Tweet
I was very enlightened by today's PT. I was so nervous about going because of fear of having a flare during the internal work. (first time with the internal work) My fear stemmed from a severe flare I had yesterday due to stress, which caused me to go every five minutes, even less than that at times, being doubled over in pain. It lasted about two hours until I took Klonopin....which thank God worked.
Thanks to God the appointment today went well, despite my nervousness. I want to share my experience in case it can help anyone. Firstly, the therapist massaged on the inner thigh area. I didn't even know I had the specific muscles she was pushing on. The pain was like a 6. I asked her if that was normal and she said for most people it's not, unless of course they have bladder issues or other things to cause that tightness. It felt like a burning sensation with tightness, like a rubberband. Now I consider myself to be flexible and have practice martial arts for a number of years, so therefore never would have thought those particular muscles would be so tight and painful. Those muscles are the ones closest to the pelvic area that can have an effect on the pain in the pelvis. Ok...so then she was doing (light) stretches internally, both as a test and treatment. The pain, and sudden burning and itching was unbelievable. I could feel pain that radiated to my backside, and suddenly it felt like I had an infection, like the sensation of having a yeast infection. Even my urethra felt this odd itching sensation when she pressed on muscles internally on the sides. I asked her why suddenly I had those strong symptoms. She said that from the tightness of the muscles, all the nerves in and around the area get affected and cause the burning and itching, with absence of infection. In fact, she said some patients' main issues are burning and itching.
This is crazy to me. All the pelvic pain, back pain, chronic severe itching, burning, not to mention flares and frequency, has be been exacerbated due to muscular issues. So if there is already a bladder condition present, the muscles tightness can make it worse, or for some cause it, as well as cause hosts of other symptoms. Unreal!
We discussed stress today because it's a major flare trigger for me. So my homework is a bladder diary, some pelvic floor relaxation exercises and deep breathing.
I recommend for those considering PT that they absolutely find someone who specializes in this. My PT said that it's necessary to get the additional training to treat this patient population. My doctor also only recommended two specific doctors from a long list of doctors. My PT is actually listed on this site which I was happy to see. (I found that out afterwards)
I'm not suffering in too much pain after treatment but do have discomfort and more burning than usual, and like before, would assume I have an infection of some sort. (which of course I don't) I can't tell you how many times I went to the doctor to be checked for yeast and all sort of other things and was told nothing was wrong. Heck I was checked for Edometriosis and was almost started on treatment due to my complaints of chronic cramping and sensations as thought my period would come. I didn't have signs of Endometriosis but the doctor was desperate to help me and listened to my symptoms. He also thought my painful periods could be a symptom. But the Urogynecologist said pelvic and bladder issues can make period issues work. Go figure! Had no idea about that.
I can never say enough how VERY GRATEFUL for this site and all of you who have taken the time to help me. If it wasn't for this site I wouldn't be getting the proper treatment that I'm getting now. I don't know what I'd do if I didn't have this site and would be such a wreck emotionally because of this condition. I'd be continuing to go to doctor to doctor and always feeling depressed that I had some strange vaginal problem, infection, or something else. At least now I have an idea as to how the pelvic region works, how stress affects that region, and that I can maybe someday have some relief from my symptoms. (a little relief for me will be miraculous)
I was hesitating to take the Gapapentin that the Uro described to be honest. (due to my strange irrational fear of medicine) But now after today's appointment I can understand how many nerves are being affected. So I'm praying the Gabapentin can offer relief. For me the worst thing I think is the unexpected severe flares with pain. Seriously, those darn things are debilitating. I'll be glad for the day when they are more under control.
Thank you all again! Wish there was a better more profound way for me to say thank you.
Any comments or discussions would be great if you have time!
Thanks to God the appointment today went well, despite my nervousness. I want to share my experience in case it can help anyone. Firstly, the therapist massaged on the inner thigh area. I didn't even know I had the specific muscles she was pushing on. The pain was like a 6. I asked her if that was normal and she said for most people it's not, unless of course they have bladder issues or other things to cause that tightness. It felt like a burning sensation with tightness, like a rubberband. Now I consider myself to be flexible and have practice martial arts for a number of years, so therefore never would have thought those particular muscles would be so tight and painful. Those muscles are the ones closest to the pelvic area that can have an effect on the pain in the pelvis. Ok...so then she was doing (light) stretches internally, both as a test and treatment. The pain, and sudden burning and itching was unbelievable. I could feel pain that radiated to my backside, and suddenly it felt like I had an infection, like the sensation of having a yeast infection. Even my urethra felt this odd itching sensation when she pressed on muscles internally on the sides. I asked her why suddenly I had those strong symptoms. She said that from the tightness of the muscles, all the nerves in and around the area get affected and cause the burning and itching, with absence of infection. In fact, she said some patients' main issues are burning and itching.
This is crazy to me. All the pelvic pain, back pain, chronic severe itching, burning, not to mention flares and frequency, has be been exacerbated due to muscular issues. So if there is already a bladder condition present, the muscles tightness can make it worse, or for some cause it, as well as cause hosts of other symptoms. Unreal!
We discussed stress today because it's a major flare trigger for me. So my homework is a bladder diary, some pelvic floor relaxation exercises and deep breathing.
I recommend for those considering PT that they absolutely find someone who specializes in this. My PT said that it's necessary to get the additional training to treat this patient population. My doctor also only recommended two specific doctors from a long list of doctors. My PT is actually listed on this site which I was happy to see. (I found that out afterwards)
I'm not suffering in too much pain after treatment but do have discomfort and more burning than usual, and like before, would assume I have an infection of some sort. (which of course I don't) I can't tell you how many times I went to the doctor to be checked for yeast and all sort of other things and was told nothing was wrong. Heck I was checked for Edometriosis and was almost started on treatment due to my complaints of chronic cramping and sensations as thought my period would come. I didn't have signs of Endometriosis but the doctor was desperate to help me and listened to my symptoms. He also thought my painful periods could be a symptom. But the Urogynecologist said pelvic and bladder issues can make period issues work. Go figure! Had no idea about that.
I can never say enough how VERY GRATEFUL for this site and all of you who have taken the time to help me. If it wasn't for this site I wouldn't be getting the proper treatment that I'm getting now. I don't know what I'd do if I didn't have this site and would be such a wreck emotionally because of this condition. I'd be continuing to go to doctor to doctor and always feeling depressed that I had some strange vaginal problem, infection, or something else. At least now I have an idea as to how the pelvic region works, how stress affects that region, and that I can maybe someday have some relief from my symptoms. (a little relief for me will be miraculous)
I was hesitating to take the Gapapentin that the Uro described to be honest. (due to my strange irrational fear of medicine) But now after today's appointment I can understand how many nerves are being affected. So I'm praying the Gabapentin can offer relief. For me the worst thing I think is the unexpected severe flares with pain. Seriously, those darn things are debilitating. I'll be glad for the day when they are more under control.
Thank you all again! Wish there was a better more profound way for me to say thank you.
Any comments or discussions would be great if you have time!
03/11 
So frustrating eh?
Comment