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Severe Pfd Pain...help

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  • #16
    There are several different meds that work like flomax. Cardura and hytrin are two --- and I think there are others. My husband couldn't tolerate flomax --- it caused nasal and bronchial congestion for him.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #17
      Neurontin is a Rx medicine that can be used to treat nerve pain. I think generally it is prescribed for shingles, but I've seen MANY people prescribed with it on the IC and PFD forums.
      Diagnosed with IC: October 2006

      Related diagnoses: PFD, chronic back pain, vulvodynia, IBS, anxiety.

      Treatment:
      Lots of water
      Fiber, when I can remember...
      Elmiron (I'm down to 200mg per day)
      Kegels (10 sets of 10 second holds per day)
      Yoga and Pilates, each weekly
      Exercise 3x weekly

      Have tried:
      PT for PFD and chronic back pain (VERY helpful)
      IC diet (I'm not diet-sensitive while on Elmiron)

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      • #18
        i think i'll ask my doc about neurotonin tomorrow. i'm sure she looooooooves me, i'm so sensitive to ALL meds. but i am DESPERATE.

        thanks.

        ps-donna, i'm also asking about surgery. it's just too much to bear right now.
        (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

        Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

        I'd like to be on House, MD as a medical mystery.

        Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

        Connor & Mommy by the tree:


        Connor with Santa...so happy!


        I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

        Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

        I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!

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