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  • Valium and xanax? Tell me more

    Some of you mentioned Valium and xanax. My doctor never told me about those drugs. And here I am in constant burning bladder and urethral PAIN. I just posted this delemia in another section. Here's my story:

    Hi,

    I just need to vent. Even if you don't have any advice for me it's just comforting to know that someone out there is going through rough days as well.

    I am currently on SSD for a severe bladder condition called Interstitial Cystitis. I had always had a dream of starting a non-profit ministry (which hasn't been formed yet - but you can view the website at www.forgivensinner.com) to help other women get out of the adult entertainment industry.

    The problem, is that since I got SSD approved and tried to form a ministry my condition has gotten WORSE. Most days I am confined to the house and can't leave the pain is so unbearable. I have been asked to do radio and TV shows and speaking engagements and have had to decline. My ministry is ready to boom while my pain is unbearable. I have been to my urologist who said that there are no other treatment options for me (I've been through 17 years of doctors and treatments). She doesn't know of my ministry and would be very upset if she knew because she said that stress makes my condition worse. I guess it was wishful thinking on my part? I must be in a state of denial. I guess it's hard to face the fact that I'm broken.

    Stress does infact make it worse. The bigger the ministry gets, I find the worse my pain gets. It also doesn't help that there are other people out there who are jealous of me and try to cause trouble and more stress in my life. No one understands this. When I try to pull back, I'm told that "I'm just trying to live off the state" or "I need to be out there fighting for God." No one seems to be hearing the fact that I am in PAIN.

    What many don't realize, is that I spend several nights crying in pain and over the fact that I am such a broken doll. I want NOTHING more than to be able to minister to women and get healed and off disability. I want NOTHING MORE than to make my ministry work but the pain gets so unbearable all I can do is crawl up in ball and weep. I often ask God "How much longer will you let me suffer like this?"

    Thanks for listening,
    Susan

  • #2
    Thank you for your shoulder and support. I feel better just knowing that there are others out there who are going through the same helpless feeling.

    She did not give me any pain meds. What do they have you taking the valium for? She did give me the muscle relaxant but that was for the PFD. I too, can only take a 1/2 and it knocks me out. Does the valium help with the frequency? I also have bipolar. Hum.. I wonder if it could work for both.

    My biggest complaint is the urethral and bladder burning. Just like an infection and the constant every 10-15 minute bathroom runs. Today I didn't even get out of my nightgown. Who would want to?

    Thanks again,
    Hugs,
    Susan

    Comment


    • #3
      Hi Susan.
      I am so sorry to hear that things are not going well for you. Have you tried all the other treatments( bladder instills,oral meds, etc????) I am guessing you have since you have been dealing with this for so long. There are some here that think that IC is caused by a bacteria and they did a broth culture( a special sort of culture) to determine what type of bacteria it was and were treated on long term antibiotics and got well. I have not done this myself, but just know some who have and had good results. I just thought I would mention it to see if you have went that road yet.
      Again, I am sorry you are doing so poorly. This disease is just horrible. I hope and pray you get some relief soon.
      Jen

      Comment


      • #4
        i found that my urethra burning was from severly tight pelvic floor muscles. Once i started internal PT i noticed a difference.

        urelle helps with urethra burning for some. have you tried physical therapy


        Lyme disease diagnosed 11/05
        vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
        IC diagnosed with hydro/cysto- may 17, 2006

        Over growth of lactobicilli found 8/07 treating with doxy.

        Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

        8/22/07- was able to get my first speculum exam, with pap

        Strep D found in bladder with United medical labs May 2006
        2 strains of strep in stool culture 9/06
        high Strep ASO titre found 10/06

        NEW MED

        Capsasin cream-once a day for 20min,
        BUt wont lie it does burn

        About to start valium supositories for PFD

        Trigger point injections- oct 07

        Current meds:
        Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
        Zanaflex 2mg
        IC and low oxalate diet, no sugar diet
        Xanax for appointments to help relax me since they cause so much pain

        Started PT 3/07, PT has really helped me in ways I never knew that it would

        Meds ive tried
        Lyrica
        Klonopin
        Singulair
        Claritin
        Pyridium
        Soma- can barely tolerate half a pill
        Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
        Estradiol cream
        Urelle- caused worse bladder spasm and retention

        Various antibiotics for lyme which caused yeast and made the IC and VV worse

        waiting for the next chronic illness to pop up


        "Did you know?
        Every 15 seconds,
        a person is
        diagnosed with
        interstitial cystitis."
        Source: J. Dimitrakov, MD

        Comment


        • #5
          Hi Susan,
          I am so sorry that you are in so much pain. I am a minister's wife and sometimes I wonder why I have this horrible disease when I have so many areas that I think I could be ministering in. Lately, I am coming to realize that although God did not give me this disease, He is able to use this to teach me things and for His glory if I let Him. That is not to say that there are not days when I am in so much pain and so frustrated that I feel completely useless. I know that when I am in pain, I may answer people more abruptly than I intended or in a shorter tone than I really mean to. That is frustrating to me because I may not even realize when I am doing it. I have just finished reading a book called 90 minutes in heaven. The author talks about dying and coming back and the pain he went through to recover. He points out how he is able to minister to others because he can really relate to their pain. Maybe that is how God is going to use this in your life. I, too would advise you to talk to your doctor about different treatment options. Apparently, different things work for different people. I know that the phyisical therapy was one of the best things I ever did. I do need to go back again and am going to request it on my next visit. Hang in there and come here when you need to vent. These people really understand what you mean when you say you are in pain.
          Janice

          Comment


          • #6
            Medication is such a personal thing. It works for some, and not for others. I've been taking Xanax for many, many years - I've had many car accidents and major neck surgery and it acts like a mini muscle relaxer for my neck. The doc also prescribed Valium (5 mgs 3 x per day) for my PFD, but I think I've been taking a benzodiazapine for so long it really wasn't doing anything - like taking Skittles - even with both. So, I asked for another muscle relaxer. Flexeril (cyclobenzaprine) makes me sooooo groggy. She put me on Soma and it's working well, but I can't take it during the day, only at night.
            Stephanie

            Comment

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