I had my bladder and urethra removed 11 months ago, in Sept 2017. After my surgery I had instant relief. All my IC symptoms were gone and remained this way until about a month ago when I had a sudden onset of pain/burning in what and where my urethra was. I feel the need to pee all the time now with a lot of pain in my “urethra”, which doesn’t exist. I’m pretty much back to my pre-surgical state, other than the fact that I don’t have to actually pee 40x/day.
Anyone else that has had surgery, has this happened to you? Does anyone have suggestions? I’m losing my mind. I’m on neurontin, receiving pelvic floor therapy (I developed small bowel herniation after my bladder was removed), and I don’t know what else to do.
FYI- I had surgery after 12years of living with IC and failing every FDA approved treatment. I’m afraid the length of time before I finally had surgery has possibly led to an irreversible pain/nerve loop.
Anyone else that has had surgery, has this happened to you? Does anyone have suggestions? I’m losing my mind. I’m on neurontin, receiving pelvic floor therapy (I developed small bowel herniation after my bladder was removed), and I don’t know what else to do.
FYI- I had surgery after 12years of living with IC and failing every FDA approved treatment. I’m afraid the length of time before I finally had surgery has possibly led to an irreversible pain/nerve loop.
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