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  • #1

    Cystoprotek

    Hi,

    I HAVE BEEN READING LOTS OF POSTS AND NOTICED THAT CYSTOPROTEK HAS BEEN MENTIONED ALOT. IS THIS A DRUG MY UROLOGIST WOULD WRITE ME A PRESCRIPTION OR IS IT OVER THE COUNTER. IS ITS MAIN FUNCTION TO ELEVATE THE NEVER ENDING URGENCY TO URINATE AND ALSO TO HELP EMPTY YOUR BLADDER


    THANKS SO MUCH
    cory
    Tags: None
  • #2
    Hi Cory,

    I started CystoProtek about 2 weeks ago and it has made a vast improvement in my frequency. I don't know all the details about HOW it works.

    You will be happy to know it is an over-the-counter medication. One place you can purchase it is through the ICN Shop. Try one bottle first, since everyone is different.

    Wishing you the best!
    Darlene

    Comment

    • #3
      For anyone who wants to reply...

      Hi Darlene,

      When you use the term frequency, do you mean you have to go very often and are able to....or (which is my scenerio) I feel I have to go 24/7 but when I try I have to push and very little comes out...I am starting to think maybe I have bladder retention. Last week my uro perscribed Vesicare (which is for an overactive bladder) I went to the movies last night....drank a whole big drink...obviously I had the feeling of needing to go (that never changes) but when I tried almost nothing came out. Do you know if this is common for IC or I should be looking into bladder retention...I know you are not a doctor..(LOL) but any opinion would be greatly appreciated.

      Cory
      Last edited by cory22; 05-17-2007, 03:08 AM. Reason: spelling errors

      Comment

      • #4
        OMG, I certainly believe you have bladder retention! You better get that checked out right away. You could become very ill, keeping those toxins inside. (This advice comes from being a Mom...)

        Frequency for me is going 6x a night (I'm down to about 3x now). I've not had a problem not being able to get a flow. I've never counted my daytime trips to the bathroom. I do have urgency sometimes....like I can barely make it to the bathroom and get my pants down in time.

        Sorry you are having this retention problem. Talk to the girls here about it!

        Hugs,
        Darlene

        Comment

        • #5
          cory22
          I too have the same problem with the constant feeling of having to go pee but only little comes out, if anything at all. My doctor put me on trosec (stop urine frequency due to spasms) and i was even more incapable of urinating. I instantly stopped taking the medication (it said if experiencing urine retention stop immediatly). to be honest, i think ic is so vague and all over the place we can never know for sure whether we are being treated for the right disease. I still think it's a possibility i was misdiagnosed with ic because i never experience pain, only the urethra problems and not being able to sleep because of that constant feeling of having to go (maybe im in denial though... who knows?) all i know is gut says i dont have ic. anyways I asked my urologist if that 'constant feeling' was due to urine retention or if it was just something wrong with my nerves and really there's no urine to even urinate. He was unable to provide me with an answer and just shrugged me off. then again he was a terrible uro and i am seeing a specialist in a week (thank god! i've waited 2 months for this appointment). my advice; stop taking the Vesicare immediatly as it is definitly causing you bladder retention as it did for me. Are you on any other type of medication? Do you experience physical pain? I truly understand what you are going through, it is hell and if my new uro prescribes anything to me that helps, i will be sure to get back to you.
          best wishes
          currently taking:
          as of October 06: 200mg elmiron twice daily
          as of January 07: 25mg anti-histamine before bed
          as of February 07: 10mg elavil before bed
          also on bcp yasmin since 04

          tried trosec 20mg twice daily, experienced urine retention

          Comment

          • #6
            Flomax

            Hi,

            I went to a 2nd urologist yesterday as I was really getting upset. He was alittle better than my first. It just seems they don't want to listen to your symptoms. You know your body..Anyways....He is sending me for a urine retention test. I am sure I am not voiding enough in a day. He also set up an appointment to talk to a therapist on Pelvic Floor Dys. and also untrasound or xrays (not sure which as it was written in french..I live in Quebec) of my pelvic area and kidneys. He also prescribed my Flomax which is generally used for men with an enlarged prostrate that have trouble getting started and also to keep the flow going..(which is me,,,I also have to push alot) The Pharmacist told me it is sometimes prescribed for woman..I have to give it a week or so before I know anything,,I will update you. I am also like you on Elmiron (3 years) was on Detrol..but did nothing , I take atarax at bedtime. I really don't have physical pain..It is more a constant feeling of pressure and the constant feeling I have to go and can't...

