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  • Pelvic Floor Exercises

    My physical therapist gave me some instructions on pelvic floor exercises, and I can't seem to find them. I don't go back till next wed. and I would like to start on them right away. Does anyone know where I can find some instructions on them????? I know it is a strange question, I just really don't want to go back and tell her that I haven't done them this week...again.

    I know that I have heard you all say that they help a lot, and man do I have a lot of pelvic floor dysfunction...ugh! I also now have vulvodynia...man it is like a snowball effect isn't it.

    Also, I was curious about some of the yoga and balance ball exercises...I really think that would help. Any advise that you all have would be very much appreciated!

  • #2
    ironically, it's very hard to find PFD exercises on the web because they are often customized to the individual patient. Just call her back or ask if you can go pick up a second set. Happens all the time. Just do it so that you can atleast make a few days effort.

    Jill
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

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    • #3
      I agree with Jill,

      Just call the PT and say you need copies, or maybe they can fax them if you have a fax.

      my pt excercises are very specific for which muscles are my most problematic.


      Lyme disease diagnosed 11/05
      vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
      IC diagnosed with hydro/cysto- may 17, 2006

      Over growth of lactobicilli found 8/07 treating with doxy.

      Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

      8/22/07- was able to get my first speculum exam, with pap

      Strep D found in bladder with United medical labs May 2006
      2 strains of strep in stool culture 9/06
      high Strep ASO titre found 10/06

      NEW MED

      Capsasin cream-once a day for 20min,
      BUt wont lie it does burn

      About to start valium supositories for PFD

      Trigger point injections- oct 07

      Current meds:
      Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
      Zanaflex 2mg
      IC and low oxalate diet, no sugar diet
      Xanax for appointments to help relax me since they cause so much pain

      Started PT 3/07, PT has really helped me in ways I never knew that it would

      Meds ive tried
      Lyrica
      Klonopin
      Singulair
      Claritin
      Pyridium
      Soma- can barely tolerate half a pill
      Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
      Estradiol cream
      Urelle- caused worse bladder spasm and retention

      Various antibiotics for lyme which caused yeast and made the IC and VV worse

      waiting for the next chronic illness to pop up


      "Did you know?
      Every 15 seconds,
      a person is
      diagnosed with
      interstitial cystitis."
      Source: J. Dimitrakov, MD

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      • #4
        Yep, definitely give the PT a call & get a new set of instructions.

        I hope the PT works out well for you, it's really really helped me!
        I can do so much more hiking or exercising at the gym without flaring, my pain level dropped, my constipation reduced (a bonus benefit I wasn't expecting!) & it's great to have positive things I can do to help myself.

        Good luck!
        Kadi

        -------------------------------------------------------------
        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        ------------------------------------------------------


        New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
        Source - Pinterest
        "


        Current treatments:
        -IC diet
        -Elavil 50mg at night
        -Continuous use birth control pills (4-5 periods/year)
        -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
        -Pyridium if needed,
        -Pain medicine at bedtime daily, as needed during the day several times per week
        -Antibiotic when doing an instillation to prevent UTI
        -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
        -Dye Free Benadryl 50 mg at bedtime
        -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
        -Managing stress= VERY important!
        -Fur therapy: Hugging the cat!

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        • #5
          Your PT can probably even email the instructions. By all means, make that call.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            THANKS!!! I hadn't thought of calling...man, I am dense sometimes. LOL Sometimes I wonder about myself...lol. I will call her today, and see if she can either email them or fax them to me.

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