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  • PT went better this morning

    Pt went much better this morning. Told her all what had happened. She said stop doing the kegals, take the vicodin like I have been doing and didn’t do the bike this morning either. She gave me a back massage, which was nice. She did hit one stop that was very painful but the more she massaged it the better it was. She did have me sit with a heating pad on my back for a few minutes before the massage. She wasn’t to please that I took the towel off it. I couldn’t feel the heat with the towel on. She said I could scald myself with it but told her it was fine. Just perfect really. Guess next time I leave the towel on. She gave me quieting tape to do along with the 20 minutes relaxing. She said keep doing all the exercises and breathing. I’m in lots of pain to begin with so can’t really get into much more pain which is true. She said it would take time before I see any results. At least when I left this morning the pain stayed between 5-7 for ½ hour. Wasn’t crawling out so that is something good I think. One other thing too for two ours afterwards when I went wee wee it seemed like I peed out gallons each time. Haven't done that much peeing in a very long time.

  • #2
    Well I am so glad it went better this time.. I really think I need to start going..
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #3
      waterflow- congrats on your improvement! It sounds like your PT cares about how you're feeling. You say she had you stop the kegels for now, I think that is good. My PT wouldn't let me start doing kegels on my own until I was about 4/5 weeks into treatment and when my resting tone looked safe enough (I think it was at about a 3 at this point). I've been doing them since then and they have reeeeallly helped, but I think they may be a bad idea to do them too soon. Good luck with the PT, I hope your pain level gets lower and lower
      Diagnosed with IC: October 2006

      Related diagnoses: PFD, chronic back pain, vulvodynia, IBS, anxiety.

      Treatment:
      Lots of water
      Fiber, when I can remember...
      Elmiron (I'm down to 200mg per day)
      Kegels (10 sets of 10 second holds per day)
      Yoga and Pilates, each weekly
      Exercise 3x weekly

      Have tried:
      PT for PFD and chronic back pain (VERY helpful)
      IC diet (I'm not diet-sensitive while on Elmiron)

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