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anyone flare worse from therapy

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  • jen74
    replied
    Hi mich2604,
    Yes, the urogyne did do a pelvic to check my pelvic floor muscles, and I did have some pain, but my gyne that I have been seeing for years said that this was due to my endometriosis.
    The urogyne said he was suprsied when he did the pelvic as he expected me to have more pain. I did have pain, but I did not jump off the table or anything.
    Now, vulva vestibulitis is not related to PFD from what I was told. These are two different issues totally. With my VV, I get actually red inflammed skin in my vulva, you can actually see it is irritated,, so this is an actual skin irritation.
    It is interesting how you felt better after the PT though as far as the burning. I dont get any burning while I pee, just that I have a burning sensation in my bladder all the time usually, except for a few days in between I sometimes feel less pain, usually after an instill.
    I have no issues with pain while walking and such. I do have a slower urine stream, but this is usually in the morning or middle of the night after I have held my pee for a while. And I was told that the slow urine stream was because my bladder is swollen which makes sense I guess.
    I am interested in the PT, but am very reluctant to do the internal as I am very prone to vaginal infections, and to be honest, I got bacterial vaginosis right after having had pelvic exams a couple months ago. Also, I am allergic to almost all the meds that treat BV, so I dont want to get it again. Any suggestions? I have a discharge now, and I am suppose to go to PT this Thursday and am not sure if I will go or not. I may wait and see my gyne first and see what she says.
    Jen

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  • charmedx3
    replied
    THANK YOU! THANK YOU ALL!
    The exercise I do is just stretches, no kegels. I am getting more sharp stapping pain now then I did before and the ache pain is worse. I will keep with it and just try to deal. thank you!

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  • mich2604
    replied
    Jen, the symptoms of PT vary from person to person

    My symptoms were slow urine stream, inability to get a gyn exam, vulva burning, vestibulitis, inability to walk, had to shuffle my feet to walk.

    My PT told me on the first appt that PT would not help my damaged bladder lining, but it might help with my other symptoms.

    Did your Dr do an internal and evaluate the pelvic floor muscles?


    its amazing before i went to PT today.....i was feeling sick , pelvic pain, and now i feel better. Pelvis was out of alignment, i can really tell when it is in alignment, no burning urination and i feel close to normal.

    Leave a comment:


  • jen74
    replied
    Ok, what exactly are the symptoms of PFD? The only issues I have is pain and burning in my bladder, which is because the inside of my bladder is Very red an inflammed, at least that is what the urogyne who diagnosed me said and what the pictures showed that were taken when I had a regular cystoscopy which Dx my IC.
    I dont see how doing PT is going to take down the inflammation and irritation that is inside my bladder. Is this what PT is suppose to be for? I dont get that. How can some one pressing inside your vagina help with the surface irritation of the inside of the bladder? Please can someone enlighten me?
    Jen

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  • mich2604
    replied
    I guess it took me about 3 weeks of external PT before i saw improvement.

    I canceled my 2nd PT appt and just cried at home, i was going to give up and just when i was giving up the pain subsided from the first PT session. And i saw a bit of improvement with walking.

    I held off on internal PT as long as I could, i too have VV and it is painful, BUT i use lidocaine before my internal PT which does help. I just go into the bathroom and apply it.

    Believe me I was one of the tough VV cases and i feared getting the internal, but my PT is great, so that really helps too.

    I have to say the internal PT really released a lot of tight muscles, and I now can insert a supository, could get an internal exam. Before it was just so beyond tight, not even a q-tip could enter.

    Im also on capsaisin cream for the VV and it has helped tremedously.

    As for infections- I am also wondering about this, since i was told i have a yeast infection....I think it may be from PT since i didnt have one at all this year until i started PT. They use a anti bacterial cream and i think this upsets the Vaginal PH. So, im trying to figure out something that can counteract this. Maybe a vaginal probiotic or something, i dunno. Im going to ask my PT today when i go.

    So far with PT, i can lay on my side without it feeling like my hip is being pulled down to my butt (very painful).

    My urine stream is stronger, I dont have the trickle in the morning(for a month now) My urethra burning is less, I walk better with little vulva rubbing.

    the home stretches are easier to do, I dont hurt all that much after PT, and can do more on the Eliptical.

