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no more big peeing

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  • no more big peeing

    Well, been back twice to PT and the peeing has been staying the same. Back to just a little. Not sure why I had that big peeing on Friday but doubt that will happen again.

  • #2
    awww that sucks....

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

    Link to Patient Handbook:

    Diet Reference Sheet:

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      It's okay, because it's very normal for IC to have better days and worse days - but just the fact that you got some really good days in there, means it is getting better! What you might find is that as time goes on, you get more and more good days like you had, and less and less bad days, and the bad days won't be as bad as your bad days used to be. I'm pretty sure that's how it will happen!

      But don't be discouraged - IC'ers hardly ever get well in a straight line, LOL - it's usually getting well in a zig-zag kind of line...but you are going in the right direction, don't worry....



      • #4
        Thank you, Lori, that post helped me too. I've been a little bit down in the dumps for the past couple of days, because things had improved a lot but now I'm back to having pelvic and back pain all day.. Gotta remember it's not going to be a straight line. I am hoping this is pre-menstrual, but I don't really know. Anyway, thanks for the reminder and the encouragement, even though it wasn't directed to me!
        Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
        Wishing you happiness and good health, and all the best out of life.

        Peace, Carolyn

        Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

        On the Beach with IC


        • #5
          Yeah, I know how you guys feel. I've been having some back, PF, bottom and thigh pain and spasms again lately despite my PT progress.
          My PT always emphasizes that this will be a lifelong struggle with ups and downs. Even though we get better sometimes we shouldn't feel defeated when we don't stay that way!
          Diagnosed with IC: October 2006

          Related diagnoses: PFD, chronic back pain, vulvodynia, IBS, anxiety.

          Lots of water
          Fiber, when I can remember...
          Elmiron (I'm down to 200mg per day)
          Kegels (10 sets of 10 second holds per day)
          Yoga and Pilates, each weekly
          Exercise 3x weekly

          Have tried:
          PT for PFD and chronic back pain (VERY helpful)
          IC diet (I'm not diet-sensitive while on Elmiron)


          • #6
            Good thing we don't have to do the straight walking line to see if we have been over drinking. It would show that I was bombed out of my head. I have noticed I don't have good balancing anymore. ANyone else have that problem?