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  • Help-non functioning bladder

    If there is anyone else considered end stage:
    How do you know when you have a non functioning bladder?
    I know this might be a stupid question, but I went to the uro. for Botox again and he thinks my bladder is too scarred.
    Does anyone else have to bear down really hard to pee, trouble emptying the bladder but at the same time, any kind of jarring (cough,sneezing,tripping over something) make you wet your pants?
    I am confused by all this. I am having urodynamics next week. Has anyone else been through this?
    Thanks,
    Lisa
    Pain started 12/23/1989, diagnosed 1990
    I am considered severe endstage

    Current meds:
    Avinza (pain clinic)
    Vyvanse (ADD)
    Zoloft (depression/anxiety)
    Vivelle patch (hormones)
    Relpax (migraines)

    Other problems: ADD,PTSD(from years of pain),Possible Behcet's disease,migraines

    Current treatments: Botox injections every 6 months, have had 4 and it changed my life . Hospital based pain medicine doctor, pain therapist



    Things that didn't work: Almost everything: Elmiron,DMSO,diet

  • #2
    I haven't had your experience, but did want to say that urodynamics is a good idea.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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