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  • jen74
    replied
    Oh my gosh, I had no idea that they actually do internal PT. That just does not sound right to me. I mean, they would have to be very very trained to do this,( maybe a doctor) and like Kadi said, I would not want to risk getting an infection. There have got to be better types of excerise that they can do externally. I have Vulva vestibulitis, and I dont even have sex because of the pain I have down there. There just is no way I am having anyone put there hands in me down there. Plus, I got bacterial vaginosis about three months ago after having several pelvic exams within a month period. I have never had bacterial vaginosis before in my life until then, so I totally think it was from that. The other day I went to see the fill in for my regular PCP since mine was out of town, since I have been having some discharge down there. Anyways, the doctor was going to do a pelivc exam, and just before she was going to do it, she was opening the doors to the cabinets and touching the desk drawers and was not even going to put a clean pair of gloves on. I had to say something. I just asked he if she could please make sure that her gloves were latex free. So she did ckeck the box and put a different one on.
    Anyhow, getting an infection would be a big worry for me as far as the PT goes.
    Jen

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  • rosesitty
    replied
    yes, yes and yes! I had five months of PT - gave it the old college try - and have been suffering for eight months. Can't get it to quiet down. Hip, back pain, but still have the tight pelvic floor. Sooooo frustrating - hope it can help you!
    Stephanie

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  • littlemyrn
    replied
    I didn't do internal, did alot of other exercises., they killed me. I would cry for two days after, (I was with another URO at time and called for some pain relief and they refused), that is when I switched URO and went to new one crying again about PT, she wrote me pain meds/valium and said to try two more. I did and graduated from pt, but not without a lot of pain. I don't think it really helped me. But in order to continue getting treatment, I try these things, so they (drs. don't give up). I just got a invitation that my urology group is giving for a free seminar for women with pelvic pain, painful intercourse, etc. I laughed at the end of the invite, wine and cheese will be served. ha ha. I guess us IC'ers will drink water. But I am going, hoping to meet someother women that have IC.

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  • kadi
    replied
    Kegels really triggered off bladder spasms for me. PT went a lot better when we eliminated those. I only did external. I got a UTI/kidney infection right after the internal exam, so I refused all internal work after that. Overall the PT was very helpful. But there have been several exercises we tried & dropped when they made me worse. (The kegels were by far the most problematic)

    Leave a comment:


  • charmedx3
    replied
    She does internal massage to pelvic muscles. to me it is like going in to GYN for a pelvic.

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  • jen74
    replied
    What is the internal PT like, what does it entail? I am going for PT in a week and just want to be prepared. I also have alot of stomach issues, so I am going to tell the P-therapist right from the get go what she is not going to be doing as I am not going to risk getting worse with my motility issues.
    Jen

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  • humpieumpumkin
    replied
    Make a "frosty". It helps me since I get really sore.

    Ingredients:
    1 condom-unlubricated
    ky lubricating jelly
    Rubbing alcohol

    Open condom and squeeze about 1/4 c of ky into it. Top that off with about 1 tbsp alcohol. Mush that all up and then tie a knot at the end. Place in a ziplock bag and then in the freezer. Use it on the external genital area, and maybe even a small portion of the internal. This really helps the burning. My pt made one for me and it is fantastic.

    Erika

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  • waterflow
    replied
    The first 2 PT visits I thought I was going to die. Told her just can't take the pain from some of it so we stopped doing that. Maybe doing the internal and external (don't know what that one involves) is what you shouldn't be trying. Ask her if there is something else. My PT was thinking about doing the stim thing internally but she is holding off for now because of the pain I have. Right now when I leave PT my pain is worse but I take the darvacet when I get home and then my mind/quieting time and the pain level goes down more then what it was when I arrived. Hope you find something that will help out. I have found there are more then just one certain type of PT treatments.
    Last edited by waterflow; 04-29-2007, 01:49 AM. Reason: typo

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  • charmedx3
    replied
    Right now we are doing both external & internal. She did more work this time. I will have her back off on everything. I think (if this makes sense) I want to do whatever it takes to get better but I am realizing need to take it slow.
    while I have exams (sorry) or even sex I don't always feel it at the moment (the pain) it is afterwards. So maybe that is my problem. I just don't know.
    Will it get better? When do you say enough? how long until you felt better?

    Leave a comment:


  • mich2604
    replied
    Hello,

    sorry you are in pain, but i can relate. After my first PT session I thought i was ruined for life! but i talked to my PT and she changed some of my stretches, and now goes slow with me to see how i will react to each session.

    Can you take a muscle relaxer after your PT? are you doing internal or external?

    hang in there, but i would mention your pain to your PT.

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