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  • Human Replacement Bladders

    I was so excited to read the announcement that they are working to make human replacement bladders a reality. I still have my own bladder, but it would be the most wonderful thing in the world for me if they could remove my diseased bladder, and put in a healthy one. I want to sign up! I wonder if I would have to go to Berlin to get the surgery done, or if it will be available here in the states? My family would most definitely fly me there, if they could do that. Plus, I'd love to spend some time in Germany. What an excellent reason for a trip [img]smile.gif[/img]

    Anyway, I'm just so encouraged (more so than I've been in years). Was wondering what everyone else's thoughts were?

    Warmest wishes to you all,

    Sara

  • #2
    My thoughts are would the back pain go away? Would the groin pain go away? Would the leg pain go away? Would there be permanent nerve damage done from our bladder that a new one wouldn't make a difference in regard to the 'bonus' pain we get with IC...............

    I was and am a guinea pig with the interstim, I sure ain't gona be a guinea pig with a new bladder <img src="graemlins/eek.gif" border="0" alt="[eek]" />
    teri
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".

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    • #3
      Teri:

      While there definitely needs to be more research done, I think the bladder replacement therapy, if it turns out they can do it, would help some people, and maybe not others. For me, since I've done the interstim therapy, and that didn't work at all, I'm not so sure I have a nerve problem. Plus, all my pain is in my bladder. I don't have any pain in my legs, back, etc..

      So, while the jury is still out, it might be something I'd try, if they can do it safely. If it wouldn't make me any worse off than I am now, I'd truly consider doing it. Plus, I think that interstim treatment is not entirely safe, because they can hit a nerve in your back, leading to permanent nerve damage. That was always something I was worried about when I did the trial. Is interstim working for you? I think I read that you were benefiting from it. If so, that's great, and you should probably not do something so radical as getting a new bladder if you don't have to!

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      • #4
        Sara, where did you hear that? I have a friend who's thinking of having her bladder removed. I need to get this info to her. E mail me at [email protected] Thanks.

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        • #5
          Marsha:

          The news annoucement was actually just posted to the ICN. You can read it by going into the "What's New" section. In case you do not come back to this message board, I will E-mail the article to you as well.

          Sara

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          • #6
            Until the cause of IC is known, getting a new bladder , made from our own tissues ,might not work. For a cancer patient, it might be great. When the cancer is removed, the cause of the problem, is also removed. The patient is cured. With IC, we don't know what causes the damage, or why it is an ongoing process. Why don't we heal? IC, might be a genetic and systemic disease. Replacing our bladder ,with a new one, made from our own tissues, wouldn't guarantee the disease won't return.

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            • #7
              Sara, my interstim is working for the urgency and frequency, not for my unobstructed retention....yep! I'm an ICer that either pees her brains out or can't pee at all <img src="graemlins/scream.gif" border="0" alt="[scream]" />
              But, with my latest surgery this past October I have developed a crap load of other physical problems....related to the surgery????? I will probably never know.

              Most days <img src="graemlins/toilet.gif" border="0" alt="[toilet]" /> is where I'd love to be, IF someone would flush and put me out of my misery [img]wink.gif[/img]
              teri
              ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
              Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".

              Comment

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