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  • Neurontin

    Anyone have any input on neurontin? My uro/gyno wants me to stop the Valium and start on Neurontin. Any side effects? effective? works, doesn't work? Thanks everyone!

  • #2
    I've never taken it, but here's what I found for side effects:

    dizziness, poor coordination, or drowsiness;
    blurred or double vision;
    irregular back-and- forth movements of the eyes;
    nausea and vomiting; or
    If children 3 to 12 years of age experience any of the following serious side effects, contact your doctor immediately

    emotional lability (anxiety, behavior problems, crying, false sense of well-being, mental depression, reacting too quickly, too emotionally, or overreacting, rapidly changing moods);
    hostility (aggressive behavior, suspiciousness, or distrust);
    restlessness, hyperactivity or increase in body movements;
    amnesia (loss of memory); or
    thought disorders (concentration problems and change in school performance).

    an allergic reaction (difficulty breathing; closing of the throat; swelling of the lips, tongue, or face; or hives).

    Edited to add: I think the first section of the list are the more common side effects.
    Diagnosed with IC: October 2006

    Related diagnoses: PFD, chronic back pain, vulvodynia, IBS, anxiety.

    Lots of water
    Fiber, when I can remember...
    Elmiron (I'm down to 200mg per day)
    Kegels (10 sets of 10 second holds per day)
    Yoga and Pilates, each weekly
    Exercise 3x weekly

    Have tried:
    PT for PFD and chronic back pain (VERY helpful)
    IC diet (I'm not diet-sensitive while on Elmiron)


    • #3
      For me my body couldn't function with just one pill. All I could do was sit in the chair and work at breathing. Was a really weird feeling.
      Last edited by waterflow; 04-08-2007, 09:40 AM. Reason: typo


      • #4
        The main side effects I had were increased appetite (particularly for sweets), and consequently, gaining weight. Also, it caused drowsiness and fatigue for several months until I got used to it. I have heard the same thing from several others here who have taken it.

        I just got off of it a few weeks ago after being on it for years. (I just started Keppra.)

        I think Neurontin helped me some initially, but it is hard for me to say for sure b/c I started so many things at the same time. But, several ICers take Neurontin and are helped by it.

        I hope you have good results with it. Let us know how it goes for you!



        • #5
          Hi Amy - my uro/gyno wants me off of Valium to start Neurontin. I'm not really having "nerve" pain - more muscular pain. I'll give it a shot, but don't want to make myself worse either. Thanks for the input.


          • #6
            I appreciate the input too. I see my Doctor in 2 weeks and am anticipating being started on Valium and possibly Neurontin as well. It is good to hear what side affects "real" people had; not just an impersonal list from the print off that comes with the bottle!
            IC; PFD; possible Fibromyalgia; IBS;

            Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

            I've Tried:
            three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
            Currently using:
            Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
            Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
            I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!


            • #7
              i jsut started neurontin 4 days ago. so far i'm on a low dose, but NO side effects. maybe slight lightheadedness when i increased the dose, but it was mild and fleeting. i just took 200mg and feel no effects. Actually, last night i took some and felt like i had MORE energy. unfortunatly, no real pain relief either. but its been only 4 days so i need to sit tight.

              i think my body is used to drugs that are supposed to make you tired and dizzy. i could take trycyclics and atarax with no sedation whatsoever.
              diagnosed IC Jan 2007 (though i feel i've had it mildly for years)
              frequent UTIs
              No frequency, just urgency and pain!

              tramadol 50mg twice a day. this stuff works good for nerve pain!!!! (update, i'm down to mostly one pill a day now!)

              Physical Therapy. if you have pelvic nerve pain or muscle pain, its worth a try. it helped me with the constant burning.

              TENS may help a little

              Cystoprotek might be helping as well. i'm getting better as time goes on and this could be why.

              fish oil, herbal teas, skullcap (might try passionflower for nerves) I'm not very diet sensitive.

              Went OFF elavil and nortryptiline (worked wonders, but didnt like the weight gain)