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Valuim Sapository for PFD

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  • #16
    I was given oral valium thirty five yrs ago for PFD after a urodynamic study. A neuro gave me thirty mg. I continued taking it; it was the only thing I needed when I got a remission fifteen yrs later. No one recognised the importance of PFD. Now that I've lost my remission I've learned the term.

    Fortunately my bladder symptoms are not bad, but I have severe vaginal itching under the bladder wall. I was sent to a vuvadynia specialist and took my ICA Pain issue.Eventually she prescribed five mg valium suppositories twice a day. I had to fight for the second one. I use a compounding pharmacy and my insurance covers any compound as long as it covers the med. They have been amazing. I have acutely sensitive mucous membranes because of Sjogren's and they changed the formula twice. I don't know if they mail out of state but I can find out. The V doc investigated the compounders in the area and chose two. They mail me my scrip and don't charge if insurance covers it. The formula I use is very leaky but I don't care. Initially
    4000mg of neurontin and 100 of lactimal covered it but I'm flaring now. I also kept taking the atarax and Cystoprotek while I was in remission.

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    • #17
      what strength vaginal valium are u using??

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      • #18
        valium

        I use 5mg vaginally, after intercourse. I just insert the pill. I have had no problems with this, and it has helped with the terrible pains I use to get 8 to 12 hours after sex.
        Current Medications:
        Trileptal - MS
        Amantadine - MS fatigue
        Trazadone - sleep
        Elmiron -since March 2007
        Gabapentin - pain
        Citracal - osteopenia
        Vitamin D - deficient
        Valium vaginal - as needed
        Prelief - as needed
        Fish Oil
        Metamucil

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        • #19
          I am taking 5mg diazapam ( sp ) 2x per day during my period. I had to use it last night and the single dose didn't work so the dr. said try 2 at one time. He said sometimes it doesn't work so we're just trying and will see what works. What is the brand name vs. the generic of valium?
          I think I have the generic made into suppositories.

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          • #20
            I use 5mg. diazepam (generic) suppositories: one during day and one at night. Sometimes I also take ten mg. oral diazepam for symptoms other than intense itching, e.g. urinary retention.

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            • #21
              "I use 5mg. diazepam (generic) suppositories: one during day and one at night. Sometimes I also take ten mg. oral diazepam for symptoms other than intense itching, e.g. urinary retention."

              Do you have any problems where you just have a hard time getting the pee to come out? I have that during my period and I literally cry on the toilet because I'm so frustrated. So far I'm not sure if the valium is helping or not. He said I could also try flo max. I haven't really come across many ladies on the boards here who have this problem. I'm going for pelvic physical therapy starting on monday april 18th and the dr thinks that will help me the most. I sure hope so!

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              • #22
                There are several who do use flomax successfully. Other medications that have similar action are also available --- the ones that come to mind are hytrin and cardura.

                Donna
                Stay safe


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                • #23
                  hi endogirl2 firstly, let me tell you that i have had IC for 21 years. and have done that been there... with just about everything. i have a retention problem. the vaginal valium has helped somewhat, but my dosage is a lot higher than that. if you read dr. brookoff's transcript. (he is the doctor in colorodo pain doctor that initially started using these compounded rx's he recommends to start at 5 mg and then go up from there if no relief is found. HOWEVER< i must tell you that i have very very SEVERE IC. and have had it for an extremely long time. i am not your norm......
                  and of course nothing can replace ur trusted doctor's advice. i am not a physician nor a health practitioner i am just a patient like you trying to find relief...
                  HAving said all of that .... i have been on flomax for years as well..... i don't know that it has made a huge difference for me.. but i still take it and hope that the combination of all of these things will help.....
                  i have alos had physical therapy, pelvic floor work, biofeedback, internal massage, acupunture, interstim trial and none of that worked for ME.... But a lot of people say that it helps them tremendously,,,,, so i would encourage anyone who is suffering to try!!! Try things that ur doc recommends if you trust ur doc and it sounds and feels right to you. ask questions and if they can't answer them to ur satsifaction. ask again or find another doc.
                  i know this disease is really difficult ... but i have the same problem you have with haveing a difficult time gettting a stream to start. i used to have to self cath but the vaginal valiums saved me from that....
                  I hope this helps.. Again, i have a severe case so don't go by what helped or didn't help me..... go by what will help You. i would suggest you try the pelvic physical therapy since ur doc think that that will help you the most. where do you live? if you want to pm me i am available.

