Fybromyalgia causing PFD which caused IC

[judy45]

I have been in a miserable battle with IC and PFD for 4 long years. I have not had one single pain free day. I follow the diet to the "T" I have always figured either nothing flared me or everything did. I never had any relief from the diet, but I clung to it for fear of getting even worse. Then I started PT for my PFD. Things got a little better, especially sex, much less pain. however I was still having pelvic floor pain that would flair my bladder. It was suggested to me, over a year ago that I might have Fibro. I could not deal with the idea of having yet another incurable autoimmume disease (I am also hypothyroid) but after about 6 months where even my fingers started to hurt I went with the Drs recommendation and started Savella. The body pain began to disappear immediately. The side effects were rough, I did increase the dosage slowly but I had nausea, headaches and was very anxious, but I hung in there. I began to feel better. however, I was still having some pelvic pain that would eventually flair my bladder. One day I couldn't remember if I had taken Savella or not, so I just took an extra dose. It was the lowest pain day I have had in years. So I tried it a few more times just to see if it was a fluke. Happily it was not. I got my Dr. to increase the dose from 100mg a day to 200mg. The pelvic pain is definetly decreasing, still there but much less. I believe he said I could go up to 300 mg and I think I may have to. Not looking forward to the nasty side effects, but I find after a week or so they pass, and if I can keep improving it is worth it. I am posting this to let people know IC may be the symptom but not the PROBLEM. Unfortunately it took me 4 years to get this far. I have been very carefully introducing foods back into my limited diet. I do find I still have trouble with most fruit. I do take prelief before I try anything new, but I have not had any problems. I urge people to think outside the box. You never know what is going to help

[skeetor]

Fibro causing IC

Judy,
My situation is exactly like yours. I have Fibromyalgia and IC. I don't have the typical IC symptoms of frequency and urgency, just bladder pain and spasms. I also have low thyroid and am on Synthroid post left thyroidectomy in 2005 for multinodular goiter. I'm on Savella also but only take 50 mg. I know that's subtherapeutic so I think I'll bump it up to 100 mg daily to see if any improvement. I found pelvic floor therapy to be very helpful also. Only thing is you have to stick with it and I don't have the time working full time to continue. Thanks for sharing the info., gives me hope.

[curlycue]

Fibro

Yes unfortunately IC Fibro IBS and I don't know how many other autoimmune disease are cousins ? there are many more I have these 3 for know ? see what happens in the future? the worst one for me is the IC I just can seem to control it right now so its frustrating.Good luck

[Car]

Hey - just curious - how is fibromyalgia diagnosed? I've read about it's connection to IC and am just wondering how you distinguish between the symptoms.

[Sassy]

I was curious as to how many have fibromyalgia, IBS along with their IC... I have been in pain from head to toe every day for years... I was just put on amitriptyline 50mg at night... I have diabetes type 2; I take 1000 mg ER Metformin a/day .. My blood pressure at home 138/96 to 147/98 pulse 80 to 90 +... But when I'm at the family doctor it's in range...
I battled breast cancer; Stage 1 invasive ductal carcinoma... I had a Lumpectomy followed by chemotherapy then Radiation therapy... And I thank God every day.... that I am in remission...... Knocking on wood, I haven't had a IC flare up since 7-6-11...

[curlycue]

fibro

You have to go to a Rumatologist ? That is how I was diagnose