Announcement

Collapse
No announcement yet.

So much pain from sitting?

Collapse
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    So much pain from sitting?

    I guess this could be from the PFD that I have going on, but I can be fine all day, walking around and standing up, but the minute I sit down, then I get a irritated/nerve kind of pain (when I get up again, it gets better but the irritation stays and then I feel like I have to urinate), could this be from the PFD or is this a common part of IC, or maybe something else? I just don't get it...yet.....
    Tags: None
  • #2
    The VV

    Thanks, Briza...did you take anything that helped your VV? Maybe I can suggest it to my Uro on my next visit? My family doctor just gave me some cyclobenzprine (Flexeril) for my PFD. I took 1/2 of the 10mg pill one evening and it made me sleep the whole time. I didn't really like that. Sometimes it can be just a small irritation (if I am not sitting or the cushion is soft) but it feels nervy so it bugs me all day.

    Comment

    • #3
      Just curious, has anyone tried sitting on those big exercise balls? Of course no one wants to break their neck to get relief, but maybe? Will have to try that and will let you all know. If it works for birth contractions, maybe it will help? Jill, wife of Bob

      Comment

      • #4
        The pillow available in the ICN Shop works well for my IC --- I don't have VV, but it seems like if you could take the pressure off the perineal area (which the cushion does) might help.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.         [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment

        • #5
          DKIM,

          I couldn't sit for at least one year,, I stood eight hours a day at work, but now I can sit at least two hours. I think it is PFD and PT helped me the most.

          Suzanne

          Comment

          • #6
            I know exactly what you're talking about. I had vv tenderness for 2 years and now it has mostly gone away. Have you tried the low oxalate diet? Once I quit eating berries which are high in oxalates it finally seems to have subsided. But recently I introduced them back into my diet because they're ok for IC and low and behold I'm feeling a little uncomfortable again. Also calcium citrate at each meal is supposed to help with the oxalate levels.
            Cindi


            Gelnique for frequency/urgency - works great
            Macrobid after sex
            Prilosec, continuous birth control pills
            synthroid .088mg, mucinex-d, restasis

            Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

            Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

            IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
            AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
            AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
            Great treatment flowchart on page 19 of the pdf

            Comment

            • #7
              So helpful

              Thank-you Cindi, and everyone for your help. This VV tenderness goes on all day long and it is so uncomfortable and irritating. I have been standing (and walking) so much today that my legs are super tired! I am going to look into the low oxalate diet. I will try anything right now...

              Comment

              • #8
                Here are the three things I know that are supposed to help: 1) follow a low oxalate diet, 2) calcium citrate to bind the oxalates at every meal and 3) mucinex every day is supposed to help, I do all 3 and it seems like its mostly gone for now. Sounds strange but google it, there is alot of information on it.
                Hope you feel better!
                Cindi


                Gelnique for frequency/urgency - works great
                Macrobid after sex
                Prilosec, continuous birth control pills
                synthroid .088mg, mucinex-d, restasis

                Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

                Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

                IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
                AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
                AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
                Great treatment flowchart on page 19 of the pdf

                Comment

                Previous template Next
                Working...
                X