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My PFD is SO bad

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  • My PFD is SO bad

    I love my physical therapist...I wish I could just go in whenever I was in spasm, LOL. She does internal trigger point release and you would not believe how HUGE the release is.
    I saw her today and I feel SOOOOOOOOOOOo good. I'm going to exercise tonight so that may put me back in a spasm - but she told me to use the elliptical.

    Does anyone else need internal trigger point releases? That is where all my pain is stemming from, it isn't my bladder at all I don't think. When that muscle lets go it feels so good, I just wish it would stay relaxed!!

  • #2
    hEY THERE!

    I get the internal trigger-point release too. It helps with the pain, but not the peeing. I do get sore for a short time afterwoods. My left side is worse so one of my hips is rotated I have to do these exercises at home with a small vibirator(which is weird) but it helps to relax the muscles and helps quite a bit. She says no sex for now, becuase I can't get up to the right dialator yet. She is really nice and does pilates with me at the clinic. My uro thinks this will help my pain alot...he is right so far!

    IC diagnosed officially via cysto/urodynamics 1/26/07

    Grade II Endometriosis diagnosed via lap 12/11/07

    "Fall down seven times, Stand up eight."

    "Life is a tragedy for those who feel and a comedy for those who think."

    Current Treatments:
    Interstim Since 5/25/07!
    Birth Control


    • #3
      My PFD is real bad too, just started internals, and i asked her today, this is really bad isnt it, she said well we rate from 0-4 and you are definently a 4.

      It hurt more today, but she did find the muscles near my urethra are super tight, which she said is a good thing because it very well could be causing some of my iritation and pain.

      I just wish i knew how the heck this got so bad. I think it was the mutiple infections i had.

      Lyme disease diagnosed 11/05
      vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
      IC diagnosed with hydro/cysto- may 17, 2006

      Over growth of lactobicilli found 8/07 treating with doxy.

      Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

      8/22/07- was able to get my first speculum exam, with pap

      Strep D found in bladder with United medical labs May 2006
      2 strains of strep in stool culture 9/06
      high Strep ASO titre found 10/06

      NEW MED

      Capsasin cream-once a day for 20min,
      BUt wont lie it does burn

      About to start valium supositories for PFD

      Trigger point injections- oct 07

      Current meds:
      Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
      Zanaflex 2mg
      IC and low oxalate diet, no sugar diet
      Xanax for appointments to help relax me since they cause so much pain

      Started PT 3/07, PT has really helped me in ways I never knew that it would

      Meds ive tried
      Soma- can barely tolerate half a pill
      Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
      Estradiol cream
      Urelle- caused worse bladder spasm and retention

      Various antibiotics for lyme which caused yeast and made the IC and VV worse

      waiting for the next chronic illness to pop up

      "Did you know?
      Every 15 seconds,
      a person is
      diagnosed with
      interstitial cystitis."
      Source: J. Dimitrakov, MD