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  • Sexuality question regarding bladder removal

    I am someone who has it chronic, and has had it now for 30 years. Been there and done everything. I know this is a last resort thing, which is why I have these questions as consideration may be in my future.

    For those who have had bladder removal, does it decrease your sex drive afterward? Does sex hurt more or less? Does it also kill the nerves in the important parts or just the ones that matter?

    Thanks!
    Last edited by Judith56; 03-12-2007, 02:28 AM.

  • #2
    hi, I am sorry I can't answer your questions, I am sure some of the bladder removal patients will be able to help you..
    Just a thought have you tried the interstim? that is an option before bladder removal.
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment


    • #3
      Having the surgery if done properly, should not affect sexual relations, if anything it may get better. I would ask your surgeon. Everyone is different and initially right after the surgery of they take out the urethra you may find that certain positions no longer work. Then you get to have fun trying out new ones! Usually you need to abstain for 6-8 weeks after the surgery to let things heal, but again every doctor has a different time frame as to what you can or can not do.

      Comment


      • #4
        to Judith

        Judith,

        What type of surgeon do I need to find? Also, does it help to bring 17 years of medical proof what hasn't worked?

        Thanks!

        Comment


        • #5
          Originally posted by tigger_gal
          hi, I am sorry I can't answer your questions, I am sure some of the bladder removal patients will be able to help you..
          Just a thought have you tried the interstim? that is an option before bladder removal.

          Yes, the Interstim was tried and it did not work for me. In fact, it made my conditon worse.

          Comment


          • #6
            My urologist did the surgery for my internal pouch. Do you have a urologist? Have you been told that your bladder needs to come out? Yes it is helpful to bring your records with you when you see a new doctor.

            Comment


            • #7
              Doctor

              Penpal,

              These are good questions to ask your Doctor.

              Kara
              Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

              "One hour at a time, this was NOT my American Dream but it has to work out somehow."

              I also have some journals of my journeys, past and some present at:
              http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

              Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

              Comment


              • #8
                sex

                I had my bladder removed Feb.2 2007. My sex drive is actually stronger although I haven't been cleared yet to have sex. I have a feeling I'm gonna have a lot of fun rediscovering what I have been missing these last several months!
                Eva:woohoo:

                Comment


                • #9
                  Eva,

                  It's wonderful to see that you haven't lost your sense of humour even after all that you have been through with ic and having major surgery. Give yourself more time to heal and if the pain is gone and the drive is there, you will be able to make up what you missed out on. Seriously, I'm so happy that you are doing quite well in your recovery. You have given me hope and it's positive stories like yours that I am hanging on to, to get me through each day until I can also have surgery. I wish you well and hope your quality of life is significantly better and you can enjoy life once again and be happy.

                  Marsi4

                  Comment


                  • #10
                    Eva

                    I too am considering bladder removal......You give me much hope also!!!! :woohoo: You sound so Good after just having it done in Feb ((((WOW)))). I want to be just like you! :woohoo: My husband and I go next Monday to talk to a surgeon. I pray for your continued success!!!!!


                    GOD BLESS YOU,
                    MARY


                    Serenity isn't freedom from the storm.....it's peace within the storm.....I had my sick bladder removed Jan 7th 2010.....Even though I had many complications.......I would do it again in a moment.....I have no regrets......Sunflowers in memory of my sister who passed March 14th 2010......they were her favorite....

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                    • #11
                      It did not interfere with my sex drive at all. None of my female parts were harmed or altered during these operations. I did ask about this. It's really important to be able to communicate with your surgeon about these issues.
                      Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                      "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                      I also have some journals of my journeys, past and some present at:
                      http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                      Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                      Comment

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