This is so frustrating.

[Kara29]

On top of my Mom's Cancer, My Sister's Wedding, and doing what needs to be done to get myself some pain relief.....

I've been having a huge flare of fibro and myofacsial pain in my neck and shoulders which is making the pelvic floor therapy harder to focus on. Actually focusing on clenching is making the urgency worse.

I am so tired. I have to do 3 months of pelvic floor therapy before they do the pudendal nerve decompression surgery.

The PT is having me do Kegal Exercises. They are making the urgency and frequency 10,000 times worse. I was having some pretty good days. This is making it worse.

I really want to do this appropriately and to try everything to get better. I was dragging my feet on this for this exact reason.

This is so frustrating and I am tired.



Kara

[DaniBelle]

Thinking of you...

and I will be praying for you. Pain, pain, go away....don't come back another day!!!!!!


Hugs,

Danita

[humpieumpumkin]

I'm so sorry Kara. You are going through so much. Although I can't really fully understand the extent of the pain you are in, I too have to go through PT before the doctor will be able to fix me. I think it is part liability and part so ins will cover the surgeries. I am thinking of you and I hope you feel better soon.

Erika

[kadi]

I totally hear you. My PT wanted me to do kegels also. I did them 3 days & spent those nights awake with miserable frequency. Fortunately, my PT respected my decision not to continue them & just keep going with the exercises that did help me. I don't know what to tell you, just wanted you to know you are not alone.

[Kara29]

She has me doing other exercises that I am able to do. She has me doing some stretches, walking, and position changes. I can do all of that but the Kegals. I am unable to lie on my back and she has been very respectful of that. So I hope that she will respect this and find some other things do take accomplish the same goal.

Has anyone else done PFT? Any exercises that were not too harsh on you?

Thank You,

Kara

[humpieumpumkin]

My physical terapist has me do stretches with a dialator. These make my symptoms even worse and is totally counter-productive. She calls them "clock stretches" I hate them.
Erika

[Trishann]

Hey Kara have been thinking about you. I sure do hope they will continue to work with you and understand when you can't do certain things. Can't wait until you are feeling better. You have alot on your plate now no wonder your body gets tired. Hope you can relax soon and I hope it will help you to get better.

Sending many hugs, Trishann

[rosesitty]

Hey Kara - PFT has been my worst nightmare. I KNEW I was clenching the pelvic area (with some frequency and urethral burning issues), so I asked to go to PT thinking I was being proactive in helping myself. After the first day of trigger point work, I experienced severe right hip and back pain that radiates down to my knee. It didn't help that I had fractured the right ankle and had to wear one of those walking boots prior to starting therapy. It has been a downhill spiral since then. I started massage, acupuncture and trigger point injections - thinking that might help - but only caused things to be worse. Any kind of stretching causes flares. So...right now I'm medicating myself and soaking, and that's about it. Even anti-stretching is painful. I'm not convinced that trigger point work and PT is for everyone. I hope you find the right combination - I think that's what we're all looking for.
Stephanie
p.s. I have a really stressful job (I work for myself) and stress plays such a major component. Perhaps as things settle down for you, so will the pelvic floor.

[Kara29]

Thank you everyone! I apprectiate your feedback. I wish this wasn't so painful for us. At least we tried. Being proactive is a good thing in the long run.

Hugs!!!

Kara

[froelica]

Hey Kara- just make sure to keep your PT aware of your symptoms. I'm sure you are anyway, but the worst thing is to not let them know what's going on. You're the only one that knows how you feel!

I hope the PT goes better for you soon. I'm nearing the end of my 12-week stint and I'm darn near normal almost all the time :woohoo: I never would have thought it would be possible 6 months ago, so just hang in there and you'll find some relief!

[SandyRN]

I'm sorry you're still having such a hard time. You certainly deserve a break!! I've been really hesitant about PFD because of what I've read on these boards. I've got the name of a lady who only does PFD, but I'm so afraid it will make me worse, and I can't deal with more pain right now. I hope that you start feeling better soon and that your therapist will work with you and give you exercises that don't exacerbate your pain!

Hugs, Sandy

[humpieumpumkin]

Lots of patients do really well with PT and the at home exercises. My tone is so high the physical therapist is surprised I can sit at my desk all day! The exercises and trigger point release make me so much worse! My frequency and pain sky rockets after my stretches. I am only doing it for ins. purposes. I have only been doing it for a month. My pt says she concerned I may never be able to control the tone.

Erika

[ChrissySunshine]

Hi Kara, You've been in my thoughts and prayers as always! I was glad to see that you said you only (ONLY!...I KNOW!) three months of PT prior to surgery. At least you're moving forward, keep that in mind!

Hugs, Chris

[waterflow]

I couldn't do the kegels either. I tried and tired but it felt like things were being squeesed down there. She has me doing me leg exercises instead. I squeeze a ball between my knees and then I stretch a band apart with my knees. In the beginning I could feel them both in the bladder but I don't anymore. Maybe that might help out?

[cia]

I always have had problems with Kegels. My problem seems to be that things are too tight. if I try to do a Kegel I end up in lockdown. It feels really strange. I actually have to make an effort every night to focus on relaxing those muscles. Of course I am petrified that I will relax too much and pee the bed. This is such a fun condition! Make sure your PT knows the problems that you are having I think there are a million different things they can do if one thing doesn't work. I used to get the trigger point pressure, until one day I lost control of my left leg for a few hours later in the day, we immediately switched to something else. I hope you feel better soon.