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Pouch IC symtpoms?

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  • Pouch IC symtpoms?

    If the symtoms return with the pouch, what kind of symptoms does it feel like?

    Is it burning?
    Is it pressure?
    Is it sharp pain?

    Thank you,
    17 years IC patient

  • #2
    You shouls not have burning with a Pouch. You could have Low Back Kidney Pain which you could have an Infection. You need to call your Dr. To be sure.. They could Cath you through your Stoma for a Clean Catch.



    • #3
      Since none of us here have had the IC return in our pouches (that I know of) I dont have the answer for you. I do have IBS in my pouch and my main symptom is leaking as well as periodically gettting spasms. When I get an infection in my pouch, I have the feeling of needing to cath more frequently, my urine stinks, I run fevers, have nausea and vomiting, pain all over, shaking chills, etc. Judith


      • #4
        I've not experienced any of those symptoms with my Indiana Pouch. I have similar symptoms to Judith's when I have an infection.
        Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

        "One hour at a time, this was NOT my American Dream but it has to work out somehow."

        I also have some journals of my journeys, past and some present at: and

        Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.