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I wonder if posture isn't at the root of problems.

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  • I wonder if posture isn't at the root of problems.

    The link below is for a video I found while googling about posture.

    Its about an hour long but fascinating. I tried some of the tips she recommends and I felt much better at once. Its all a matter of proper alignment. Put your weight over your heels and lean forward a tad so your butt goes out - see how it pulls your lower abdomen into nicely into place?

    I'm going to watch it again with my husband as he has problems with his back while mine involve pressing on my bladder when I'm anxious which is like all the time and I want to be able to stand correctly so I can avoid doing that.


  • #2
    maybe

    I've always had bad posture and I thought I read somewhere that people with IC have different posture. Makes sense if our pelvis is tight.
    I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.

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    • #3
      Maybe for those with PFD

      Originally posted by izazen View Post
      The link below is for a video I found while googling about posture.

      http://www.paleoplaybook.com/2010/10...l-posture.html
      I don't know, I had PT on my knees last summer and the PT told me I had excellent posture which I didn't know about myself. But maybe in those of us with PFD? which I don't have. Just guessing, but maybe that goes along with all of those tight muscles.
      Cindi


      Gelnique for frequency/urgency - works great
      Macrobid after sex
      Prilosec, continuous birth control pills
      synthroid .088mg, mucinex-d, restasis

      Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

      Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

      IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
      AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
      AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
      Great treatment flowchart on page 19 of the pdf

      Comment


      • #4
        HI!

        Just wondering how you like the desert harvest aloe? How long have you been taking it? Does it help? I have NOT been diagnosed with IC but I do have endo and get some rectal type pain, I am beginning to think it might be pelvic floor related and sometimes I have bladder pain - wondering if I should add the aloe to my diet.

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        • #5
          I do have horrible posture too. (Even in grade school and even now, people are always telling me to straigten up and stand up straight.) Every time they had one of those scoliosis screenings in school, they ALWAYS picked me out to go because of the way I walk. (But, I never had it.) Anyway, it is something to think about since I also have PFD. Thanks for posting!
          I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.

          D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression

          Meds: Estrogel (due to total Hyster)
          The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)


          (I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)


          John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.

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          • #6
            posture

            Hi,
            I have noticed recently, that I tend to slouch over my bladder, especially when watching t.v. or shopping and that when I straighten up, my bladder feels much better.
            I'm going to make a more conscious effort to stand correctly and I'm going to try to get my DH to do it too. He has a terrible back which is alway hurting him.
            Thanks for posting!
            Laurie

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            • #7
              I 100% agree. I have learning about all that stuff a lot lately and it can definitely cause problems. maybe not everyone with IC but i guarentee for some it is related. i work in an alternative health doctor's office and i know first hand how it can cause all sorts of problems.

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              • #8
                Danskos

                I don't know about posture but I do know that my pain has improved since I started wearing danskos to work. I use to wear low heels 2 inches and swore I'd never put Danskos on my feet. But I feel much better with them on. I have to chaperon my daughter's Prom next week and I'm not looking forward to wearing heels for four hours!

                Suzanne

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                • #9
                  I like it

                  Originally posted by endogirl2 View Post
                  HI!
                  Just wondering how you like the desert harvest aloe? How long have you been taking it? Does it help? I have NOT been diagnosed with IC but I do have endo and get some rectal type pain, I am beginning to think it might be pelvic floor related and sometimes I have bladder pain - wondering if I should add the aloe to my diet.
                  I like the aloe, I think it is a good natural anti-inflammatory and has alot of healing properties to it. I will probably stick with it, maybe just cut back on the daily pills once I feel really good. Right now I take 3 pills 2x/day. Its expensive so I buy 3 of the 180 count capsules so I can get the 4th free. Makes it more reasonable that way. Have you checked out their website? Lots of good info on it about IC and aloe.
                  Cindi


                  Gelnique for frequency/urgency - works great
                  Macrobid after sex
                  Prilosec, continuous birth control pills
                  synthroid .088mg, mucinex-d, restasis

                  Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

                  Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

                  IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
                  AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
                  AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
                  Great treatment flowchart on page 19 of the pdf

                  Comment


                  • #10
                    Hello!

                    Yes, I have looked on their web site and it's got a ton of great info! I wonder if I can buy some aloe at the vitamin shoppe for less money? I'm taking a probiotic which is kinda expensive so I don't want to get the aloe yet and be spending $65 a month on supplements. I am really lost right now. My endo was fine until August 2010. I slipped down the stairs at home, only the last 4 and it was only a soft fall. After that my periods have been bad but the pain is in my butt area, more pubic bone if that makes sense. I didn't realize it could be residual from the fall down the stairs until afew months later when my husband mentioned it. I went to the chiropractor and got an x ray done and it showed my L5 was crooked. I was working with him for awhile to put it back but I didn't feel he knew what he was doing so I switched to someone else. Only during day 2 of my period which is the worst day for me I have trouble peeing. It's soooo hard to pee. I have to push and push like I'm going to burst a vein in my head and I have a wave of nausea come over me. There is never any buring or frequency. I'm just confused if it's possibly endo on my bladder or if it's still something from when I fell. This past month after my period ended I haven't improved much, have some mild bladder pain but I believe it's from the muscles in my pelvic floor feeling tight.

                    Comment


                    • #11
                      It depends on the definition of "posture."

                      We may have "great posture" according to western standards ("tuck your butt in, stand straight up, pull your stomach in," etc.) but Esther - on the video - thinks that standard is not a natural posture and can lead to problems.

                      She studies primitive peoples and observes how they do things.

                      Comment


                      • #12
                        I agree--my PT spent a lot of time working on posture and hip alignment--which definitely causes problems. When I am not sitting properly, standing properly or lying down properly, I go out of alignment and in time, the pain starts.

                        I've been working on my doctorate and sitting at desks at a computer a lot, making my posture even worse. I think this is what caused my problems in the first place.

                        I think the posture issue just causes a downward spiral for your muscles.

                        Comment


                        • #13
                          I did want to add that Gokhale's method, from what I've read about it (and I've come back to it again and again), might be easily misunderstood.

                          From what my PT says, I need to tuck my pelvis--so that when I am lying down my back is flat on the ground with only room for a perhaps walnut-sized ball down at the bottom of my back. This is actually a pelvic-neutral position, but since I used to stuck my butt out a lot, it feels like I'm tucking it forward. It would be easy to take Gokhale's method and really, really stick out your butt. But, for me, my posture before PT was very much an S-shape where I stuck out my butt a lot. From what I can tell, Gokhale is actually recommending slightly curving the very bottom of your tailbone. So, for me, that actually involves tucking in my butt more rather than sticking it out, which is what my PT recommended. If I consciously keep my pelvis tucked in all day, I am much less likely to go out of alignment and more likely to have a pain-free day. I'm definitely following my PT's advice, so I'm not sure it's exactly Gokhale's, but this is what works for me.

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