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  • Elavil-Baclofen-Gabapentin Cream

    Ladies and Gents,

    I have been trying for so long to find a valium suppository that I could tolerate. Well I couldn't. My wonderful doctor prescribed me a cream (Inserted vaginally) that I have compounded that contains Elavil, Baclofen, and Gabapentin. I finally can sleep! Love, Love it.

    I couldn't tolerate Elavil systemically, but so far I am tolerating the cream.
    Diagnosis: Endometriosis, IC, PID, PCS, PFD, PN/PNE, VV, fibro, Pelvic Adhesions, DDD, Hysterectomy at a young age. Unable to take estrogen, causes pain—extremely bad pain.

    Thankful: For all the support and comfort I receive on this site.

  • #2
    Elevil/Baclofen

    Originally posted by Thingone
    Ladies and Gents,

    I have been trying for so long to find a valium suppository that I could tolerate. Well I couldn't. My wonderful doctor prescribed me a cream (Inserted vaginally) that I have compounded that contains Elavil, Baclofen, and Gabapentin. I finally can sleep! Love, Love it.

    I couldn't tolerate Elavil systemically, but so far I am tolerating the cream.
    Hi,
    If you don't mind my asking, what is an EMPI IF 3 Wave?
    Sounds like you have a great doc, btw.
    Laurie

    Comment


    • #3
      I was going to ask about the Empi IF 3 wave, also. It actually sounds good, and have heard about it on here quite a bit. I use a TENS unit, and it helps. One day at physical therapy they used IF (inferential therapy), and it is much stronger than the TENS and it helped. I was wondering, does this use electrodes? Also, who would write a prescription for it? Would a pain management doctor be able to? I am seeing one soon. I like that the EMPI IF 3wave has a setting for IC pain! I think that is great. Sorry for all of the questions, just looking around!

      I am happy that the new compound you are using is helping! Hopefully it keeps helping!
      24 year old Ph.D student in Organic Chemistry

      Loves to listen to music, play with my animals (cat, fish, 2 hamsters), and live life to the fullest each and every day.

      My blog (just started):

      http://imaginenoworries.blogspot.com/

      Medications:
      Elavil 25mg (helped with nighttime urination-used to be 7 or more times a night, now just once)
      Cymbalta 60mg
      Gabapentin (Neurontin) (3200mg/day)
      Zyrtec 10mg
      Xanax 0.5mg up to 3 times a day(spasms, anxiety)
      Uribel
      Macrobid 100mg (only on days when doing an instill)
      Albuterol
      Yaz Birth Control (3 months on birth control, then period)
      Pelvic floor therapy
      Valium 5 mg (inserted vaginally)
      MScontin 30 mg (3 times a day)
      Percocet 10/325mg (every 6 hours)
      TENS Therapy, CVS machine, 30 minutes once or twice a day
      Sanctura XR 60 mg (to help control severe bladder spasms that are causing urinary retention episodes and enable normal bladder sensations)

      *** 1/4 of a teaspoon of baking soda in an 8 ounce glass of water up to 4 times a day*****

      Instill:

      Currently doing hyaluronic acid instillations (cystistat-6 instillations, once a week, already had 4...not sure if helping)

      Used to do these:

      Solu-Cortef (act-o-vial) 100 mg: 2 mL
      Marcaine (bupivicaine) 0.5 % 25 mL
      20,000 units Heparin
      3 mL sodium bicarbonate

      Diagnoses: Moderate IC, scoliosis, asthma, ovarian cysts, PFD, IBS, Fibromyalgia, vulvodynia, Fowler's syndrome (mild) 'Central Sensitivity Syndrome.'

      Comment


      • #4
        Empi IF 3WAVE

        Originally posted by ermkenne
        I was going to ask about the Empi IF 3 wave, also. It actually sounds good, and have heard about it on here quite a bit. I use a TENS unit, and it helps. One day at physical therapy they used IF (inferential therapy), and it is much stronger than the TENS and it helped. I was wondering, does this use electrodes? Also, who would write a prescription for it? Would a pain management doctor be able to? I am seeing one soon. I like that the EMPI IF 3wave has a setting for IC pain! I think that is great. Sorry for all of the questions, just looking around!

        I am happy that the new compound you are using is helping! Hopefully it keeps helping!
        IF 3WAVE uses electrodes. I just love it. I started out with a regular Empi tens unit. I didn't like the way it felt. To me it was like getting shocked constantly. I traded for the EMPI IF 3WAVE. This baby is my favorite tool to use. It calms down my spastic muscles. 9 on the pain scale, after 20 minutes— 5 on the pain scale—4, 3, 2.

        The big kicker is that is cost $1,200 dollars. Insurance didn't approve, but Empi will give IC patients a self pay plan, which is 100 dollars a month.

        Your Pain Management doctor, urologist, GYN or your GP can write a prescript for this. Just make sure to tell them to write Empi IF 3WAVE on the prescript. If your lucky maybe your insurance coverage is better than mine.

        Out of all the treatments, medications, etc., this is my got-to-have tool to survive . I highly recommend it.
        Last edited by ICNDonna; 04-14-2011, 04:28 AM. Reason: Deleted sales site.
        Diagnosis: Endometriosis, IC, PID, PCS, PFD, PN/PNE, VV, fibro, Pelvic Adhesions, DDD, Hysterectomy at a young age. Unable to take estrogen, causes pain—extremely bad pain.

        Thankful: For all the support and comfort I receive on this site.

        Comment


        • #5
          Re: Empi IF 3WAVE

          I just got some compounded cream with these ingredients also (to insert vaginally), and I waited for a flare, and the stuff just burned like crazy and made my flare so much worse. I'm wondering if I reacted to something in the base. I will be calling the pharmacy very soon. Really disappointed as I think treating something locally is the way to go.
          I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.

          Comment

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