Announcement

Collapse
No announcement yet.

I got a removal and Indiana pouch but two months later the frequency is back

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • I got a removal and Indiana pouch but two months later the frequency is back

    I’m so stressed, all my IC symptoms were completely gone for two wonderful months after the surgery and suddenly, when I arrived back home in Seattle, they returned but only in my urethra. Burning and feelings of needing to pee for hours even though I don’t have a bladder. It’s so hard to sleep. My surgeon was dr evans in North Carolina though I live in Seattle. Does anyone know anything about this or have a similar experience? Please only post if you have something helpful or informative I’m not ready to answer questions about my life and surgery yet/right now. I will later when things are less out of hand. I’m 26 and healthy besides the bladder removal.

  • #2
    I still have my bladder, but have read posts by others who have had this surgery. I remember one who posted that when she had the feeling she needed to go she sat on the toilet and it seemed to help. I hope you will have responses from those with experience. I have also read that it can take a long time to heal and your body hasn't adjusted to the change. If you look at other posts in the Bladder Removal forum you'll find posts from folks who have gone through this.

    Sending warm well wishes,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment

    Working...
    X