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Any PFD sucess stories?

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  • Nancy1980
    replied
    Re: Any PFD sucess stories?

    Did any one here get pain free from physical therapy

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  • Nancy1980
    replied
    Re: Any PFD sucess stories?

    Hi this massage is for all o you who went to physical therapy to seek relif?? How long did it take to help... Are any of you symptom free from physical therapy??? Thank you

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  • Nancy1980
    replied
    Re: Any PFD sucess stories?

    Hi guys.. How r u
    Did any of you guys become symptom free and pain free from physical therapy?? Please let me know your experience.. Thank you

    Leave a comment:


  • Claire_A
    replied
    I am still doing well

    I posted a while back on this thread about the sucsess I have had.

    I have about 1-2 pain free days a week. I am no longer seeing my specialist in Brisbane, I see a Womens Health Physio once a week to go over the trigger points. I have not had a bad pain day (pain level 5-6) for about 2 months. Most days are a between a 1 and 3 on the pain scale.

    Bladder training going well I don't go in the night at all now. I go in the day about every 2 hours and drink 2ltrs of water.

    I hope to be completely pain free one day soon. It takes so much work....

    Glad to hear others have had sucsess with this also.

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  • earthlady
    replied
    I had much success with mine. I went for two months and had the internal myofascial work done. I go for a 'tune up' now periodically. I was having severe pelvic floor spasms. I do the stretching exercises now at home. With any IC pain though it is very possible my pelvic floor spasms could return so treating both is probably what I will need to do. Pelvic floor therapists seem to be hard to find but maybe in the future there will be more of them trained since they now know how all that stuff down there is interrelated.

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  • KaraLynne
    replied
    I have been doing PT for almost a year now (went to the therapist for about 9 months and now I'm continuing the exercises and such on my own).

    After 3 months of therapy and dilator, I was beginning to have slight pain relief and was able to have pain-free sex for the first time!

    After about 6 months of therapy I was having significantly less pain.

    At this point, I am basically pain-free a couple days a week and when I do have pain it is milder and lasts a shorter period of time.

    My therapy involved dilation, stretching exercises, abdominal exercises, re-alignment exercises, and posture exercises.

    At this point, I could skip a day of dilations or exercises and not be worse for wear. I can't skip it more than a day though or I end up in pain. The re-alignment exercises particularly help because if I get out of alignment, I am in pain!

    I have not yet returned to running and yoga, which I used to do, but I do plan on starting up this summer....slowly. I also have not incorporated kegals yet to strengthen. I just started a new job and am stressed, so I don't want to add more pain. Last time I tried kegals a couple months ago, it hurt, so my body wasn't ready for those yet.

    I have also made a lot of lifestyle changes that help. I know that certain ways of standing, sitting, and lying down make me go out of alignment, so I avoid them, which makes a difference. I'm also careful in how I get out of car or take big steps or do certain activities. PT has made me more aware of things like this.

    I would say after a year, I'm about 90% better. There was this one day about 7 months into PT that I realized that I had absolutely no pain. It was amazing, because for a couple years before that, the days I felt like were pain-free, were actually low-pain days. I had forgotten what it was like to be pain-free!

    I definitely recommend PT. Find a good therapist though. And be dedicated to it. It's hard to be dedicated, but it took a long time for your muscles to get like they are and it will take a long time to get better. But I've really found PT to be life-saving. (Also, just to give you an idea, my PT told me that I didn't have a severe case of PFD--so even for a milder case, it's taken a while for me to get better. Although it's possible that someone with more severe symptoms might have seen more dramatic improvements, I don't know.)

    Good luck!

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  • ginaaa22
    replied
    Yes with that aspect of stuff I am. Now its just getting over this cold and pleurisy and getting my vulvodynia under control.

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  • sailawaygrl
    replied
    That makes sense but I know in my case it would be horribly painful! Glad you have found something that is working so well for you! Sounds like you are on your way to great days ahead.

