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Has Anyone Heard From Dwdwdwdwdw?

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  • Has Anyone Heard From Dwdwdwdwdw?

    I'm just wondering if anyone has gotten an update on Dwdwdwdwdw. He was the 23 year old male from Sweden I believe, who was supposed to have a cystectomy about two months ago. Also wondering if anyone has heard from bella luna again?


  • #2
    I looked on his profile

    "Last Activity: 09-16-2006 04:07 PM "

    It has been a while for him hasn't it?
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.


    • #3
      yes that is a long time Sandy, I was thinking about him the other day, i hope he is alright.
      Diagnosed w/IC 7/18/05
      Dx'd w/Endo 5/5/06

      Current Treatments:
      Elmiron-100mg 4x's a day
      Atarax-10mg's 2x's a day
      IC Diet
      Oxycontin 40mg-Only when i can't take it anymore!

      Laparoscopy done, Endo lasered, Let's pray it stays away!

      "If you haven't gotten all the things you want, be grateful for the things you don't have that you don't want."


      • #4
        I had not heard from him iether. The last I heard of bellaluna was on another message board. She posted a question, got several responses but never answered back to any of them. This was back in the Fall.


        • #5
          I've been wondering about Daniel as well. I'd like to think everything is okay with him, but it sure would be nice to know for sure.
          ~ Lynne ~


          • #6
            Maybe they have moved on

            The last I heard from Bellaluna was last year. Have not heard a thing about DW either. Some people get well and move on from here. That is a very positive thing to see and I hope that both of them have moved on to healthier lives!

            Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

            "One hour at a time, this was NOT my American Dream but it has to work out somehow."

            I also have some journals of my journeys, past and some present at:

            Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.


            • #7
              Bellaluna - not good

              Hi, I did hear from her around the holidays. Things had not improved very much. She still has quite a battle to survive. I continue to pray for her and everyone.