No announcement yet.


  • Filter
  • Time
  • Show
Clear All
new posts

  • Frequency

    I am not sure if I have PFD or ic flares. I have absolutely no pain ever - just severe frequency sometimes 4 times a night i get up. If I get through 3 hours of sleep it's a major victory. I have been told my pelvic floor is tight from the nurse practicioner at Dr. Moldwin's office. Because I live upstate getting pelvic floor therapy isn't so easy. I also take cipro occasionally and sometimes it calms it down. Could it be a prolapsed organ that makes it worse at night. I am grasping at straws here; the fact that frequency is the only problem baffles me. Anyone with opinions? Thanks so much


  • #2
    Hi, Reg ~ I absolutely understand about the nighttime nightmare. I'm still getting up at least 4-8 times a night for about the 3rd year! I would think Dr. Moldwin's office would have told you if they noticed a prolapse but I do believe if so it might aggravate things. Have they offered you any meds to help such as vaginal valium since you muscles are very tight?

    Sorry I don't have more to offer in the line of advice right now.....
    Sure hope it's not long until you begin to feel better.

    Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found can you...keep the hope.

    11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
    8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
    8/2010 Surg gallbladder
    TREATMENTS (updated 4/15)
    IC Diet since 8/2009 (Able to vary 4/15)
    Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
    Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
    Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
    *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
    Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
    PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret


    • #3
      I can certainly be IC. While most people do have pain I only had severe frequency. After seeing pictures of my bladder I am still shocked I did not have any pain. The only time I had pain was after my Cysto.

      I was going every 5 minutes and not sleeping more than 10 minutes a night. What's still odd for me is that when I take pain meds it helps my frequency. I do not know why. Between the IC diet and OAB and IC meds I am only going once every 2-3 hours and waking up at night only once.


      • #4
        You might want to see if there's a physical therapist near you who can help with those tight muscles. Dr. Moldwin's office might be able to help you find someone.

        Stay safe

        Elmiron Eye Disease Information Center -
        Elmiron Eye Disease Fact Sheet (Downloadable) -

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help:


        Diet list:

        AUA Guidelines:

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Anyone who says something is foolproof hasn't met a determined fool


        • #5
          i dont think cipro would help it if it was just pfd since its an antibiotic. i only have pfd not IC, and mine started with a uti and frequency which triggered the pfd. at the beginning (before physical therapy) it was excruciatingly painful for days at a time, until i took a valium, which didnt even always help. i would def. see a physical therapist so you can get started asap on getting the muscles loosened. my frequency is much better unless i drink caffeine which was always a problem for me. phys therapy worked wonders for me and some days my pain is almost completely gone!
          Pelvic Floor Dysfunction May 2011 from bad UTI
          21 years old, horseback rider (although this has been practically eliminated from my daily routine since the PFD)

          Current Meds: neurontin 600 mg
          valium 2mg as needed