    Leave a comment:


  • ginaaa22
    replied
    yes they are kegal exercises. I asked Cindy about it because I read that we shouldnt do them. She said they help some and some they dont. For me, it is helping. Cindy said by wearing the muscles out by using them they relax. I do believe since I do the biofeedback where she watches on a screen and can see if im using the right muscles, this is different than some kegal exercises that other patients may have done. She watches me to make sure I do the exercises right.
    Last edited by ginaaa22; 03-10-2011, 02:26 PM. Reason: add more

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  • sailawaygrl
    replied
    Amanda is right, Kegels are not recommended for us at all. Our muscles are already tight, we need them to relax. If you read the AUA recommendations for treatment it even states specifically that we are not to do kegel.

    Gina,
    What you are describing sounds a lot like a kegel type exercise. Am I misinterpreting them? Maybe you are further along in your treatment and can do that type of exercise.

    I have been to pt as well (very anxious for new ins. so I can go back) I think that sometimes we all need different types of exercises so I would caution some on doing someone else's recommended exercises as their muscles may require something different that someone else's do. My PT sounds very different from what Gina describes which leads me to think that even more, as obviosly my treatment probably wouldn't help her but did help me. There are some good books sold on this site that have some great at home exercises that are generally safe for us.

    Leave a comment:


  • skybluesoul
    replied
    Valerie,
    You shouldn't be doing Kegels until your pelvic floor muscles have lengthened and become stronger, and maybe not even then. Doing them when you're still in pain will only make everything worse. Trust me....I've been there. I did Kegels for months before learning that they aren't good for an IC bladder, or when you have PFD.

    Leave a comment:


  • needsrelief
    replied
    thats great! Im going to start PT. A couple of weeks after my surgery. Im starting to wonder if I had PFD first then got IC. I started having symptoms after a UTI. I was reading some stuff doctor moldwin wrote about the afects uti's can have on the pelvic floor specifically. I suffer from nocturia also.

    Leave a comment:


  • ginaaa22
    replied
    Just an update...

    My biofeedback is going great. My nocturia is down to once a night!!!! Last night I slept through the whole night My pain is getting better and I've only been going for 5 weeks and I've already achieved all the goals Cindy set for me. I would defiantly look into getting biofeedback. Cindy did say though that it wont help everyone. If anybody lives around the toledo area and wants to know where I go just let me know.

    Leave a comment:


  • Claire_A
    replied
    PT Sucsess

    I have been in what I guess you could call PT for 5 months I have been suffering with Vulvodynia for about 9 and IC symptoms for around 5 months. I had seen little improvement with the PT for intercourse pain (using dilators helped) until I went for intensive treatment.

    I recently came back from an intensive therapy 4 days in Adalaide. Teqniques included miofacsial release, trigger point work, massage and stretching. My ureather and clitoris had become increasingly sensitive and frequency was a problem. I also got a burning sensation in my bladder. During my time in Adalaide I received 2 2 hour sessions an day for 4 days working on the tight muscles and sore points including my lower back, hips and glutes. By the end of the 4 days I felt 75% better!

    after the first week back home (because I had my period and some pretty bad hemorrhoids and fissures because of the PFD I am guessing) - I did not think I had progressed much at all and was very disappointed. However, for about 2 and a half weeks now I have felt the best I have since this all started. I am on laxatives for 1 month to give the fissure time to heal, I have no clitoral or ureather pain (these trigger points were worked on with the help of lidocane) frequency is still a bit annoying (once an hour compared to once every 20 minutes before intensive treatment) I have no anal pain. I have some pain with sitting but it doesn’t cause me to have to stand up all the time as before.

    Sex is about 50% better, I am over the moon with this. My partner helps every night with stretching and trigger point work (he has become very good at this - he was shown while in Adalaide exactly what to do) I am also following low acid diet , taking endep 20mg I don’t think it's helping anything but the nerve pain in my hands and feet - and doing yoga. Yoga has been the best thing for my back hips, I practice every day. Another tip I would like to share with anyone suffering from PFD - I feel I have the least pain with intercourse when I have a warm bath for about 20 minutes then do my internal massage then use a very small vibrator on the lowest setting, it seems to relax and massage the muscles (like one of those massage chairs)

    I hope to continue improving - I hope the success holds out. Any questions or if I can help anyone with anything please ask.

    Claire

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  • valerie michele
    replied
    Just curious, I have some serious pelvic floor dysfunction issues. I have been recently told to start bladder retraining too. My paperwork stated to do Kegel exercises. My muscles are already extremely tight. Would kegel exercises loosen these muscles or make them tighter?

    Leave a comment:

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