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                  • #24
                    I use 1/2 of a 5mg valium suppositary rectally. In order to avoid building tolerance to valium, I try to do this only during the week end to be functional. Besides this I do it only as needed, if I am in a flare or a lot of pain. I also use 1/2 a 5mg suppositary a couple of hours (4-5) before intercourse and this way I don't have pain during or after.
                    IC started in September 2009. In remission in July 2011. Came back in September 2013 after UTI at a stressfull time.
                    First Treatment - (Trying it currently again)
                    Lyrica 50mg at night
                    Cystoprotek 3 a day - Prelief
                    Valium suppositaries 2.5mg (only w.e. to avoid dependency)
                    Natural Progesteron 100 mg from day 16 to day 25 of cycle
                    Solgar Gentle Iron 25 mg for low ferritin
                    Vitamin D 1,000.00 UI a day for low vitamin D
                    Ester C 500 mg a day - Probiotics
                    Physical Therapy for pelvic floor pain - Acupuncture - Yoga
                    Blood test showed slight allergy to wheat so I did eliminate wheat from my diet for 4 months

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                    • #25
                      Not to be gross but when I put in the vaginal valium, it seems to melt very quickly and just goes out on my pantyliner. I try to lay on the couch and stay still when I put it in - is this just how the product works? It melts, emulsifies and then absorbs/comes out?

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                      • #26
                        I actually recently asked my hemathologist about the vaginal suppositaries. I knew that taking a medicine rectally in a suppositary form is very efficient since it goes really fast in your bloodstream. Sometimes the absorption is actually faster and better than the oral form (I am talking about suppositary not inserting a pill). I wasn't sure about the vaginal absorption. He explained there is a lot of blood vessel in the vagina and that the medicine is nicely absorbed in your blood stream as well but not as fast as rectally. If I use valium suppositaries vaginally I tried to do it at bedtime or if I can lay down for a few hours to get a good absorption and avoid the leakage. If I need it at work and I don't have the choice, I insert it deeply and I try to sit and not move for a couple of hours.
                        IC started in September 2009. In remission in July 2011. Came back in September 2013 after UTI at a stressfull time.
                        First Treatment - (Trying it currently again)
                        Lyrica 50mg at night
                        Cystoprotek 3 a day - Prelief
                        Valium suppositaries 2.5mg (only w.e. to avoid dependency)
                        Natural Progesteron 100 mg from day 16 to day 25 of cycle
                        Solgar Gentle Iron 25 mg for low ferritin
                        Vitamin D 1,000.00 UI a day for low vitamin D
                        Ester C 500 mg a day - Probiotics
                        Physical Therapy for pelvic floor pain - Acupuncture - Yoga
                        Blood test showed slight allergy to wheat so I did eliminate wheat from my diet for 4 months

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                        • #27
                          I put mine in around 7pm and just put my feet up on the couch but I still find about 30 min later they are kinda leaking out and are greasy. I also thought they don't really get into the blood stream much rather they work to just relax the muscles inside? I don't feel a buzz or calm from them like if you were to take it in pill form. I do sleep really soundly at night though so maybe there is some effect...

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                          • #28
                            re retention: I have found that MANY meds cause me to have retention. And, sadly, many of them are used for i.c. E.g. TSA's, SSRI's, Lyrica. When my i.c. was really bad I could not take Atarax but could take Benadryl. I do find sitting in a HOT tub helps and then I stick a heating pad between my legs. I have only used Valium for retention. It seems that the oral is better for that than the suppository. When I use the suppository during the day I lay down and RAISE MY LEGS on some pillows.I do lose some but the compounding pharmacist says that it's absorbed quickly. I also use Baclofen suppositories rectally at night for pelvic floor spasms.

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                            • #29
                              what dose of the oral valium did you take? Do you find that the Baclofen is better than the vaginal valium suppository? I really don't know what my issue is. It seems when I have the rectal discomfort ( which isn't really my rectum, it's to the right maybe more muscle related ) I will have the difficulty urinating but it's 99% linked to my period. Most of the other days I'm fine. What does a pelvic floor spasm feel like? Sometimes I feel like I have a clenching feeling like when you push to pass a stool, I feel like I'm clenched like that for quite awhile somedays. I see the pelvic physical therapist Monday April 18th, I sure hope they can help!

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                              • #30
                                if you dont mind my asking who did u get to prescribe you the valium supposotories? what kind of dr? ive tried all oral meds and not seem to work even oral valium but have asked about the vaginal valium and have been turned down. i have pfd and had some success with trigger pt injections and pt for 3 years. i now go to a diff pt and hour and a half from my home. thanks any help would be appreciated
                                callie

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