Just a thought, why don't they do a bladder bypass for IC patients and allow the bladder to not have urine going through it which irritates it. They they could treat it and let it heal, then re-connect?
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They don't know what is causing the irritation. If a period without urine in the bladder, would allow healing to occur, a foley catheter should do the trick. As soon as the foley is removed, the pain returns. IC is probably a far more complex disease than we would like, otherwise a cure or good treatments would already exist. -
I begged my doctor to do this 1n 1993 when I was in unbearable pain. His comment to me was "Why should you go through all that surgery when there is nothing wrong with you that isn't stress related?" They don't understand the pain we are in. Your idea makes perfect sense to me.Comment
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I had the Aumentation done about 21 years ago! Now I have a Urostomy. I also had a Cecum=cysto plastic Bladder, made of Part Bowel and part Bladder. It didnot work for me. You name it I have had it. But te best choice I made was have a urostomy{ Bladder RemoveL:
Any Questions Feel free to e-mail me
[email protected]
DebbieDComment
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Originally posted by aztucgirlJust a thought, why don't they do a bladder bypass for IC patients and allow the bladder to not have urine going through it which irritates it. They they could treat it and let it heal, then re-connect?Comment
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Avann, I suffered with IC 40 years...I tried it all...I finally had enough and found a dr to remove my worthless bladder in Dec...BEST THING I EVER EVER DID!!!!!!!!!!!!!!After suffering with IC for 40 years, my bladder was removed in Dec 05...YAY!Comment
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Making the urine bypass the bladder will not work. I believe IC is a systemic disease. I have the same painful sensations in my hands, feet and bladder.
The reason they look at your bladder and then it looks normal and call it stress related, is because the problem lies in the nerves themselves, that cannot be seen with the naked eye. I think they will finally understand, that the pain is coming from the multitude of sensory nerves that are trying to fire off that they are in trouble. These nerves in and surrounding the bladder, are very fragile, and also in other locations in the body, they are screaming for help. I was so bad that I have sensory, motor and autonomic nerve damage.
My Dr. understands what biological disease went wrong, and this led to all my bladder frequency and body pain. The real difficulty is how to repair the nerves. No, it is not a mental problem but it will stress you out for sure!
The best I learned about this was from a veterinarian prof. who teaches neurology, and has found a similar problem in dogs and humans. He explains there is not much research in dogs, but has found the nerve disease more common then realized. He is my daughters prof. at the Vet college and he is known for expert on nerve disease in animals.
Over the past several years, I finally made my human pain Doc. hear me and understand what is happening. I feel very glad and thankful that he is willing to open his ears and mind and even looked at my internet sites! He told me to go on the internet and try to share this, so we can change medicine. He explained if I were to see specialist at the med school they would never treat me.() Even after bladder removal, the patient will also benefit with treatment.
Hey, my Doc. is attending an IC conference in Oct. I hope he finds others who are interested in the truth.
Very Sincerely SilverfoxComment
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