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  • Valium supositories for PFD

    Has anyone had success with these?

    I tried my first one tonite, and had a heck of a time having it stay put, and then it seeped out and seemed to iritate my vulva :-(

    Im not sure what mine is compounded with since the Pharmacy didnt have it listed on the box....and I hope with time maybe it wont seep out as much.

    thanks


    Lyme disease diagnosed 11/05
    vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
    IC diagnosed with hydro/cysto- may 17, 2006

    Over growth of lactobicilli found 8/07 treating with doxy.

    Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

    8/22/07- was able to get my first speculum exam, with pap

    Strep D found in bladder with United medical labs May 2006
    2 strains of strep in stool culture 9/06
    high Strep ASO titre found 10/06

    NEW MED

    Capsasin cream-once a day for 20min,
    BUt wont lie it does burn

    About to start valium supositories for PFD

    Trigger point injections- oct 07

    Current meds:
    Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
    Zanaflex 2mg
    IC and low oxalate diet, no sugar diet
    Xanax for appointments to help relax me since they cause so much pain

    Started PT 3/07, PT has really helped me in ways I never knew that it would

    Meds ive tried
    Lyrica
    Klonopin
    Singulair
    Claritin
    Pyridium
    Soma- can barely tolerate half a pill
    Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
    Estradiol cream
    Urelle- caused worse bladder spasm and retention

    Various antibiotics for lyme which caused yeast and made the IC and VV worse

    waiting for the next chronic illness to pop up


    "Did you know?
    Every 15 seconds,
    a person is
    diagnosed with
    interstitial cystitis."
    Source: J. Dimitrakov, MD

  • #2
    I went to the IC conference in Houston last Saturday and a doctor talked about valium suppositories being sucessful (as well as oral valium)
    20 mg of valium compounded is the recipe for the suppository.
    Mitch, If the suppository is burning your vulva try to stick it as high as possible or try a difernt mix that you'll be able to tolerate.

    The doctor speaker added that some of his patients crush the pill and mix it with a lubricant (don't know if that would be OK for VV though...but it is definitely cheaper)
    I'm curious about valium suppositories too b/c I don't think Elavil is doing the trick with me and I don't want to take a higher doses of the medication. I heard also something about Elavil not being good for PDF and making things worse... I heard it tiwce during the same week.
    Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
    UTIs since mid 2004
    Recurrent yeast infections since mid 2005
    IC dx 3/2006
    V V dx 12/2006
    Other conditions: IBS, allergies, dry eyes.


    Current IC medications:
    Elavil (since 12/06) 10 mg;
    Cysta Q (since 5/07)
    Rephresh acid jel every 3 days
    D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
    Probiotics Femdophilus or other brands
    Gy-Na-Tren for yeast infections (started using it as needed since 2010)
    Other Rx:Omeprazole 20mg; benadryl as needed, Restasis


    Past Meds and why I stopped them:
    Elmiron: March to September 2006: headaches
    Lyrica:2 weeks in 2006: headaches
    Cystoprotek: from Jan to April 2007: nausea

    Femcon Fe (2/07 to 10/07):caused spotting/bleeding
    BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.


    "Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"

    Comment


    • #3
      Thanks SMR,

      Guess what the one supository that I did helped me a lot. I went from the worst muscle tone(brick wall) to a two.

      My PT was amazed, and its the only thing different that I did.

      She also gave me some helpful tips on inserting the supository.


      Im glad that it was mentioned at the houston conference, hopefully more will get help with this.

      I was horrible when i started PT, and now, well its like I am a completely different person, nothing short of a miracle.

      I do still have flares...but i think I am on my way.


      Lyme disease diagnosed 11/05
      vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
      IC diagnosed with hydro/cysto- may 17, 2006

      Over growth of lactobicilli found 8/07 treating with doxy.

      Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

      8/22/07- was able to get my first speculum exam, with pap

      Strep D found in bladder with United medical labs May 2006
      2 strains of strep in stool culture 9/06
      high Strep ASO titre found 10/06

      NEW MED

      Capsasin cream-once a day for 20min,
      BUt wont lie it does burn

      About to start valium supositories for PFD

      Trigger point injections- oct 07

      Current meds:
      Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
      Zanaflex 2mg
      IC and low oxalate diet, no sugar diet
      Xanax for appointments to help relax me since they cause so much pain

      Started PT 3/07, PT has really helped me in ways I never knew that it would

      Meds ive tried
      Lyrica
      Klonopin
      Singulair
      Claritin
      Pyridium
      Soma- can barely tolerate half a pill
      Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
      Estradiol cream
      Urelle- caused worse bladder spasm and retention

      Various antibiotics for lyme which caused yeast and made the IC and VV worse

      waiting for the next chronic illness to pop up


      "Did you know?
      Every 15 seconds,
      a person is
      diagnosed with
      interstitial cystitis."
      Source: J. Dimitrakov, MD

      Comment


      • #4
        Hi, I have found that if I lie down for about 30-45 minutes after putting in the suppository that I do not have as much seepage. This is the pits if you are needing to be up and about, however. They do help me some, but are so expensive. I am going to try just inserting the pills next time. I have a script for some pills, but I haven't filled it yet.

        Janice

        Comment


        • #5
          I haven't tried this yet but I'm thinking if you are going to try to insert juts the pill to crush it first and mix it with a lubricant that you tolerate, I'm thinking it'll be better if you do a trial by mixing a smaller amount of the medicine first...of course run it by your doctor.

          I'm trying to get as much infomation as possible and then I'll talkt to my doctor about it....

          Question: do you do the suppositories twice a day? or just once a day? do you have to do every day...for good?
          Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
          UTIs since mid 2004
          Recurrent yeast infections since mid 2005
          IC dx 3/2006
          V V dx 12/2006
          Other conditions: IBS, allergies, dry eyes.


          Current IC medications:
          Elavil (since 12/06) 10 mg;
          Cysta Q (since 5/07)
          Rephresh acid jel every 3 days
          D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
          Probiotics Femdophilus or other brands
          Gy-Na-Tren for yeast infections (started using it as needed since 2010)
          Other Rx:Omeprazole 20mg; benadryl as needed, Restasis


          Past Meds and why I stopped them:
          Elmiron: March to September 2006: headaches
          Lyrica:2 weeks in 2006: headaches
          Cystoprotek: from Jan to April 2007: nausea

          Femcon Fe (2/07 to 10/07):caused spotting/bleeding
          BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.


          "Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"

          Comment


          • #6
            Im only doing them 3 times a week right now.

            Not sure how long I will be using them, I guess until things start to calm down, i was a real mess.


            Lyme disease diagnosed 11/05
            vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
            IC diagnosed with hydro/cysto- may 17, 2006

            Over growth of lactobicilli found 8/07 treating with doxy.

            Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

            8/22/07- was able to get my first speculum exam, with pap

            Strep D found in bladder with United medical labs May 2006
            2 strains of strep in stool culture 9/06
            high Strep ASO titre found 10/06

            NEW MED

            Capsasin cream-once a day for 20min,
            BUt wont lie it does burn

            About to start valium supositories for PFD

            Trigger point injections- oct 07

            Current meds:
            Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
            Zanaflex 2mg
            IC and low oxalate diet, no sugar diet
            Xanax for appointments to help relax me since they cause so much pain

            Started PT 3/07, PT has really helped me in ways I never knew that it would

            Meds ive tried
            Lyrica
            Klonopin
            Singulair
            Claritin
            Pyridium
            Soma- can barely tolerate half a pill
            Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
            Estradiol cream
            Urelle- caused worse bladder spasm and retention

            Various antibiotics for lyme which caused yeast and made the IC and VV worse

            waiting for the next chronic illness to pop up


            "Did you know?
            Every 15 seconds,
            a person is
            diagnosed with
            interstitial cystitis."
            Source: J. Dimitrakov, MD

            Comment


            • #7
              I think I read some of your posts. I really hope you get better.
              Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
              UTIs since mid 2004
              Recurrent yeast infections since mid 2005
              IC dx 3/2006
              V V dx 12/2006
              Other conditions: IBS, allergies, dry eyes.


              Current IC medications:
              Elavil (since 12/06) 10 mg;
              Cysta Q (since 5/07)
              Rephresh acid jel every 3 days
              D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
              Probiotics Femdophilus or other brands
              Gy-Na-Tren for yeast infections (started using it as needed since 2010)
              Other Rx:Omeprazole 20mg; benadryl as needed, Restasis


              Past Meds and why I stopped them:
              Elmiron: March to September 2006: headaches
              Lyrica:2 weeks in 2006: headaches
              Cystoprotek: from Jan to April 2007: nausea

              Femcon Fe (2/07 to 10/07):caused spotting/bleeding
              BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.


              "Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"

              Comment

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