09!



                    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    IC Diet Cheat Sheet:
                    http://www.ic-network.com/diet/2009icdietlist.pdf



                    Dx's:
                    IC dx'd Nov 2004
                    Lymphocytic Colitis dx'd July 2005
                    Possible IBS
                    Current IC Meds
                    Vistaril 25mg in the evening
                    Previous IC Meds taken:
                    Cystoprotek - 2 caps 2x's a day
                    Elmiron, 100mg 3x's a day
                    Ditropan, 5 mg 3x's a day
                    Others:
                    Wellbutrin 150mg 2x's a day for Anxiety/IBS
                    Pepcid 40mg a day for GERD
                    Zytrec for Nasal Allergies
                    Align Probiotic daily for IBS

                    Comment


                    • #11
                      Will say I slept through the whole night :woohoo: which I haven't done in 9 years. Didn't wake up until 7:50 am but thought it was only 6:00 am until I looked at the clock so had to jump out of bed.

                      Tracey, I walked in for PT I think rather well. The best I could do. When I left I had all I could do to get my coat on. Of course the parking lot is miles away. PT is done at the hospital which is just set off the emergency room so they have emergency parking close and "visitor" parking far away. I always thought if people are going for PT to get well why do most of them act like they have been hit by a train when they leave?

                      Comment


                      • #12
                        huuggss

                        I am so sorry to hear that. I think a majority of us feel the same way! I know I do. Just wanted to say, the stretching really does help. Especially when you throw in some yoga stances, to target different areas. If I don't try to follow a video, and just go at my pace, I always feel so much better afterwards. Again it all boils down to, dispursing the load on your body (physical,mental,emotional) and knowing when to stop and take a deep breath. I always do 50 different things at once, and it keeps me from doing too much of one thing, and ultimately hurting myself. I hope for you much, much better days, from now, and until, always! Warmest regards.
                        Love is a fruit in season at all times, within reach of every hand. ~ The Blessed Mother Teresa

                        Status: Diagnosed October 2006 via cystoscopy with hydrodistention. Max anesthetized bladder capacity only 250 cc's. Mast cells and pinpoint bleeding found.

                        Remission for me means less pain for more days than not. Frequency is inevitable with a bladder this tiny! That is ok though. The difference between when I was diagnosed and now, is that I have embraced that fact. Me and the loo, we are one.

                        Comment


                        • #13
                          Im sitting here in a bit of pain too after my PT session on Monday.....but i went a few weeks with minimal pain after PT, BUT my first session KILLED me. The next day I was wearing thermacare heat wrap on my lower back and hobbling around, everything was tight when i peed too. It got better in a few days though.

                          Make sure you take a muscle relaxer after you get home from PT if you can, or even before if you can(if it doesnt make you too tired to drive) I take xanax after and I feel better the next day.

                          I have seen results from PT, i can walk longer now, stand straight, sleep better without a tugging pain. Had 6 days of no burning urethra.


                          I would suggest stopping any excercises that hurt, they arent supposed to hurt while you are doing them. My PT always says stop if it hurts. Keep an open communication with your PT too, let them know what stretches hurt, and they probably can give you something that doesnt.


                          For example my PT first had me walk backwards on the treadmill (this hurt my back) then tried the bike(this hurt my hip) then i tried the eliptical( and it didnt hurt at all, just made me tired)

                          Hang in there.


                          Lyme disease diagnosed 11/05
                          vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
                          IC diagnosed with hydro/cysto- may 17, 2006

                          Over growth of lactobicilli found 8/07 treating with doxy.

                          Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

                          8/22/07- was able to get my first speculum exam, with pap

                          Strep D found in bladder with United medical labs May 2006
                          2 strains of strep in stool culture 9/06
                          high Strep ASO titre found 10/06

                          NEW MED

                          Capsasin cream-once a day for 20min,
                          BUt wont lie it does burn

                          About to start valium supositories for PFD

                          Trigger point injections- oct 07

                          Current meds:
                          Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
                          Zanaflex 2mg
                          IC and low oxalate diet, no sugar diet
                          Xanax for appointments to help relax me since they cause so much pain

                          Started PT 3/07, PT has really helped me in ways I never knew that it would

                          Meds ive tried
                          Lyrica
                          Klonopin
                          Singulair
                          Claritin
                          Pyridium
                          Soma- can barely tolerate half a pill
                          Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
                          Estradiol cream
                          Urelle- caused worse bladder spasm and retention

                          Various antibiotics for lyme which caused yeast and made the IC and VV worse

                          waiting for the next chronic illness to pop up


                          "Did you know?
                          Every 15 seconds,
                          a person is
                          diagnosed with
                          interstitial cystitis."
                          Source: J. Dimitrakov, MD

                          Comment


                          • #14
                            Hi guys! I'm new on this site. I was dx'd 4 years ago and have suffered a recent flare up. I am trying to get into a pain clinic to see a PT. Funny thing is, I'm an OT and none of the PT's I work with know much about how PT's at pain clinic deal with IC. I'm familiar with TENS b/c I use it on my patients, but OT's work mostly with upper body injuries so I have no clue how this works on the bladder. Where do they place the electrodes? Internally or externally? Do they allow you to get a Rx for the unit so you can do it yourself at home? I'm a little terrified of going to PT b/c of the pain. BUt more than that I am extremely shy about my body and hate taking my clothes off. Will I have to?

                            I'm also familiar with trigger point therapy as an OT, but again, I work with upper body injuries only and I rarely have people take their clothes off.

                            Sorry I know I asked a lot of questions but I am needing some encouragement and reassurance.

                            Oh and also can someone tell me how to post a picture by my name?? I saw how to post an avatar but I want my real picture.

                            THANKS A MILLION! ! ! !
                            Lee Ann
                            Current Rx Meds:
                            Atarax, Ditropan, Elmiron
                            Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
                            Hooray for babies!
                            Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
                            Didn't work for me:
                            Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
                            IC (Mod-Severe) since 1996

                            UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).


                            My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...

                            Comment


                            • #15
                              The tens electordes go outside. I got the RX from my Uro. I went to PT so the lady could show me how to use it. This was I think 7 years ago but she let me use hers until mine came in. She wasn't suppose to let me take it out of the hospital but told me to tell no one about it. Had for 2 weeks. I've never had to take my cloths off for PT. Well, once when I was trying the biofeedback but I didn't take my cloths off. The electrodes had to be placed in my butt. Guess it depends on what area they are working on and with what type of device I imagine.

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