            Personal question here.. Do you know how much you void in day (approx)

            Hoping we get some answers one day..

            COry

            Comment

            • #7
              Cory,

              Sounds like this doc is on the right track. Hope thing work out well for you. Keep us posted.

              Voiding? I'm doing really well right now....voiding 'bout every 5 hours! I'd guess 6-8 oz each time.

              Wishing you well,
              Darlene

              Comment

              • #8
                Hello all...
                I do know that Pelvic Inflammatory Dysfuntion (PFD) will cause alot of retention..
                Also if you are taking anything like Detrol, or Enablex they will cause some retention, But that constant urge feeling that can also a damged nerve, there is just so many things that come with IC.. When I first got dg I thought I would die having that constant urge feeling. I would pee and it would feel like I still needed to pee.. I was put on Enablex and Elavil and Cymbalta, and thank goodness they helped or I would have went crazy..And I also had my husband rubb the muscles on my inner thighs which they due in PT, they try to loosen all the tendons and muscles down there, this helps so much with retention.. Just google Pelvic Floor Dysfuntion you will get alot of info about it.. Good luck..
                Hugs
                Ronda

                ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                Link to Patient Handbook:
                http://www.ic-network.com/handbook/

                Diet Reference Sheet:
                http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                Meds I have Tried:
                Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                Lexapro< Bad reaction to this med!
                Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                Dx With IC in Nov 2006 with Hydro/Cysto
                Hydro/Cysto Caused Bladder to Rupture.

                Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment

                • #9
                  cory22

                  interestingly enough i as well live in quebec. (south shore to be more specific). quite the coincidence as i find many people on the board live in the states. your 2nd uro took the initiative to provide you with more help then mine ever did. i told my old uro my symptoms and all he did was put me on trosec for urine incontinence like i said which made it worse. i had to get the elavil from my family doc and the hospital. its exciting to know there is actually a pill out there to help with urine retention. i also have to push out my pee. im pretty sure i damaged my nerves though, i had my tonsils removed under anesthesia and when i woke up i couldn't go pee. it scared me so i pushed my muscles extremmmellly hard and since then it's been nothing but hell. i really hope the meds work for you! i need to get me some of those if they do! it will be my first question to the new urologist on thursday.
                  currently taking:
                  as of October 06: 200mg elmiron twice daily
                  as of January 07: 25mg anti-histamine before bed
                  as of February 07: 10mg elavil before bed
                  also on bcp yasmin since 04

                  tried trosec 20mg twice daily, experienced urine retention

                  Comment

                  • #10
                    sorry, i forgot to mention i void on a good day every 2-4 hours awake and maybe every 3-5 hours during the night. on a bad day, like the past 4 days now, i am voiding at least every hour, but hardly any urine comes out. But if i drink alot, i'll void every 10 minutes maybe, still in small amounts.
                    currently taking:
                    as of October 06: 200mg elmiron twice daily
                    as of January 07: 25mg anti-histamine before bed
                    as of February 07: 10mg elavil before bed
                    also on bcp yasmin since 04

                    tried trosec 20mg twice daily, experienced urine retention

                    Comment

                    • #11
                      Is it just me or does it seem like friends from Canada and the UK have a very hard time getting a Doctors help with their problems with I.C.? I live in the States but all of my Family came from Canada. I love it there. Cory you must be very uncomfortable. I'm so sorry. I think I would ask if that Doctor can't help me could he/she send me to someone else? Ziggy

                      Comment

                      • #12
                        oct

                        Your dose of Elmiron 100 mg twice a day is very low. In my opinion it is too low to do much of anything. The standard Elmiron dose has been three times a day. A lot of us are on the new dose schedule which suggests 6 a day. Very little of this med gets into the bladder, thats why a lot of Uro's are using higher dose. If you get a little higher dose it may make a difference in your symptoms.
                        Constant feelings of having to pee are most likely, like LELE pointed out nerve damage or irritation. If this developed, try to think of the event or circumstances that started it? Many times nerve damage results from lower back injury, or nerve damage during child birth or surgery. It can also result from infections, even chronic yeast.
                        You could try Elavil which is very good for nerve damage. Hope you get the flow thing straightened out soon.

                        Sammi

                        Meds: Melatonin 3mg @ bedtime if needed. Estrogen 1.5 mg troche and 0.1 mg Estrace cream.
                        Diagnosis: IC, PFD (both in remission)

                        Comment

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