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Does anyone else do Pilates? My pelvic physiotherapist runs a class. She insisted that she help pelvic problems as we hold pain in and need to release/relax muscles. I have taken 4 classes so far. It is very intense. I have to modify some moves as they are extremely difficult as of yet. My husband even came to a class to see what it was all about. He was impressed with the workout and now understands has hard it is. I am going to continue with classes to strengthen my pelvic floor.
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Interstitial Cystitis: Elmiron and Hydroxyzine
Depression/Anxiety: Remeron, Cipralex and Clonazepam
*tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
* 2 hydrodistentions :
* currently on "Nabilone" for pain management
Taken the following:
Gabapentin
no relief but could tolerate it
Lyricano relief but could tolerate it
Cymbalta severe depression/anxiety etc.
Topamax severe nausea and weight loss
Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation
What helps IC:
yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture
Other conditions...
Vulvadynia (amytriptaline cream - no longer using to to irritation)
Severe IBS
Chronic Sinus pain (nasal rinse as need)
Migraines
Lower back and sacroiliac joint disfunction
Allergies: Erythromycin, scents and detergents -
Good for you! I have tried pilates but it is too intense for me, it really does take a strong core. I can do some yoga but basic. Right now I practice what I learned from the book Healing Female Pain, they sell it here on this site. It has some dedicated pilates moves but I tried them once and I was in pain the next day. I think I will have to work up to them. It sounds like it would really be good to do pilates under the instruction of a physiotherapist. I would be much more comfortable if I could go to a class like that other than one at the local gym where they don't know of our special needs.
Please keep us updated on your improvement.
SandraLink to the patient information, everything from What is IC? to Disability
http://www.ic-network.com/patientlinks.html
American Urological Association Clinical Guideline
Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
http://www.auanet.org/content/guidel...ent_ic-bps.pdf
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