
I was just wondering if anyone else other than Kara29 has had a bladder removal and a removal of the urethra and the nerves?
As you may have seen on my other posts, I had a cystectomy 5 months ago and have had problems since.
Because I have no bladder control, I need to have my urethra out and the nerves cut to help with the leakage and sharp pains I get all the time.
My neobladder is working ok,which is good news, so I know that will stay in unless any more complications come to ahead.
I am quite nervous about having another major op and wanted to hear of other people's experiences.
Does' this op have a name? How long does' the op last? Finally has it worked?
I have had answers from Judith and Kara(thankyou) but still need to know what to expect.
I am in so much pain and wet myself all the time, my urethra leaks and bleeds also I have to have my Mirofanoff made longer and wider, any thoughts on this too will be appreciated.
Thankyou for reading yet another post from me!!
warm hugs to you all

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