Thank you for visiting the ICN Support Forum. We are so happy that you found us! The ICN Support Forum is home to 50,000 patients who have participated in our 24/7 support system. However, to protect the privacy of our members, members of the public can not read posts unless you have registered first.
It's easy to register! Just click the "sign up" button in the upper right corner of the page. Make sure you use a correct email address because we'll send you an email to confirm that you are a real person!! We also screen all new applicants to verify that they aren't bots or spammers! If you have any problems, please feel free to send a quick email to: [email protected]!
Did you also have related illnesses, CFS, Fm, IBS? One of my uro's says that these illnesses basically are all related to IC.
If after you had your bladder removed did your other illnesses subside? Go away in time or do you still suffer with them?
Your respones will be much appreciated.
God Bless,
MARY
Serenity isn't freedom from the storm.....it's peace within the storm.....I had my sick bladder removed Jan 7th 2010.....Even though I had many complications.......I would do it again in a moment.....I have no regrets......Sunflowers in memory of my sister who passed March 14th 2010......they were her favorite....
I dont think that removing your bladder will make the others illnesses go away. For me, I actually was diagnosed with other things years after my bladder was removed.
I agree with Judith. Having your bladder removed is about the bladder and improving issues with the bladder at end stage only. Other illnesses need to be treated by means for that illness in particular.
For example, I have Endometriosis and Infertility. Those did not improve or have anything to do with having my bladder taken out. I still have those conditions.
After having my bladder removed, I developed Celiac Disease. So I gained a Disease.
Kara
Complex Case:Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
Tweet
Did you also have related illnesses, CFS, Fm, IBS? One of my uro's says that these illnesses basically are all related to IC. 
Comment